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Lindh, Viveca
Publications (10 of 34) Show all publications
Engvall, G., Lindh, V., Mullaney, T., Nyholm, T., Lindh, J. & Ångström-Brännström, C. (2018). Children's experiences and responses towards an intervention for psychological preparation for radiotherapy. Radiation Oncology, 13, Article ID 9.
Open this publication in new window or tab >>Children's experiences and responses towards an intervention for psychological preparation for radiotherapy
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2018 (English)In: Radiation Oncology, ISSN 1748-717X, E-ISSN 1748-717X, Vol. 13, article id 9Article in journal (Refereed) Published
Abstract [en]

Background: Children can experience distress when undergoing radiotherapy as a reaction to being scared of and unfamiliar with the procedure. The aim was to evaluate children's experiences and responses towards an intervention for psychological preparation for radiotherapy.

Methods: A case control design with qualitative content analysis of semi-structured interviews and statistical analysis of anxiety ratings were used for evaluating a strategy for psychological preparation and distraction. Fifty-seven children aged 2 to 18 years and their parents participated - 30 children in the baseline group and 27 in the intervention group. Child interviews were performed and the child and their parents rated the child's anxiety.

Results: The intervention was most appropriate for the younger children, who enjoyed the digital story, the stuffed animal and training with their parents. There were some technical problems and the digital story was not detailed enough to fit exactly with various cancer diagnoses. Children described suggestions for improvement of the intervention. The ratings of the child's anxiety during radiation treatment showed no differences between the baseline group and the intervention group.

Conclusions: The children of all the age groups experienced their interventions as positive. The strength of the intervention was that it encouraged interaction within the family and provided an opportunity for siblings and peers to take part in what the child was going through. Future research on children's experiences to interventions should be encouraged. The intervention and the technical solutions could improve by further development.

Trial registration: The study design was structured as an un-matched case-control study, baseline group vs. intervention group. Trial registration: ClinicalTrials.gov NCT02993978 , Protocol Record 2012-113-31 M. Retrospectively registered - 21 November 2016.

Place, publisher, year, edition, pages
BioMed Central, 2018
Keywords
childhood cancer, children’s experiences, distraction, psychological preparation, radiotherapy
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-144573 (URN)10.1186/s13014-017-0942-5 (DOI)000423350200001 ()29357940 (PubMedID)
Available from: 2018-02-06 Created: 2018-02-06 Last updated: 2018-06-09Bibliographically approved
Bergström, P. & Lindh, V. (2018). Developing the role of Swedish advanced practice nurse (APN) through a blended learning master's program: consequences of knowledge organisation. Nurse Education in Practice, 28, 196-201
Open this publication in new window or tab >>Developing the role of Swedish advanced practice nurse (APN) through a blended learning master's program: consequences of knowledge organisation
2018 (English)In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 28, p. 196-201Article in journal (Refereed) Published
Abstract [en]

This paper reports on a research study conducted with a group of nurses in Sweden enrolled in a newly developed blended learning master's programme to become advanced practice nurses (APNs). As background, the paper presents the regional needs the programme is intended to address and describes how the programme was designed. The aim was to understand how, from students' perspective, the nurse master's programme structured knowledge for their future position as APNs. The research question focuses on how the master's programme prepares students by meeting their diverse needs for knowledge. Empirical material was collected at two times during the students' first and second years of study through semi-structured qualitative interviews. The findings highlight the process in which these master's students gained a more advanced identity of becoming APNs. This process demonstrates how students perceive their current position as nurses based on a discourse of knowledge in relation to the practical and theoretical knowledge they encounter in the master's programme. This article concludes by recommending that attention should be paid to developing APN role models in the current Swedish healthcare system.

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
qualitative, advanced practice nurse, knowledge structures, master's programme, blended learning
National Category
Pedagogical Work Nursing
Research subject
educational work
Identifiers
urn:nbn:se:umu:diva-141552 (URN)10.1016/j.nepr.2017.10.030 (DOI)000427210000033 ()29126056 (PubMedID)
Available from: 2017-11-07 Created: 2017-11-07 Last updated: 2018-06-09Bibliographically approved
Marklund, S., Sjödin Eriksson, E., Lindh, V. & Saveman, B.-I. (2018). Family Health Conversations at a pediatric oncology center: a way for families to rebalance the situation. Journal of Pediatric Nursing: Nursing Care of Children and Families, 38, e59-e65
Open this publication in new window or tab >>Family Health Conversations at a pediatric oncology center: a way for families to rebalance the situation
2018 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 38, p. e59-e65Article in journal (Refereed) Published
Abstract [en]

Purpose: The study aimed to describe and understand adult family members' experiences of participating in a Family Health Conversation (FamHC) when a child is diagnosed with cancer.

