umu.sePublications
Change search
Link to record
Permanent link

Direct link
BETA
Publications (10 of 20) Show all publications
Isaksson, J., Lilliehorn, S. & Salander, P. (2019). Next of kin's motives for psychosocial consultation: Oncology social workers' perceptions of 54 next of kin cases. Psycho-Oncology, 28(1), 154-159
Open this publication in new window or tab >>Next of kin's motives for psychosocial consultation: Oncology social workers' perceptions of 54 next of kin cases
2019 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 28, no 1, p. 154-159Article in journal (Refereed) Published
Abstract [en]

Objective: Although oncology social workers (OSWs) have emerged as a core profession in the provision of psychosocial services, there is a lack of empirical studies that describe their daily clinical work with next of kin (NOK). The overall aim of this study was to explore NOK's motives for consulting an OSW. This can provide us with insights into what types of skills OSWs need to have in order to fulfil their duties.

Methods: From a nationwide survey, we used data from 54 NOK cases that Swedish OSWs met face to face.

Results: About half of the motives concerned help in dealing with personal grief connected to the patients' cancer and distressing symptoms, while the other half concerned needs for help in dealing with the position of being the NOK, relationship conflicts, and assistance with socio‐economic issues.

Conclusions: The motives show that NOK does not just ask for help to come to terms with distress related to the patient's situation. Based on the diversity of motives, we suggest that OSWs (at least in Sweden) need a broad education in counselling psychology. Furthermore, health care personnel need to be attentive to the NOK's own voice and not reduce it to the voice of the patient and the patient's needs in referrals.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
cancer, counselling, next of kin’s motives, oncology, oncology social workers
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-152788 (URN)10.1002/pon.4925 (DOI)000456283900019 ()30346070 (PubMedID)
Available from: 2018-10-24 Created: 2018-10-24 Last updated: 2019-02-27Bibliographically approved
Lilliehorn, S., Isaksson, J. & Salander, P. (2019). What does an oncology social worker deal with in patient consultations?: An empirical study. Social work in health care, 58(5), 494-508
Open this publication in new window or tab >>What does an oncology social worker deal with in patient consultations?: An empirical study
2019 (English)In: Social work in health care, ISSN 0098-1389, E-ISSN 1541-034X, Vol. 58, no 5, p. 494-508Article in journal (Refereed) Published
Abstract [en]

The oncology social worker is a core profession in the psycho- social care of cancer patients, and has been scrutinised accord- ing to its role, function, and delivery of care, primarily from an Anglo-Saxon perspective. There is, however, a lack of studies outside this context, and empirical studies based on individual data. This study is a contribution by exploring the variability in clinical practice from a Swedish perspective. It is based on documentation from one oncology social worker’s (OSW’s) patient contacts over the course of one year. The essence of the majority of contacts was counseling and the patients dis- played a wide variety of motives for seeing an OSW. The function of the OSW is thus multifaceted, and the findings suggest that the OSW, in addition to guiding patients in social legislation issues, also should be prepared to act as an anchor in an acute crisis, contain despair in different phases of the trajectory, and facilitate the ‘carrying on as before’ or finding a ‘new normal’. The paper discusses the importance of the OSW being acquainted with different counseling/psychother- apy perspectives in the illness context, but primarily the impor- tance of having the ability to establish a ‘working alliance’ with their patients.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Cancer, counseling, clinical practice, oncology social work
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-157648 (URN)10.1080/00981389.2019.1587661 (DOI)000464332400005 ()30901286 (PubMedID)
Funder
The Kamprad Family Foundation, 20150039
Available from: 2019-03-27 Created: 2019-03-27 Last updated: 2019-06-13Bibliographically approved
Isaksson, J., Lilliehorn, S. & Salander, P. (2018). Cancer patients' motives for psychosocial consultation: Oncology social workers' perceptions of 226 patient cases. Psycho-Oncology, 27(4), 1180-1184
Open this publication in new window or tab >>Cancer patients' motives for psychosocial consultation: Oncology social workers' perceptions of 226 patient cases
2018 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 27, no 4, p. 1180-1184Article in journal (Refereed) Published
Abstract [en]

Objective: Although oncology social workers (OSWs) have emerged as a core profession in the provision of psychosocial  services, there is a lack of empirical studies that describe their daily clinical work with patients. The overall aim of this study was to explore cancer patients' motives for consulting an OSW.

Methods: From a nationwide survey, we used data from 226 patient cases that OSWs met face to face. The OSWs were asked to describe how the case was referred to them, the patient's characteristics, and what they perceived as the patient's motives for contacting them as well as additional motives that came up during the consultations.

Results: Patients have different motives for consulting an OSW, and these motives change over the course of consultations; while feeling associated with being diagnosed with cancer were often the initial motive, questions associated with moving on in life and dealing with relationships and the overall life situation were added over time.

