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Lampinen, J., Nilsson, I., Conradsson, M., Littbrand, H., Sondell, A., Gustafson, Y., . . . Lindelöf, N. (2025). Informal caregivers’ perspectives on participation in a dementia rehabilitation programme. Scandinavian Journal of Occupational Therapy, 32(1), Article ID 2463374.
Open this publication in new window or tab >>Informal caregivers’ perspectives on participation in a dementia rehabilitation programme
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2025 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 32, no 1, article id 2463374Article in journal (Refereed) Published
Abstract [en]

Background: There is limited experience in combining interdisciplinary rehabilitation for persons with dementia and caregiver support.

Aim: To explore how informal caregivers perceive participation in a person-centred, multidimensional, interdisciplinary rehabilitation programme targeting community-dwelling older adults with dementia and their informal caregivers, and how the programme has influenced their everyday life.

Material and Methods: Fourteen informal caregivers, aged 45–84 years, participated in a qualitative interview following a randomised controlled pilot study. Transcribed interviews were analysed using qualitative content analysis.

Results: The analysis resulted in seven categories and three themes: feelingchallenged and boostedto face an uncertain future, perceiving supportive activities as sources ofbothjoy and frustration in everyday life and finding relief in recognising their relative’s former self.

Conclusions and Significance: Combining interdisciplinary rehabilitation for adults with dementia with education and support for caregivers was perceived as viable and valuable for the informal caregivers. They felt strengthened by the rehabilitation and better prepared for their uncertain future. However, participation also challenged everyday routines, but the benefits appeared to outweigh the strain.

Place, publisher, year, edition, pages
Taylor & Francis, 2025
Keywords
Community-dwelling, everyday life, experiences, interdisciplinary, person-centred, qualitative research
National Category
Occupational Therapy Nursing
Identifiers
urn:nbn:se:umu:diva-235863 (URN)10.1080/11038128.2025.2463374 (DOI)001420909000001 ()2-s2.0-85217833657 (Scopus ID)
Funder
The Dementia Association - The National Association for the Rights of the DementedRegion Västerbotten
Available from: 2025-02-24 Created: 2025-02-24 Last updated: 2025-02-26Bibliographically approved
Sondell, A., Widar, L., Stigmar, K., Norström, F., Fjellman-Wiklund, A. & Eskilsson, T. (2025). Managers’ experiences of the Workplace Dialogue: a digital support for detecting and acting on work-related ill-health. International Journal of Workplace Health Management, 18(3), 263-279
Open this publication in new window or tab >>Managers’ experiences of the Workplace Dialogue: a digital support for detecting and acting on work-related ill-health
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2025 (English)In: International Journal of Workplace Health Management, ISSN 1753-8351, E-ISSN 1753-836X, Vol. 18, no 3, p. 263-279Article in journal (Refereed) Published
Abstract [en]

Purpose: The Workplace Dialogue is a digitalized method directed at managers. The purpose of this study was to explore managers’ experiences of using the digital Workplace Dialogue in cases of employee ill-health.

Design/methodology/approach: The Workplace Dialogue provides an easy and accessible method for managers, including text, short films, client examples and concrete guides that provides support in how managers can act in the event of ill-health, for example, by creating dialogue and adjustments at work. A total of five public and private organizations participated in a cohort study, implementing and using the Workplace Dialogue for one year. We interviewed 22 managers to explore their experiences of using the Workplace Dialogue. The interviews were analyzed using Qualitative Content Analysis.

Findings: The experiences of using the Workplace Dialogue are presented in one overall theme: Supports and strengthens managers’ leadership and ability to handle and act on work-related health, and four sub-themes: Requires organizational legitimacy, Facilitates management of work-related health, Strengthens manager–employee collaboration and Contributes to leadership development. The Workplace Dialogue was described as a method that contributed to better work-related health by emphasizing the early identification of problems. Manager–employee collaboration was improved, and responsibilities were made clearer. Using the method enabled personal development among managers. Some prerequisites were pointed out, such as a need for time and support from the organization.