Design and Methods: Twelve individual interviews were performed with adult family members who had participated in a FamHC. During the interviews each interviewee was a spokesman for his or her respective family. Thereby the family was included as a system. The interviews were analyzed using a hermeneutic approach.

Results: The analysis resulted in four themes: "To unburden the burden," "Seeing things in a new light," "To be seen the way you are," and "Talking to someone who is both within and alongside." Finally an overarching theme evolved, " To rebalance the situation" revealing the meaning of taking part in the FamHC.

Conclusion: All participants considered the FamHC to be valuable. It was surprising that such a relatively small investment of two family conversations and a closing letter could have such significance for the families in their difficult situation.

Practice Implications: With training, clinical nurses can use a well-established structured interview process such as the Family Health Conversation to help family members to gain insight into each other's experiences, which increase their ability to cope and regain control.

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
Family Health Conversation, FamHC, Family Systems Nursing, hermeneutic analysis, pediatric oncology nursing
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-144854 (URN)10.1016/j.pedn.2017.10.004 (DOI)000423035000012 ()29037772 (PubMedID)
Available from: 2018-02-23 Created: 2018-02-23 Last updated: 2018-06-09Bibliographically approved
Uggla, C., Lindh, V., Lind, T. & Lindkvist, M. (2018). IMPACT-III is a valid and reliable questionnaire for assessing health-related quality of life in Swedish children with inflammatory bowel disease. Acta Paediatrica, 107(2), 347-353
Open this publication in new window or tab >>IMPACT-III is a valid and reliable questionnaire for assessing health-related quality of life in Swedish children with inflammatory bowel disease
2018 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 107, no 2, p. 347-353Article in journal (Refereed) Published
Abstract [en]

Aim: This study examined the reliability, validity and factor structure of the Swedish version of the IMPACT-III questionnaire for assessing health-related quality of life in children with inflammatory bowel disease.

Methods: We recruited 202 participants aged eight to 18years, who were enrolled from 16 of the 23 paediatric gastroenterology clinics across Sweden during 2010-2013. This cross-sectional study compared two versions of the IMPACT-III questionnaire - one with six factors and 35 items and one with four factors and 19 items - plus the Paediatric Quality of Life Inventory 4.0 Generic Core Scale. Disease activity was assessed and defined as active or inactive.

Results: The mean total score for the six-factor IMPACT-III scale was 143.7/175, with a standard deviation (SD) of 17.9. There was a significant difference in mean total scores between the 133 children with inactive disease (147.8, SD: 14.9) and the 52 with active disease (133.0, SD: 20.3). Confirmatory factor analysis showed that the four-factor scale was more robust than the original six-factor scale. Concurrent validity and discriminant validity were high for both versions.

Conclusion: The Swedish version of the IMPACT-III questionnaire was valid and reliable, but the shorter, four-factor version is quicker and may be more convenient in clinical settings.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018
Keywords
health-related quality of life, IMPACT-III, paediatric inflammatory bowel disease, Sweden, validity
National Category
Pediatrics
Identifiers
urn:nbn:se:umu:diva-144391 (URN)10.1111/apa.14119 (DOI)000419768200031 ()29032599 (PubMedID)
Available from: 2018-02-13 Created: 2018-02-13 Last updated: 2018-06-09Bibliographically approved
Ångström-Brännström, C., Lindh, V., Mullaney, T., Nilsson, K., Wickart-Johansson, G., Svärd, A.-M., . . . Engvall, G. (2018). Parents’ experiences and responses to an intervention for psychological preparation of children and families during the child’s radiotherapy. Journal of Pediatric Oncology Nursing, 35(2), 132-148
Open this publication in new window or tab >>Parents’ experiences and responses to an intervention for psychological preparation of children and families during the child’s radiotherapy
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2018 (English)In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 35, no 2, p. 132-148Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to evaluate parents’ experiences and responses to a systematic intervention for psychological preparation of children and families during the child’s radiotherapy (RT) treatment. In this case-control study at 3 pediatric RT centers, an intervention with a preparatory kit, including age-adjusted information on tablets, gift of a stuffed toy or a pair of headphones, a parent booklet, and toy models of the computed tomography and RT machines was implemented. For evaluation, a mixed methods data collection was conducted. A total of 113 parents of children undergoing RT were included—n = 59 in the baseline group and n = 54 in the intervention group. Health-related quality of life was rated low, but parents in the intervention group expressed less anxiety after the RT compared with the baseline group. They found information suitable for their young children, siblings, and friends were involved and the toy models were used for play. Parents expressed positive feelings due to close interaction with staff and each other within the family. The solutions developed within a human-centered design approach and shaped as a systematic family-centered strategy contributed to parents understanding and coping with the child’s RT.

