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Winberg, K., Bertilsdotter Rosqvist, H. & Rosenberg, D. (2019). Inclusive spaces in post-secondary education: exploring the experience of educational supports for people with a neuropsychiatric disability. International Journal of Inclusive Education (12), 1263-1276
Open this publication in new window or tab >>Inclusive spaces in post-secondary education: exploring the experience of educational supports for people with a neuropsychiatric disability
2019 (English)In: International Journal of Inclusive Education, ISSN 1360-3116, E-ISSN 1464-5173, no 12, p. 1263-1276Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to investigate the experiences of studying among people with a neuropsychiatric disability who received support from a Supported Education (SEd) programme, and people who did not receive this support. The research employed a narrative approach, where 14 participants with a neuropsychiatric diagnosis were asked to write a short reflective narrative about their experience of studying, with/without support from a SEd intervention. The results show that the persons without support from the model relied on their family as their primary support, and that support from formal support providers was not available prior to receiving a formal diagnosis. Those who received services from SEd were generally satisfied with the support they received, and did not emphasise the family as support givers in the same way. The study points to the importance of developing neurodiverse spaces, which can serve as transitional environments and that can help supported education models adapt to the needs of this group.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Supported Education, higher education, support, autism, ADHD, neuropsychiatric disability
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-145520 (URN)10.1080/13603116.2018.1445303 (DOI)000490406000004 ()
Available from: 2018-03-08 Created: 2018-03-08 Last updated: 2019-11-13Bibliographically approved
Heatherington, L., Bonner, B. L., Rosenberg, D., Patterson, R. D. & Linsley, J. (2019). Sustaining outcomes research in residential treatment: a 15-year study of the Gould Farm program. Psychological services, 6(4), 675-686
Open this publication in new window or tab >>Sustaining outcomes research in residential treatment: a 15-year study of the Gould Farm program
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2019 (English)In: Psychological services, ISSN 1541-1559, Vol. 6, no 4, p. 675-686Article in journal (Refereed) Published
Abstract [en]

We present findings from a study of outcomes of residential treatment for people who have mental illness, primarily schizophrenia-spectrum and bipolar disorders. The study assesses a range of individual variables before and after participation in the program, to examine clinical and personal recovery and facilitate program improvement. To our knowledge, it is the longest ongoing outcomes study (15+ years) of its kind. The program, Gould Farm, provides recovery-focused, milieu treatment on a 700-acre working farm. It integrates counseling and medication with a work program that provides opportunities for the development of daily living, social, and work skills as well as mental and physical health. Clients were interviewed in person at intake and at discharge. Also, since study year 10 when the follow-up arm began, former clients were interviewed at 6, 18, and 36 months postdischarge via phone. Interview protocols included standard measures of psychiatric symptoms and functioning, substance use, quality of life, and treatment satisfaction. Follow-up interview protocols also assessed individuals’ living, working, family, and social situations as well as their satisfaction in these areas of recovery. Statistically significant improvements on all measures were found at discharge, and were not moderated by key demographic or clinical factors. Preliminary follow-up data showed maintenance of treatment gains, and high treatment satisfaction. We discuss clinical implications of the findings as well as limitations, directions for future research, and recommendations for sustaining outcomes research in organized care settings.

Place, publisher, year, edition, pages
American Psychological Association (APA), 2019
Keywords
treatment outcomes, mental health, recovery, Gould Farm
National Category
Social Work Psychiatry
Identifiers
urn:nbn:se:umu:diva-150102 (URN)10.1037/ser0000253 (DOI)000492783800017 ()2-s2.0-85048441739 (Scopus ID)
Available from: 2018-07-06 Created: 2018-07-06 Last updated: 2019-11-20Bibliographically approved
diva2:1344111
Open this publication in new window or tab >>The Legitimacy of User Knowledge in Decision-Making Processes in Mental Health Care: An Analysis of Epistemic Injustice
2019 (English)In: Journal of Psychosocial Rehabilitation and Mental Health, ISSN 2198-9834Article in journal (Refereed) Epub ahead of print
Abstract [en]

The experience-based knowledge of users is considered to provide vital input in shared decision making (SDM). However, mental health service users frequently express having negative experiences from meetings with providers, which are of an epistemic nature (e.g., being ignored or not regarded as credible). This study aimed to explore the barriers involved in legitimizing user knowledge in decision-making processes. Interview data from service users and providers were viewed from a theoretic framework of epistemic injustice. Abductive content analysis was conducted on data collected during a project to develop and implement SDM in mental health services. In describing obstacles to legitimize user knowledge, service users highlighted relational issues: being dependent, often dismissed and choosing to edit their testimonies. Service providers typically described workflow issues, users’ insufficient decision- making competence and users’ vulnerability to stress factors. The findings suggest that greater epistemic justice might be achieved by a SDM process in which the service user is engaged as a full partner in collaboration in various activities related to their care.