Originality/value: The Workplace Dialogue can support managers in addressing and acting on cases of employee ill-health.

Place, publisher, year, edition, pages
Emerald Group Publishing Limited, 2025
Keywords
s Leadership, Qualitative research, Occupational health, Workplace intervention, Work rehabilitation
National Category
Work Sciences
Research subject
Occupational and Environmental Medicine
Identifiers
urn:nbn:se:umu:diva-237005 (URN)10.1108/ijwhm-03-2024-0049 (DOI)001445812900001 ()2-s2.0-105000273690 (Scopus ID)
Funder
AFA Insurance
Available from: 2025-03-28 Created: 2025-03-28 Last updated: 2025-07-11Bibliographically approved
Widar, L., Pettersson-Strömbäck, A., Sondell, A., Fjellman-Wiklund, A., Stigmar, K. & Eskilsson, T. (2024). Implementing the workplace dialogue, a health promoting workplace method: HR functions’ experiences and influence in the process. In: Fiona Frost; Kevin Teoh; France St-Hilaire; Alice Denman; Caleb Leduc; Miguel Munoz (Ed.), 16th conference of the European Academy of Occupational Health Psychology. 'Contributions of OHP to Social Justice': book of proceedings. Paper presented at 16th Conference of the European Academy of Occupational Health Psychology 2024, Granada, Spain, June 5-7, 2024. Nottingham: European Academy of Occupational Health Psychology, Article ID O124.
Open this publication in new window or tab >>Implementing the workplace dialogue, a health promoting workplace method: HR functions’ experiences and influence in the process
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2024 (English)In: 16th conference of the European Academy of Occupational Health Psychology. 'Contributions of OHP to Social Justice': book of proceedings / [ed] Fiona Frost; Kevin Teoh; France St-Hilaire; Alice Denman; Caleb Leduc; Miguel Munoz, Nottingham: European Academy of Occupational Health Psychology , 2024, article id O124Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Introduction: The burden of work-related ill health is increasing in working-life. The employer has the main responsibility for securing a healthy work environment, preventing ill health, andfacilitating employees’ return to work after sickness. In organizations, the responsibility for thesystematic work environmental practice is often shared or divided between a first-line managerand a Human Resource (HR) function. The aim of this study was to describe how the workenvironmental responsibility is shared or divided in large and small organizations, and how thiscould impact the organizations’ implementation and use of a health promoting workplaceintervention.

Method: The Workplace Dialogue is a digital method that guides and supports anorganization’s work environmental practice, to discover, act on and adapt work to work-relatedill health. It includes concrete support in the form of text, films, and discussion materials. Thisstudy is based on a one-year intervention which started in 2022 with the Workplace dialoguebeing implemented in five large (two public and three private) and seven small (three publicand four private) organizations. Data was collected six and twelve months into the interventionand was based on focus-group discussions with eight and three HR functions from large andsmall organizations respectively. Interviews included questions concerning how HR functionsexperienced the implementation process, and how they perceived their mandate to influencethis process. Interviews were transcribed and then analysed using qualitative content analysis.

Results: The preliminary findings indicate that, after the implementation, the practice of theWorkplace Dialogue was more established in organizations where the board of managementwere leading the project. In large organizations where HR functions were not a part of thestrategic board, the implementation was more complicated and dependent on the commitmentof certain individuals. In small companies, a structure for the organization’s systematic workenvironmental practice could be missing, which made the implementation more difficult. AlbeitHR functions overall had positive attitudes towards the Workplace dialogue and were importantresources for managers’ use of it, HR functions’ opinions and actions generally had less impacton securing the method practice in the organizations.

Conclusion: To facilitate the comprehensive implementation of a new health promotingworkplace method, such as the Workplace dialogue, it is crucial for organizations to involve HRfunctions in the strategic management board. Further, to secure the practice of such method,organizations’ management board needs to be involved in and support the implementation anduse of it. However, small companies may have less organizational resources to realise thepractice of a new health promoting workplace method.