Conclusions: The results show that Swedish OSWs' function is multifaceted and that the initial motives among patients rarely predicts the content in consultations over time. Based on the diversity of motives, it seems obvious that OSWs (at least in Sweden) need a broad education in the psychology of counselling. It also seems obvious that even if patients initially were referred by health care staff to the OSW due to psychological reactions to being ill, staff should also be attentive to the fact that relational and socio-economic/juridical issues are of great concern for the patients.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018
Keywords
cancer, counseling, oncology, oncology social workers, patients' motives
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-144286 (URN)10.1002/pon.4633 (DOI)
Projects
A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future
Funder
The Kamprad Family Foundation, 20150039
Available from: 2018-01-30 Created: 2018-01-30 Last updated: 2018-06-09Bibliographically approved
Salander, P., Isaksson, J. & Lilliehorn, S. (2018). Kuratorsfunktionen i svensk cancersjukvård: en nationell genomlysning. Omsorg: Nordisk tidsskrift for Palliativ Medisin (3), 62-65
Open this publication in new window or tab >>Kuratorsfunktionen i svensk cancersjukvård: en nationell genomlysning
2018 (Swedish)In: Omsorg: Nordisk tidsskrift for Palliativ Medisin, ISSN 0800-7489, no 3, p. 62-65Article in journal (Other academic) Published
Abstract [sv]

Socialarbetaren (kuratorn) är den profession som i svensk cancersjukvård specifikt står för det psykosociala perspektivet. Föreliggande studie analyserar kuratorns verksamhet med utgångspunkt i patienters motiv till att söka upp kurator. Utfallet ger vid handen att motiven inte i första hand är socioekonomiska eller juridiska, utan i stället psykologiska, och förtrogenhet med det councelling-orienterade samtalet är därför efterfrågat och centralt. Detta bör beaktas när man planerar för legitimation av kuratorer i hälso- och sjukvård.

Place, publisher, year, edition, pages
Fagbokforlaget, 2018
Keywords
cancer, counselling, kurator, patientmotiv, socionom
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-149287 (URN)
Projects
A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future
Funder
The Kamprad Family Foundation, 20150039
Available from: 2018-06-19 Created: 2018-06-19 Last updated: 2018-12-13Bibliographically approved
Lilliehorn, S. & Salander, P. (2018). Living at a residency away from home during radiotherapy as narrated by 52 patients with breast cancer: a cage of safety and discomfort. Disability and Rehabilitation, 40(4), 450-456
Open this publication in new window or tab >>Living at a residency away from home during radiotherapy as narrated by 52 patients with breast cancer: a cage of safety and discomfort
2018 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 40, no 4, p. 450-456Article in journal (Refereed) Published
Abstract [en]

Purpose: In the Nordic countries many patients with cancer conclude their treatment with 5–6 weeks of radiotherapy while staying at a residency far away from home. The experience of this stay, from a rehabilitation perspective, has not previously been studied.

Method: Fifty-two women with breast cancer were followed with repeated thematic interviews from diagnosis up to 2 years.

Results: The majority of women saw both pros and cons with their stay, and overall the stay could be described as “A cage of safety and discomfort”. Pros included “Safety”, “Closeness and learning”, and “Feeling like being on holiday”, while cons included “An intruding self-image”, “Isolation and increased vulnerability”, and “A loss of function”. Some patients supported their own rehabilitation by socializing with their “fellow sisters”, while others isolated themselves and mainly found it burdensome to be there.

Conclusions: The residence becomes an interactional field with the potential to facilitate patients in resuming a new everyday life. The women who do not interact with others and/or who are stuck with feelings of anxiety should be offered the opportunity to take part in a group exclusively for “fellow sisters” in a similar situation.

Place, publisher, year, edition, pages
Taylor & Francis, 2018
Keywords
breast cancer, oncology, patient hotel, radiotherapy
National Category
Social Work
Research subject
Psychology
Identifiers
urn:nbn:se:umu:diva-127571 (URN)10.1080/09638288.2016.1261412 (DOI)000415941300009 ()27973918 (PubMedID)2-s2.0-85006137614 (Scopus ID)
Available from: 2016-11-16 Created: 2016-11-16 Last updated: 2018-09-28Bibliographically approved
Isaksson, J., Lilliehorn, S. & Salander, P. (2017). A nationwide study of Swedish oncology social workers: Characteristics, clinical functions and perceived barriers to optimal functioning. Social work in health care, 56(7), 600-614
Open this publication in new window or tab >>A nationwide study of Swedish oncology social workers: Characteristics, clinical functions and perceived barriers to optimal functioning
2017 (English)In: Social work in health care, ISSN 0098-1389, E-ISSN 1541-034X, Vol. 56, no 7, p. 600-614Article in journal (Refereed) Published
Abstract [en]

Oncology social workers (OSWs) play a key role in cancer services, but they have mainly been described from an Anglo-Saxon perspective. This study aims to widen the field by scrutinizing the role and function of OSWs in Sweden. By means of a nationwide questionnaire to Swedish OSWs, the professional characteristics of this group are described, as well as their descriptions and reflections on their clinical function and their experiences of barriers to optimal functioning. Our findings indicate that Swedish OSWs seem to have taken a different path than in other countries by mainly providing therapeutic treatment and counselling to the patients rather than working with discharge planning. However, due to a mismatch between clinical demands and the training of Swedish OSWs, some suggestions are provided for future social work education in Sweden.