Keywords
Mental health services, Shared decision making (SDM), User knowledge, Epistemic injustice
National Category
Social Work
Research subject
Psychiatry
Identifiers
urn:nbn:se:umu:diva-162422 (URN)10.1007/s40737-019-00145-9 (DOI)
Available from: 2019-08-20 Created: 2019-08-20 Last updated: 2019-08-23
Schön, U.-K., Grim, K., Wallin, L., Rosenberg, D. & Svedberg, P. (2018). Psychiatric service staff perceptions of implementing a shared decision-making tool: a process evaluation study. International Journal of Qualitative Studies on Health and Well-being, 13(1), Article ID 1421352.
Open this publication in new window or tab >>Psychiatric service staff perceptions of implementing a shared decision-making tool: a process evaluation study
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2018 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 13, no 1, article id 1421352Article in journal (Refereed) Published
Abstract [en]

Purpose: Shared decision making, SDM, in psychiatric services, supports users to experience a greater sense of involvement in treatment, self-efficacy, autonomy and reduced coercion. Decision tools adapted to the needs of users have the potential to support SDM and restructure how users and staff work together to arrive at shared decisions. The aim of this study was to describe and analyse the implementation process of an SDM intervention for users of psychiatric services in Sweden.

Method: The implementation was studied through a process evaluation utilizing both quantitative and qualitative methods. In designing the process evaluation for the intervention, three evaluation components were emphasized: contextual factors, implementation issues and mechanisms of impact.

Results: The study addresses critical implementation issues related to decision-making authority, the perceived decision-making ability of users and the readiness of the service to increase influence and participation. It also emphasizes the importance of facilitation, as well as suggesting contextual adaptations that may be relevant for the local organizations.

Conclusion: The results indicate that staff perceived the decision support tool as user-friendly and useful in supporting participation in decision-making, and suggest that such concrete supports to participation can be a factor in implementation if adequate attention is paid to organizational contexts and structures.

Place, publisher, year, edition, pages
Taylor & Francis, 2018
Keywords
shared decision making, psychiatric services, decision support tool, implementation, process evaluation
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-144604 (URN)10.1080/17482631.2017.1421352 (DOI)000424831900001 ()29405889 (PubMedID)
Available from: 2018-02-07 Created: 2018-02-07 Last updated: 2018-06-09Bibliographically approved
Rosenberg, D. & Argentzell, E. (2018). Service users experience of peer support in Swedish mental health care: a "tipping point" in the care-giving culture?. Journal of Psychosocial Rehabilitation and Mental Health, 5(1), 53-61
Open this publication in new window or tab >>Service users experience of peer support in Swedish mental health care: a "tipping point" in the care-giving culture?
2018 (English)In: Journal of Psychosocial Rehabilitation and Mental Health, ISSN 2198-9834, Vol. 5, no 1, p. 53-61Article in journal (Refereed) Published
Abstract [en]

Service Users Experience of Peer Support in SwedishMental Health Care: A ‘‘Tipping Point’’ in the Care-GivingCulture?David Rosenberg.Elisabeth ArgentzellReceived: 21 November 2017 / Accepted: 27 January 2018The Author(s) 2018AbstractPeer support workers are increasinglyconsidered an essential ingredient in recovery-ori-ented mental health services. While research continuesto point to promising results concerning the ability ofthese workers to positively impact service users’experience of hope, quality of life and even health,peer support workers have only recently been intro-duced in Sweden and the aim of this study was toinvestigate service users’ experience of receiving peersupport in Swedish mental health services. The resultswere described with three main themes correspondingto three levels of focus from the service user perspec-tive; experience-based knowledge, competence andnon-judgmental awareness (individual level), peersupport as impacting the relationship with the caringenvironment (organizational level), and awakeninghope for a life beyond the illness (community level).The results suggest the addition of peer supportworkers as contributing not just to individual out-comes, but to a more trusting relationship to Swedishpsychiatric services, which are often considered towork primarily from a medically oriented treatmentparadigm.