Place, publisher, year, edition, pages
Nottingham: European Academy of Occupational Health Psychology, 2024
National Category
Work Sciences
Research subject
Occupational and Environmental Medicine
Identifiers
urn:nbn:se:umu:diva-236426 (URN)978-0-9928786-7-2 (ISBN)
Conference
16th Conference of the European Academy of Occupational Health Psychology 2024, Granada, Spain, June 5-7, 2024
Available from: 2025-03-12 Created: 2025-03-12 Last updated: 2025-03-13Bibliographically approved
Nyberg, A., Sondell, A., Lundell, S., Marklund, S., Tistad, M. & Wadell, K. (2023). Experiences of using an electronic health tool among health care professionals involved in chronic obstructive pulmonary disease management: qualitative analysis. JMIR Human Factors, 10, Article ID e43269.
Open this publication in new window or tab >>Experiences of using an electronic health tool among health care professionals involved in chronic obstructive pulmonary disease management: qualitative analysis
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2023 (English)In: JMIR Human Factors, E-ISSN 2292-9495, Vol. 10, article id e43269Article in journal (Refereed) Published
Abstract [en]

Background: Chronic obstructive pulmonary disease (COPD) is one of the most common and deadliest chronic diseases of the 21st century. eHealth tools are seen as a promising way of supporting health care professionals in providing evidence-based COPD care, for example, by reinforcing information and interventions provided to the patients and providing easier access and support to the health care professional themselves. Still, knowledge is scarce on the experience of using eHealth tools from the perspective of the health care professional involved in COPD management.

Objective: The study explored the experiences of using an eHealth tool among health care professionals that worked with patients with COPD in their daily clinical practice.

Methods: This exploratory qualitative study is part of a process evaluation in a parallel group, controlled, pragmatic pilot trial. Semistructured interviews were performed with 10 health care professionals 3 and 12 months after getting access to an eHealth tool, the COPD Web. The COPD Web, developed using cocreation, is an interactive web-based platform that aims to help health care professionals provide health-promoting strategies. Data from the interviews were analyzed using qualitative content analysis with an inductive approach.

Results: The main results reflected health care professionals’ experiences in 3 categories: receiving competence support and adjusting practice, improving quality of care, and efforts required for implementation. These categories highlighted that using an eHealth tool such as the COPD Web was experienced to provide knowledge support for health care professionals that led to adaptation and facilitation of working procedures and person-centered care. Taken together, these changes were perceived to improve the quality of care through enhanced patient contact and encouragement of interprofessional collaboration. In addition, health care professionals expressed that patients using the COPD Web were better equipped to tackle their disease and adhered better to provided treatment, increasing their self-management ability. However, structural and external barriers bar the successful implementation of an eHealth tool in daily praxis.

Conclusions: This study is among the first to explore experiences of using an eHealth tool among health care professionals involved in COPD management. Our novel findings highlight that using an eHealth tool such as the COPD Web may improve the quality of care for patients with COPD (eg, by providing knowledge support for health care professionals and adapting and facilitating working procedures). Our results also indicate that an eHealth tool fosters collaborative interactions between patients and health care professionals, which explains why eHealth is a valuable means of encouraging well-informed and autonomous patients. However, structural and external barriers requiring time, support, and education must be addressed to ensure that an eHealth tool can be successfully implemented in daily praxis.

Place, publisher, year, edition, pages
JMIR Publications Inc., 2023
Keywords
care, chronic, clinical, COPD, eHealth, electronic, health care professionals, implementation, internet, management, primary care, pulmonary, support, tools, web based
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Physiotherapy
Identifiers
urn:nbn:se:umu:diva-206748 (URN)10.2196/43269 (DOI)001017203700027 ()36995743 (PubMedID)2-s2.0-85151911915 (Scopus ID)
Available from: 2023-05-03 Created: 2023-05-03 Last updated: 2025-04-24Bibliographically approved
Sondell, A., Lampinen, J., Conradsson, M., Littbrand, H., Englund, U., Nilsson, I. & Lindelöf, N. (2021). Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program. BMC Geriatrics, 21(1), Article ID 341.
Open this publication in new window or tab >>Experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program
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2021 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 21, no 1, article id 341Article in journal (Refereed) Published
Abstract [en]

Background: There is great need for development of feasible rehabilitation for older people with dementia. Increased understanding of this population’s experiences of rehabilitation participation is therefore important. The aim of this study was to explore the experiences of community-dwelling older people with dementia participating in a person-centred multidimensional interdisciplinary rehabilitation program.