Place, publisher, year, edition, pages
Sage Publications, 2018
Keywords
child, childhood cancer, intervention, radiotherapy, parent
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-142367 (URN)10.1177/1043454217741876 (DOI)000427356900006 ()29172925 (PubMedID)
Available from: 2017-11-28 Created: 2017-11-28 Last updated: 2018-06-09Bibliographically approved
Rullander, A.-C., Lundström, M. O., Östlund, U. & Lindh, V. (2017). Adolescents' experiences of scoliosis surgery and the trajectory of self-reported pain: a mixed-methods study. Orthopedic Nursing, 36(6), 414-423
Open this publication in new window or tab >>Adolescents' experiences of scoliosis surgery and the trajectory of self-reported pain: a mixed-methods study
2017 (English)In: Orthopedic Nursing, ISSN 0744-6020, E-ISSN 1542-538X, Vol. 36, no 6, p. 414-423Article in journal (Refereed) Published
Abstract [en]

Scoliosis surgery for adolescents is a major surgery with a diffi cult recovery. In this study, a mixed-methods design was used to broaden the scope of adolescents' experiences of surgery for idiopathic scoliosis and the trajectory of self-reported pain during the hospital stay and through the fi rst 6 months of recovery at home. Self-reports of pain, diaries, and interviews were analyzed separately. The results were then integrated with each other. The trajectory of self-reported pain varied hugely between individuals. Adolescents experienced physical suffering and struggled to not be overwhelmed. The adolescents described the environmental and supportive factors that enabled them to cope and how they hovered between suffering and control as they strived toward normality. This study highlights areas of potential improvement in perioperative scoliosis care in terms of nursing support and pain management.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2017
Keywords
Scoliosis, Nursing, Perioperative care, Pain, Adolescent, Recovery
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-111598 (URN)10.1097/NOR.0000000000000402 (DOI)000417937300007 ()
Available from: 2015-11-17 Created: 2015-11-17 Last updated: 2018-06-07Bibliographically approved
Strinnholm, Å., Hedman, L., Winberg, A., Jansson, S.-A., Lindh, V. & Rönmark, E. (2017). Health Related Quality of Life among schoolchildren aged 12-13 years in relation to food hypersensitivity phenotypes: a population-based study. Clinical and Translational Allergy, 7, Article ID 20.
Open this publication in new window or tab >>Health Related Quality of Life among schoolchildren aged 12-13 years in relation to food hypersensitivity phenotypes: a population-based study
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2017 (English)In: Clinical and Translational Allergy, ISSN 2045-7022, E-ISSN 2045-7022, Vol. 7, article id 20Article in journal (Other academic) Published
Abstract [en]

Background:

While Health Related Quality of Life has been investigated among children with IgE-mediated food allergy, less is known about quality of life among children with other types of hypersensitivity to food. The aim of this study was to investigate Health Related Quality of Life (HRQL) in children with and without food hypersensitivity. Further, we compared HRQL between children with different phenotypes of food hypersensitivity.  

Methods:

In a large population-based cohort of schoolchildren in Northern Sweden, the parents of 2,612 (96% of invited) completed a questionnaire. All 125 (5%) children who reported complete elimination of milk, egg, fish or wheat due to food hypersensitivity were invited to a clinical examination and 94 children participated. Of these, 75 children also completed a generic (KIDSCREEN -52) and a disease-specific HRQL questionnaire (FAQLQ-TF). Thereafter, these children were categorised into the different phenotypes: current food allergy, outgrown food allergy, and lactose intolerance. Additionally, 209 children with unrestricted diets answered the generic questionnaire.

Results:

The median score of all KIDSCREEN -52 domains were above the population norm of 50 both in children with and without food hypersensitivity. No significant differences in distribution in generic or disease-specific HRQL were found between children with or without food hypersensitivity. There were no significant differences in HRQL between children with different phenotypes of food hypersensitivity. However, children with current food allergy tended to have the lowest HRQL. Further, poor HRQL defined as ≥75th percentile for the disease specific score was significantly more common in the current food allergy phenotype in the domain Emotional impact and the total FAQLQ, compared to the other phenotypes.

Conclusions:  

In this population-based study, 12-13 year old children reported good HRQL regardless of having food hypersensitivity or not. However, the children with the current phenotype reported lower HRQL than the other phenotypes. 