Place, publisher, year, edition, pages
Philadelphia: Taylor & Francis, 2017
Keywords
cancer, clinical function, counseling, education, oncology social work, training
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-133284 (URN)10.1080/00981389.2017.1316340 (DOI)000406580000003 ()
Projects
A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future
Funder
The Kamprad Family Foundation, 20150039
Available from: 2017-04-03 Created: 2017-04-03 Last updated: 2018-06-09Bibliographically approved
Lilliehorn, S., Isaksson, J. & Salander, P. (2017). Social work in oncology: an empirical study of patient contacts during a 12‐month period. Paper presented at IPOS 19th World Congress of Psycho-Oncology and Psychosocial Academy, 14-18 August 2017, Berlin, Germany. Psycho-Oncology, 26, 66-67, Article ID 645.
Open this publication in new window or tab >>Social work in oncology: an empirical study of patient contacts during a 12‐month period
2017 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 26, p. 66-67, article id 645Article in journal, Meeting abstract (Refereed) Published
Place, publisher, year, edition, pages
John Wiley & Sons, 2017
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-138739 (URN)10.1002/pon.4476 (DOI)000407688900172 ()
Conference
IPOS 19th World Congress of Psycho-Oncology and Psychosocial Academy, 14-18 August 2017, Berlin, Germany
Projects
A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future
Funder
The Kamprad Family Foundation, 20150039
Note

Supplement S3: Abstracts of the 2017 World Congress of Psycho-Oncology, 14-18 August 2017, Berlin, Germany

Available from: 2017-08-29 Created: 2017-08-29 Last updated: 2018-06-09Bibliographically approved
Isaksson, J., Lilliehorn, S. & Salander, P. (2017). The role and function of Swedish oncology social workers. Paper presented at IPOS 19th World Congress of Psycho-Oncology and Psychosocial Academy, 14-18 August 2017, Berlin, Germany. Psycho-Oncology, 26, 67-67, Article ID 271.
Open this publication in new window or tab >>The role and function of Swedish oncology social workers
2017 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 26, p. 67-67, article id 271Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
John Wiley & Sons, 2017
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-138394 (URN)10.1002/pon.4476 (DOI)000407688900173 ()
Conference
IPOS 19th World Congress of Psycho-Oncology and Psychosocial Academy, 14-18 August 2017, Berlin, Germany
Projects
A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future
Funder
The Kamprad Family Foundation, 20150039
Note

Supplement S3: Abstracts of the 2017 World Congress of Psycho-Oncology, 14-18 August 2017, Berlin, Germany

Available from: 2017-08-23 Created: 2017-08-23 Last updated: 2018-06-09Bibliographically approved
Salander, P. & Lilliehorn, S. (2017). To carry on as before: A meta-synthesis of qualitative studies in lung cancer. Paper presented at The 2017 World Congress of Psycho-Oncology, 14-18 August 2017, Berlin, Germany. Psycho-Oncology, 26, 81-82, Article ID P-002.
Open this publication in new window or tab >>To carry on as before: A meta-synthesis of qualitative studies in lung cancer
2017 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 26, p. 81-82, article id P-002Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
WILEY, 2017
National Category
Social Work Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-139630 (URN)10.1002/pon.4476 (DOI)000407688900214 ()
Conference
The 2017 World Congress of Psycho-Oncology, 14-18 August 2017, Berlin, Germany
Note

Supplement S3: Abstracts of the 2017 World Congress of Psycho-Oncology, 14-18 August 2017, Berlin, Germany

Available from: 2017-10-03 Created: 2017-10-03 Last updated: 2018-06-09Bibliographically approved
Salander, P., Isaksson, J. & Lilliehorn, S. (2016). A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future. In: Psycho-Oncology: Abstracts of the 2016 World Congress of Psycho-Oncology, 17-21 October 2016, Dublin, Ireland. Paper presented at 18th International Psycho-Oncology Society Congress (pp. 94). John Wiley & Sons, 25
Open this publication in new window or tab >>A nationwide study of the function of the social worker in cancer care and rehabilitation: the present status and prospects for the future
2016 (English)In: Psycho-Oncology: Abstracts of the 2016 World Congress of Psycho-Oncology, 17-21 October 2016, Dublin, Ireland, John Wiley & Sons, 2016, Vol. 25, p. 94-Conference paper, Poster (with or without abstract) (Refereed)
Place, publisher, year, edition, pages
John Wiley & Sons, 2016
Series
Psycho-Oncology, ISSN 1099-1611 ; Issue Supplement 3
National Category
Cancer and Oncology Social Work
Identifiers
urn:nbn:se:umu:diva-128319 (URN)10.1002/pon.4272 (DOI)
Conference
18th International Psycho-Oncology Society Congress
Funder
The Kamprad Family Foundation, 20150039
Available from: 2016-12-07 Created: 2016-12-01 Last updated: 2018-06-09
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5696-996x

Search in DiVA

Show all publications