Methods: Sixteen older people with dementia were interviewed about their experiences of participation in a person-centred multidimensional interdisciplinary rehabilitation program. The program comprised assessments by a comprehensive team of rehabilitation professionals followed by a rehabilitation period of 16 weeks, including interventions based on individualized rehabilitation goals conducted with the support of the rehabilitation team. The rehabilitation was performed in the participants’ homes, in the community and at an outpatient clinic, including exercise with social interaction in small groups offered twice a week to all participants. The interviews were conducted at the end of the rehabilitation period and analysed with qualitative content analysis.

Results: The analysis resulted in one overarching theme: Empowered through participation and togetherness and four sub-themes: Being strengthened through challenges; Gaining insights, motives, and raising concerns about the future; Being seen makes participation worthwhile; and Feelings of togetherness in prosperity and adversity. The participants increased their self-esteem by daring and coping in the rehabilitation. The insights about themselves and their condition motivated them to continue with their prioritized activities, but also raised concerns about how the future would play out. Collaboration in the group and being seen and acknowledged by staff strengthened their own motivation and self-efficacy.

Conclusion: According to community-dwelling older people with dementia, a person-centred multidimensional interdisciplinary rehabilitation program was experienced as viable and beneficial. The participants seemed empowered through the rehabilitation and expressed mostly positive experiences and perceived improvements. Providers of interdisciplinary rehabilitation programs for this group should consider aspects raised by the participants e.g. the positive experience of being challenged in both exercise and daily activities; the importance of being seen and feeling secure; the benefits and challenges of collaboration with others in the same situation; and the generation of new perspectives of current and future situation.

Place, publisher, year, edition, pages
BioMed Central, 2021
Keywords
Aged, Dementia, Experiences, Interdisciplinary, Qualitative research, Rehabilitation
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-184444 (URN)10.1186/s12877-021-02282-y (DOI)000660608300004 ()2-s2.0-85107216049 (Scopus ID)
Available from: 2021-06-14 Created: 2021-06-14 Last updated: 2025-02-26Bibliographically approved
Sondell, A. (2019). Exercise and team rehabilitation in older people with dementia: applicability, motivation and experiences. (Doctoral dissertation). Umeå: Medicinska fakulteten, Umeå universitet
Open this publication in new window or tab >>Exercise and team rehabilitation in older people with dementia: applicability, motivation and experiences
2019 (English)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[sv]
Träning och teamrehabilitering för äldre personer med demens : genomförande, motivation och erfarenheter
Abstract [en]

The world’s population is aging. With the growing population of older people, dementia disorders are becoming increasingly common. Dementia disorders are progressive and include impairments in cognitive and physical function, which lead to increased risks of inactivity, falls, fractures, and comorbidity. Dementia is also the leading cause of dependency in activities of daily living. Therefore, rehabilitation including exercise is needed for this population. To obtain optimal effects on the functional ability of older people, exercise should be task specific, functional, performed at high intensity at sufficient frequency and duration, and include both balance and strength training. Motivation to participate is important for exercise program participation, the fulfillment of exercise recommendations and facilitation of motor learning in order to achieve exercise response. However, exercise recommendations for older people are based mainly on findings from studies conducted with people without dementia. Exercise may be challenging for some people with dementia due to complicating symptoms, such as cognitive deficits, depression, apathy or lack of motivation, and behavioral and psychological symptoms of dementia (BPSD). Studies exploring the applicability of exercise programs have been called for to optimize exercise programs; knowledge about motivation is lacking, and how this together influences exercise response in this group. Additionally, dementia disorders significantly affect all aspects of life for the affected persons and their informal caregivers, friends, and family members in their immediate networks. Furthermore, the care and rehabilitation needs of community-dwelling people with dementia must be considered due to the decreasing proportion of nursing home residents in Sweden today. Scientific knowledge and clinical experiences regarding the use of interdisciplinary team rehabilitation for people with dementia are limited, despite the urgent need for rehabilitation and its proven effects after events such as hip fracture. The effects of person-centered multidimensional interdisciplinary rehabilitation programs for people with dementia, including education and counseling for informal primary caregivers, have not been evaluated and need to be explored.