Keywords
Peer support, Recovery, Mental health services, Lived experience
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-147788 (URN)10.1007/s40737-018-0109-1 (DOI)
Available from: 2018-05-18 Created: 2018-05-18 Last updated: 2018-11-09Bibliographically approved
diva2:1154022
Open this publication in new window or tab >>A working life on the horizon: Supported education for young adults with mental health problems in Sweden
2017 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

A working life on the horizon - Supported education for young adults with mental health problems in Sweden

 

 

Aim

Research investigating outcomes related to evidence-based interventions such as Supported Employment have begun to suggest the need for more specific, career related, educational supports, as an essential aspect of supporting sustainable employment in a labor market that increasingly demands formal education or training. The aim of this project is to develop knowledge regarding the components of Supported Education that are feasible to develop within established IPS services and to study and describe the relevance of these services for young adults experiencing mental health problems in Sweden.

Method

It includes three studies that will generate knowledge regarding the essential components of these types of educational supports, investigate and describe potential outcomes related to educational needs, and develop specific knowledge of how these methods might best be implemented. Interviews with a wide range of actors and users will generate knowledge regarding the needs, obstacles and possibilities for integrating IPS och SEd in a Swedish context.

Results

Results related to the needs assessment in Sweden will be presented and discussed in relation to the international literature and experience. Results that suggest the potential for SEd services that build on the well-developed Swedish welfare model and educational opportunities and supports will be discussed. 

Conclusion

Methods such as Supported Employment and Supported Education, which contribute to opportunities for the individual to participate in studies and eventually meaningful and sustainable employment, can be most effectively implemented when adapted to particular welfare systems and reflect resources and pathways to participation in that context.

 

 

David Rosenberg PhD – Umeå University; David.rosenberg@umu.se

Helene Hillborg PhD  - Landstinget Västernorrland

Veronica Lövgren PhD – Umeå University

Ulrika Bejerholm Professor – Lund University

National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-141388 (URN)
Conference
European Network of Mental Health Services Research (ENMESH)
Available from: 2017-11-01 Created: 2017-11-01 Last updated: 2018-06-09
Grim, K., Rosenberg, D., Svedberg, P. & Schön, U.-K. (2017). Development- and usability testing of a web-based decision support for users and health professionals in psychiatric services. Psychiatric rehabilitation journal, 40(3), 293-302
Open this publication in new window or tab >>Development- and usability testing of a web-based decision support for users and health professionals in psychiatric services
2017 (English)In: Psychiatric rehabilitation journal, ISSN 1095-158X, E-ISSN 1559-3126, Vol. 40, no 3, p. 293-302Article in journal (Refereed) Published
Abstract [en]

Objective: Shared decision making (SMD) related to treatment and rehabilitation is considered a central component in recovery-oriented practice. Although decision aids are regarded as an essential component for successfully implementing SDM, these aids are often lacking within psychiatric services. The aim of this study was to use a participatory design to facilitate the development of a user-generated, web-based decision aid for individuals receiving psychiatric services. The results of this effort as well as the lessons learned during the development and usability processes are reported. Method: The participatory design included 4 iterative cycles of development. Various qualitative methods for data collection were used with potential end users participating as informants in focus group and individual interviews and as usability and pilot testers. Results: Interviewing and testing identified usability problems that then led to refinements and making the subsequent prototypes increasingly user-friendly and relevant. In each phase of the process, feedback from potential end-users provided guidance in developing the formation of the web-based decision aid that strengthens the position of users by integrating access to information regarding alternative supports, interactivity between staff and users, and user preferences as a continual focus in the tool. Conclusions and Implications for Practice: This web-based decision aid has the potential to strengthen service users’ experience of self-efficacy and control as well as provide staff access to user knowledge and preferences. Studies employing participatory models focusing on usability have potential to significantly contribute to the development and implementation of tools that reflect user perspectives.

Keywords
decision tool, shared decision making, user centered design
National Category
Other Medical Sciences not elsewhere specified Social Work
Identifiers
urn:nbn:se:umu:diva-140146 (URN)10.1037/prj0000278 (DOI)28737415 (PubMedID)
Available from: 2017-10-02 Created: 2017-10-02 Last updated: 2018-06-09Bibliographically approved
Rosenberg, D. (2017). Obstacles and possibilities for implementing SDM in Swedish mental health services: Supporting interactivity and participation. In: : . Paper presented at Refocus on Recovery 2017.
Open this publication in new window or tab >>Obstacles and possibilities for implementing SDM in Swedish mental health services: Supporting interactivity and participation
2017 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Obstacles and possibilities for implementing SDM in Swedish mental health services; Supporting interactivity and participation.