Place, publisher, year, edition, pages
BioMed Central, 2017
National Category
Public Health, Global Health, Social Medicine and Epidemiology Respiratory Medicine and Allergy Nursing
Identifiers
urn:nbn:se:umu:diva-132250 (URN)10.1186/s13601-017-0156-9 (DOI)000405007100001 ()28680560 (PubMedID)
Note

Originally included in thesis in manuscript form 

Available from: 2017-03-08 Created: 2017-03-08 Last updated: 2018-09-19Bibliographically approved
Strinnholm, Å., Winberg, A., Hedman, L., Rönmark, E. & Lindh, V. (2017). Reintroduction failure is common among adolescents after double-blind placebo-controlled food challenges. Acta Paediatrica, 106(2), 282-287
Open this publication in new window or tab >>Reintroduction failure is common among adolescents after double-blind placebo-controlled food challenges
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2017 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 106, no 2, p. 282-287Article in journal (Refereed) Published
Abstract [en]

AIM: There has been a lack of research on adolescents' who undergo double-blind placebo-controlled food challenges. The aim of this study was to investigate food allergic adolescents' experiences and consequences of double-blind placebo-controlled food challenges.

METHODS: This qualitative, descriptive interview study included 17 adolescents aged 14-15 years with total elimination of cows' milk, hens' eggs or cod due to food allergies. The participants, who were initially identified from a large population-based cohort study, were interviewed 18 months after completing their challenges.

RESULTS: The double-blind placebo-controlled food challenge proved to be a complex experience for the adolescents, involving fear of potential reactions and the hope that the food could be reintroduced. Experiences during the challenge were described in three themes: facing fears in a secure environment, being hesitant but curious about unknown tastes and waiting for unknown food reactions. Experiences after the challenge were desribed in two themes: gaining control and freedom and continuing old habits. A negative challenge was not consistently associated with the reintroduction of the challenged food.

CONCLUSION: This study highlighted the importance of considering the adolescents' expectations and experiences of the challenge and the reintroduction process to ensure desirable changes in their dietary habits. Follow ups should be performed regardless of the outcome of challenges.

Keywords
adolescents, double-blind placebo-controlled food challenges, food allergy, qualitative study, reintroduction
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-128114 (URN)10.1111/apa.13673 (DOI)000397337100017 ()27859574 (PubMedID)
Available from: 2016-11-23 Created: 2016-11-23 Last updated: 2018-06-09Bibliographically approved
Östlund, U., Bäckström, B., Saveman, B.-I., Lindh, V. & Sundin, K. (2016). A Family Systems Nursing Approach for Families Following a Stroke: Family Health Conversations. Journal of Family Nursing, 22(2), 148-171
Open this publication in new window or tab >>A Family Systems Nursing Approach for Families Following a Stroke: Family Health Conversations
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2016 (English)In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 22, no 2, p. 148-171Article in journal (Refereed) Published
Abstract [en]

Stroke in midlife is a life altering, challenging experience for the whole family thereby necessitating a family approach to intervention. The aim of this study was to describe the experiences of 17 family members living in Sweden, including seven adult stroke patients (six males; one female) under the age of 65 who participated in a series of three nurse-led family conversations that were offered in each family's home. These Family Health Conversations (FamHC) were guided by the conceptual lens of Family System Nursing. Individual, semi-structured, evaluative interviews conducted with each participant one month after the FamHC were analyzed by qualitative content analysis. The FamHC were described by family members as a unique conversation that they had not previously experienced in health care contexts. Family members described possibilities for relational sharing and meaningful conversations as well as changes in family functioning that support the suitability of FamHC for family stroke care.

Keywords
family intervention, therapeutic conversation, stroke, family nursing, Family Systems Nursing, Family Health Conversations, Sweden
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-119473 (URN)10.1177/1074840716642790 (DOI)000376209900002 ()27090511 (PubMedID)
Available from: 2016-04-20 Created: 2016-04-20 Last updated: 2018-06-07Bibliographically approved
Lindh, V., Engvall, G., Ångström-Brännström, C., Nilsson, K., Wickart-Johansson, G. & Lindh, J. (2016). Children's voices on experiencing radiotherapy. Paper presented at Oncology Nursing Society (ONS) 41st Annual Congress, April 28-May 1, 2016, San Antonio, TX. Oncology Nursing Forum, 43(2), 134-134
Open this publication in new window or tab >>Children's voices on experiencing radiotherapy
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2016 (English)In: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 43, no 2, p. 134-134Article in journal, Meeting abstract (Other academic) Published
National Category
Cancer and Oncology Nursing
Identifiers
urn:nbn:se:umu:diva-120662 (URN)000373613900380 ()
Conference
Oncology Nursing Society (ONS) 41st Annual Congress, April 28-May 1, 2016, San Antonio, TX
Note

Meeting Abstract: 201

Available from: 2016-12-14 Created: 2016-05-18 Last updated: 2018-06-09Bibliographically approved
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