The overall aim of the thesis was to evaluate exercise and team based rehabilitation among older people with dementia. Specifically, the objectives were to evaluate motivation to participate in and applicability of a high-intensity functional exercise program, and to explore participants’ experiences with a multidimensional interdisciplinary team rehabilitation program including high-intensity functional exercise, among older people with dementia.

In the Umeå Dementia and Exercise (UMDEX) study, a cluster-randomized controlled trial including 186 people with dementia in nursing homes, the effects of the High-Intensity Functional Exercise (HIFE) Program and a seated social activity, both lasting for 45 minutes and held five times fortnightly for 4 months, were compared. Participants’ motivation to go to activity sessions and motivation during sessions were assessed using a five-point Likert scale. The applicability of the exercise program (with regard to attendance, achieved intensity, and adverse events) was assessed with a focus on dementia type and reasons for non-attendance and for not achieving high intensity, based on exercise diary data. Balance exercise response was investigated using the Berg Balance Scale, assessed at baseline and 4 month follow-up. In the Multidimensional InterDisciplinary Rehabilitation in Dementia (MIDRED) study, a randomized controlled study, a person-centered multidimensional interdisciplinary rehabilitation program for community-dwelling older people with dementia, including education and counseling for informal primary caregivers, was evaluated. With the aim of exploring experiences with program participation, 16 participants with dementia were interviewed and data were analyzed using qualitative content analysis.

The UMDEX study showed that motivation during activities was quite high, with no overall difference between groups; over time, however, motivation increased in the exercise group and decreased in the social activity group. Motivation during activity sessions was greater than motivation to go to sessions in both groups. The exercise program was applicable, with high attendance rates, moderate to high intensity achieved, and the occurrence of only minor and temporary adverse events. Dementia subtype, low motivation, pain, and presence of BPSD seemed to affect applicability. The exercise response varied widely, with many participants showing improved balance after the intervention. The applicability of the exercise program and motivation did not seem to be associated with paramount balance response. Four categories emerged from the MIDRED study analysis: being empowered through challenges; gaining insight, motives and rising concerns about the future; to participate is worthwhile, if you are seen; and togetherness in prosperity and adversity.

In conclusion, for older people with dementia living in nursing homes, who have a high prevalence of medical conditions and functional limitations, motivation to participate in a high-intensity exercise program was high and did not differ from motivation to participate in a less physically demanding social activity. The exercise program seems to be applicable with regard to attendance, achieved intensity, and adverse events. The prediction of balance exercise response based on program applicability and participant motivation does not seem to be possible. The promotion of strategies to encourage people with dementia to join exercise groups is of great importance, and more knowledge about strategies is needed to overcome low pre-exercise motivation levels. An interdisciplinary rehabilitation program for community-dwelling older people seems feasible, according to reported experiences. The participants had positive experiences and perceived improvement and empowerment due to the rehabilitation, which can influence well-being in daily life in this population. The results of this research support the inclusion of this population in team rehabilitation and high-intensity functional exercise programs.