Main author: David Rosenberg, Associate Professor, Department of Social Work, Umeå University, Sweden

Co authors: Katarina Grim, Ulla-Karin Schön & Petra Svedberg

 

Introduction Despite Swedish health care policy, which emphasizes patient participation in the planning of health care services, few programs have concrete methods for achieving this goal. Previous studies have shown that staff attitudes and systems which maintain power differentials, create obstacles for achieving participation despite methods such as SDM.

The purpose of the study was to explore implementing SDM with an interactive digital decision tool, designed for users in community mental health services in Sweden. The tool was specifically developed, in collaborative research with users, to overcome disempowering experiences as they attempt to participate in treatment decisions.

Method

A process evaluation design (Moore et al. 2015) was utilized in order to investigate obstacles and possibilities for a structured intervention to facilitate participation in decision making. The design utilized in the study included collecting qualitative and quantitative data focused on three identified evaluation components; Context, Implementation and Mechanism of impact.

Results Staff considered that SDM was most appropriate for formal treatment planning and that the use of the digital decision tool, which enabled interactive communication between staff and users, did support the user to be prepared for decisions, as well as helping staff to stay focused on user wishes.

SDM was most often used voluntarily by each staff member, based on their experience and attitude, rather than a common practice for the service. Another barrier concerned capacity, with staff sometimes feeling they did not have formal power regarding treatment planning decisions, and expressing doubt as to the patient's willingness and ability to participate in decisions.

Discussion

The results suggest that contextual barriers to implementing shared decision making can be addressed by utilizing interactive decision tools which concretely structure the interaction between users and staff and are connected to formally required treatment planning processes that are essential for user participation.

Key words: Implementation, participation, Shared Decision making Preferred conference theme: 1. Recovery for different groups

Oral presentation

National Category
Social Sciences Social Work
Identifiers
urn:nbn:se:umu:diva-141420 (URN)
Conference
Refocus on Recovery 2017
Available from: 2017-11-02 Created: 2017-11-02 Last updated: 2018-06-09
Fjellfeldt, M., Markström, U. & Rosenberg, D. (2017). Psykisk hälsa - ett mångfacetterat uppdrag: analys av behovsbilder och handlingsstrategier i 21 länsplaner sammanställda inom ramen för statens satsning inom området psykisk hälsa. Umeå: Umeå universitet
Open this publication in new window or tab >>Psykisk hälsa - ett mångfacetterat uppdrag: analys av behovsbilder och handlingsstrategier i 21 länsplaner sammanställda inom ramen för statens satsning inom området psykisk hälsa
2017 (Swedish)Report (Other academic)
Abstract [sv]

För att få del av de statliga stimulansmedlen inom ramen för överenskommelsen mellan Regeringen och Sveriges Kommuner och Landsting (SKL) 2016 var kommuner och landsting skyldiga att länsvis sammanställa en handlingsplan med avseende på området psykisk hälsa. Forskare vid Umeå universitet fick i uppdrag att analysera dessa planer. Både kvantitativa och kvalitativa sammanställningar och innehållsanalyser genomfördes. Under en forskarpanel bidrog experter inom olika områden med sina kunskaper till att fördjupa och nyansera analyser av preliminära resultat. Preliminära resultat presenterades under en seminariedag i Stockholm där representanter för länen samt företrädare för SKL, Socialstyrelsen och Folkhälsomyndigheten samlats. I samband med denna presentation inkom kompletterande uppgifter som innebar att vissa revideringen av rapporten genomfördes. Inför länens arbete med handlingsplanerna föreslog regeringen i överenskommelsen med SKL att kommuner och landsting skulle beakta fem fokusområden: 1, förebyggande och främjande insatser 2, tillgängliga tidiga insatser 3, enskildas delaktighet och rättigheter 4, utsatta grupper och 5, styrning, ledning och organisation. Dessa fem områden är aktuella för barn och unga, vuxna och äldre. I samtliga handlingsplaner förhåller sig länen till dessa fokusområden. I 18 av 21 län har man strukturerat sina handlingsplaner i relation till fokusområdena. Tre län förhåller sig friare till de angivna fokusområdena. Sveriges län skiljer sig åt på många sätt, vilket återspeglas i handlingsplanerna som varierar till form och innehåll. Vissa län har gjort behovsanalyser utifrån ett folkhälsoperspektiv på psykisk hälsa, medan andra behovsanalyser undersöker faktorer som är mer relaterade till ett perspektiv på manifest ohälsa och sjukdom. I vissa län finns detaljerade målsättningar som specificeras i långsiktiga mål och kortsiktiga delmål. I andra län har målformulerandet just påbörjats. I en del handlingsplaner finns detaljerade åtgärdsförslag medan det i andra län presenteras mer övergripande och generella åtgärder. Variationsrikedomen i handlingsplanerna är mycket stor. När det gäller beskrivningen av arbetsprocessen i samband med att handlingsplanerna utarbetats varierar graden av insyn i hur arbetet gått till. I vissa handlingsplaner beskrivs processen i detalj, och personer som deltagit är namngivna. I andra handlingsplaner går det inte att utläsa vare sig hur arbetsprocessen har gått till eller vilka som varit delaktiga. I ett län har ett ägarskap skrivits in i handlingsplanen som innebär att instanser utsetts som ansvariga för att handlingsplanen i sin helhet omsätts i praktik. I några län utses ansvariga inom respektive insatsområde, medan vissa län inte berör ansvarsfrågan alls. I såväl den nationella policyn som i handlingsplanerna finns en komplexitet när det gäller den tredelade målgruppsbeskrivningen om ”allas” psykiska hälsa, utsatta gruppers psykiska hälsa och personer med omfattande psykiatrisk problematik.