Place, publisher, year, edition, pages
Umeå: Medicinska fakulteten, Umeå universitet, 2019. p. 76
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 2065
Keywords
Dementia, Exercise, Rehabilitation, Residential Facilities, Postural Balance, Frail Elderly, Motivation
National Category
Physiotherapy
Research subject
physiotherapy
Identifiers
urn:nbn:se:umu:diva-166115 (URN)978-91-7855-156-9 (ISBN)
Public defence
2020-01-10, Aulan Vårdvetarhuset, Umeå, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2019-12-18 Created: 2019-12-11 Last updated: 2025-02-11Bibliographically approved
Sondell, A., Littbrand, H., Holmberg, H., Lindelöf, N. & Rosendahl, E. (2019). Is the Effect of a High-Intensity Functional Exercise Program on Functional Balance Influenced by Applicability and Motivation Among Older People with Dementia in Nursing Homes?. The Journal of Nutrition, Health & Aging, 23(10), 1011-1020
Open this publication in new window or tab >>Is the Effect of a High-Intensity Functional Exercise Program on Functional Balance Influenced by Applicability and Motivation Among Older People with Dementia in Nursing Homes?
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2019 (English)In: The Journal of Nutrition, Health & Aging, ISSN 1279-7707, E-ISSN 1760-4788, Vol. 23, no 10, p. 1011-1020Article in journal (Refereed) Published
Abstract [en]

Background and Objectives: Exercise can be an important way of maintaining balance function in people with dementia, but further investigation is needed to determine the optimal way of exercising. The objective was to evaluate whether exercise applicability (i.e., attendance, exercise intensity, and adverse events) and motivation were associated with the effect on functional balance of a high-intensity functional exercise program for older people with dementia in nursing homes.

Design, Setting and Participants: Exercise intervention participants (n = 81; 60 women, 21 men) from a randomized controlled trial (UMDEX) were included. Their mean age was 84 and mean Mini-Mental State Examination score was 15.

Intervention: Groups of 3–8 participants participated in the High-Intensity Functional Exercise (HIFE) Program, with 5 sessions per 2-week period, for 4 months (total, 40 sessions).

Measurements: Outcome was the Berg Balance Scale (BBS), assessed at baseline and follow up, and the score difference, dichotomized to classify participants into two groups: responders (≥5-point increase) and non-responders (<5-point increase). Target variables were measures of applicability and motivation. Associations between each target variable and the outcome were analyzed using multivariable logistic regression. Baseline characteristics and new medical conditions developing during the intervention period were compared between responders and non-responders and included in the analyses when p < 0.10.

Results: The BBS score was 28.6 ± 14.3 at baseline and 31.2 ± 15.3 at follow up, with the difference between follow-up and baseline scores ranging from −35 to 24. Twenty-nine (35.8%) participants were responders. The multivariable models showed no significant association between responders vs. non-responders and any target variable.

Conclusion: Participation in a 4-month high-intensity functional exercise program can improve balance in many individuals with dementia in nursing homes, despite the progressiveness of dementia disorders and several co-existing medical conditions. Predicting balance exercise response based on applicability and motivation seem not to be possible, which lends no support for excluding this group from functional exercise, even when exercise intensity or motivation is not high.

Keywords
Dementia, exercise, postural balance, residential facilities
National Category
Geriatrics
Identifiers
urn:nbn:se:umu:diva-165681 (URN)10.1007/s12603-019-1269-8 (DOI)000489514700001 ()2-s2.0-85074321732 (Scopus ID)
Funder
Swedish Research Council, K2009-69P-21298-01-4Swedish Research Council, K2009-69X-21299-01-1Swedish Research Council, K2009-69P-21298-04-4Swedish Research Council, K2014-99X-22610-01-6
Available from: 2019-12-10 Created: 2019-12-10 Last updated: 2024-07-02Bibliographically approved
Sondell, A., Rosendahl, E., Gustafson, Y., Lindelöf, N. & Littbrand, H. (2019). The Applicability of a High-Intensity Functional Exercise Program among Older People with Dementia living in Nursing Homes. Journal of Geriatric Physical Therapy, 42(4), E16-E24
Open this publication in new window or tab >>The Applicability of a High-Intensity Functional Exercise Program among Older People with Dementia living in Nursing Homes
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2019 (English)In: Journal of Geriatric Physical Therapy, ISSN 1539-8412, E-ISSN 2152-0895, Vol. 42, no 4, p. E16-E24Article in journal (Refereed) Published
Abstract [en]

Background and Purpose: Exercise programs for people with dementia need to be optimized. We therefore evaluated the applicability of a high-intensity functional exercise program among people with dementia in nursing homes with regard to attendance, achieved exercise intensity, adverse events, a focus on dementia type, and whether symptoms of dementia or other medical conditions common in this population were associated with program applicability.