Hur kommuner och landsting hanterat frågan om brukarmedverkan i arbetet med planerna varierar; alltifrån att inte ha någon brukarmedverkan dokumenterad alls, till att en brukarorganisation är en av tre jämbördiga parter. I ett län anläggs ett folkhälsoperspektiv på brukarmedverkan genom att representanter från ett brett spektrum av brukar- anhörig- och patientföreningar finns representerade, liksom representanter för skola. Att använda sig av länsnivån som avsändare för planerna innebär utmaningar. Vilken grad av struktur som finns varierar mellan länen – se Länsinventering Psykisk Hälsa (SKL 2015). Det finns ingen självklar politisk struktur vilket innebär att det är svårt att förankra handlingsplanerna i en politisk kontext. I 9 län beskrivs politisk förankring av varierande grad. I återstående 12 län framgår det inte om handlingsplanerna är politiskt förankrade eller inte. Graden av politisk förankring påverkar möjligheten att omsätta handlingsplanen i praktiken. En annan utmaning rör tillgången till tjänstemän på länsnivå som kan arbeta med länsgemensamma uppdrag. Även detta skiljer sig åt mellan länen och påverkar arbetet med länsgemensamma planer och målsättningar. När det gäller målsättningar presenteras det i drygt hälften (12 av 21) av handlingsplanerna långsiktiga mål som är nedbrutna i kortsiktiga delmål. I fyra län är långsiktiga och kortsiktiga målsättningar fristående ifrån varandra. Målsättningar strukturerats antingen utifrån de fem fokusområdena eller tematiskt utifrån prioriterade områden i länen. I fem av länen har man hanterat målsättningar på andra sätt. De slutsatser som dragits utifrån analysen av de 21 länens handlingsplaner är följande:

• Strukturer för att arbeta på länsnivå ser mycket olika ut i länen. Därför skiljer sig handlingsplanerna åt, både till form och innehåll. I vissa län tycks arbetet med länsplanen innebära ett mervärde för de inblandade aktörerna, i andra inte. Om principen från regeringen och SKL att använda sig av länsnivån i kommunikationen ska bestå, bör strategier för stöd till länen övervägas.

• Generellt sett rör länsplanerna utvecklingsarbete och endast i liten utsträckning organisationernas kärnverksamhet.

• Länsplanerna handlar främst om kommunerna och landstingens gemensamma arbete och om samverkan mellan organisationerna. Detta innebär att de enskilda huvudmännens verksamheter endast uppmärksammas i mycket liten utsträckning. Följaktligen saknas en stor del av den reguljära kärnverksamhet som bedrivs av kommuner och landsting var för sig, som till exempel den specialiserade psykiatrins behandlingsarbete eller primärvårdens insatser. Inriktningen är särskilt tydligt under fokusområdet ”ledarskap och organisering” där handlingsplanerna företrädesvis rör samordning och samverkan.

• Det finns en hög ambition i länen att främja psykisk hälsa hos barn och unga, och att samarbeta mellan huvudmännen kring barn och unga som har utvecklat någon form av psykisk ohälsa.

• I länen finns en hög ambition att samarbeta huvudmän emellan och tillsammans med det civila samhället för att bli bättre på hälsofrämjande insatser riktade till asylsökande och nyanlända, samt att bli bättre på insatser som riktas till asylsökande och nyanlända som utvecklat någon form av psykisk ohälsa.

• Två insatsområden som återkommer frekvent i länen är arbetet med suicidprevention och arbetet med att erbjuda dem som får stöd från de båda huvudmännen en samordnad individuell plan (SIP) samt att utveckla formerna för SIP.

• I handlingsplanerna finns en ansats att främja den psykiska folkhälsan i länen. Detta sker parallellt med att insatser riktas till riskgrupper och grupper där psykisk ohälsa redan utvecklats. Detta innebär att kommuner och landsting tagit emot de nationella styrsignalerna, och fortsatt vidga sitt fokus från PRIO-satsningen till att omfatta folkhälsoperspektivet inom området psykisk hälsa. Dock sker detta endast i mindre utsträckning för grupperna vuxna och äldre personer.

Avslutningsvis ges exempel på några aspekter utifrån vilka ”en lyckad plan” kan förstås. En lyckad plan kännetecknas av ett tydligt ägarskap, systematisk analys, realistiska mål och ett val av tydliga aktiviteter som kan implementeras och följas upp. Vi ger även tre rekommendationer till länen i det fortsatta arbetet med att formulera länsgemensamma handlingsplaner: 1, att skriva planerna för sin egen skull 2, att öka genomförbarheten i planerna genom aktiva prioriteringar mellan de breda och olikartade målsättningar som staten lanserat 3, att ta frågan om ansvar för planerna på allvar genom att klargöra vem eller vilka som ansvarar för handlingsplanen och dess implementering.

Place, publisher, year, edition, pages
Umeå: Umeå universitet, 2017. p. 55
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-135053 (URN)
Available from: 2017-05-17 Created: 2017-05-17 Last updated: 2018-06-09Bibliographically approved
Rosenberg, D., Schön, U.-K., Nyholm, M., Grimm, K. & Svedberg, P. (2017). Shared decision making in Swedish community mental health services: an evaluation of three self-reporting instruments. Journal of Mental Health, 26(2), 142-149
Open this publication in new window or tab >>Shared decision making in Swedish community mental health services: an evaluation of three self-reporting instruments
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2017 (English)In: Journal of Mental Health, ISSN 0963-8237, E-ISSN 1360-0567, Vol. 26, no 2, p. 142-149Article in journal (Refereed) Published
Abstract [en]

Background: Despite the potential impact of shared decision making on users satisfaction with care and quality in health care decisions, there is a lack of knowledge and skills regarding how to work with shared decision making among health care providers. Aim: The aim of this study was to evaluate the psychometric properties of three instruments that measure varied dimensions of shared decision making, based on self-reports by clients, in a Swedish community mental health context. Method: The study sample consisted of 121 clients with experience of community mental health care, and involved in a wide range of decisions regarding both social support and treatment. The questionnaires were examined for face and content validity, internal consistency, test-retest reliability and construct validity. Results: The instruments displayed good face and content validity, satisfactory internal consistency and a moderate to good level of stability in test-retest reliability with fair to moderate construct correlations, in a sample of clients with serious mental illness and experience of community mental health services in Sweden. Conclusions: The questionnaires are considered to be relevant to the decision making process, user-friendly and appropriate in a Swedish community mental health care context. They functioned well in settings where non-medical decisions, regarding social and support services, are the primary focus. The use of instruments that measure various dimensions of the self-reported experience of clients, can be a key factor in developing knowledge of how best to implement shared decision making in mental health services.

Place, publisher, year, edition, pages
Taylor & Francis, 2017
Keywords
Recovery, mental illness, questionnaire, shared decision making, reliability, validity
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-120217 (URN)10.1080/09638237.2016.1207223 (DOI)000399610500008 ()27452763 (PubMedID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2016-05-11 Created: 2016-05-11 Last updated: 2018-06-07Bibliographically approved
Projects
A working life on the horizon - Supported education for young adults with mental health problems [2016-00946_Forte]; Umeå UniversityImplementation of evidence-based practice in rural Sweden - Exploring innovative strategies for realization of national guidelines for treatment and support for people with schizophrenia [2018-01344_Forte]; Umeå University
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-0790-9386

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