Methods: The Umeå Dementia and Exercise study, a cluster-randomized controlled trial set in 16 nursing homes in Umeå, Sweden. Ninety-three people with dementia (mean [SD] Mini-Mental State Examination score of 15.4 [3.4]) were randomized to the exercise intervention. Thirty-four participants had Alzheimer's disease (AD) and 59 non-Alzheimer's dementia (non-AD). High-Intensity Functional Exercise (HIFE) program was conducted in groups of 3 to 8 participants. Two physiotherapists led 5 sessions (45 minutes each) per fortnight for 4 months (total 40 sessions).

Results: Median attendance rate was 82.5%. Lower limb strength exercises were performed at high or medium intensity at a median interquartile range of 94.7% (77.8%-100%) of attended sessions. Participants with non-AD performed more sessions with high intensity in strength exercises than participants with AD (median interquartile range, 53.8% [25.7%-80%] vs 34.9% [2.02%-62.9%]; P = .035). Balance exercises were performed at high intensity at a median interquartile range of 75% (33.3%-88.6%). Adverse events (all minor and temporary, mostly musculoskeletal) occurred during the exercise sessions in 16% of attended sessions. Low motivation was the most common barrier for attendance. Buildup period, low motivation, and pain were common barriers for achieving high intensity in balance and strength exercises, and fear was a barrier in balance exercises. Of medical conditions, only behavioral and psychological symptoms of dementia, including apathy, were negatively associated with applicability.

Conclusion: A group-based, supervised, and individualized high-intensity functional exercise program seems to be applicable with regard to attendance, achieved intensity, and adverse events during the exercise sessions, in people with mild to moderate dementia in nursing homes. Effective strategies to enhance motivation to participate in exercise, as well as prevention and treatment of pain and behavioral and psychological symptoms of dementia, are important when promoting exercise participation in this population.

Place, publisher, year, edition, pages
Wolters Kluwer, 2019
Keywords
dementia, exercise, long-term care, mobility limitation, rehabilitation
National Category
Geriatrics
Identifiers
urn:nbn:se:umu:diva-153347 (URN)10.1519/JPT.0000000000000199 (DOI)000497704600003 ()29851748 (PubMedID)2-s2.0-85072946590 (Scopus ID)
Funder
Swedish Research Council, K2009-69P-21298-01-4Swedish Research Council, K2009-69X-21299-01-1Swedish Research Council, K2009-69P-21298-04-4Swedish Research Council, K2014-99X-22610-01-6Forte, Swedish Research Council for Health, Working Life and WelfareVårdal FoundationVästerbotten County Council
Available from: 2018-11-16 Created: 2018-11-16 Last updated: 2024-07-02Bibliographically approved
Sondell, A., Rosendahl, E., Nilsson Sommar, J., Littbrand, H., Lundin-Olsson, L. & Lindelöf, N. (2018). Motivation to participate in high-intensity functional exercise compared with a social activity in older people with dementia in nursing homes. PLOS ONE, 13(11), Article ID e0206899.
Open this publication in new window or tab >>Motivation to participate in high-intensity functional exercise compared with a social activity in older people with dementia in nursing homes
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2018 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 13, no 11, article id e0206899Article in journal (Refereed) Published
Abstract [en]

Background: Motivation to participate in exercise among people with dementia has not been well studied. The symptoms of dementia, including apathy, may lead to low motivation to participate in exercise. The aim of this study was to evaluate the motivation of older people with dementia to participate in a high-intensity exercise program compared with motivation of those participating in a social group activity.

Methods: The Umeå Dementia and Exercise Study (UMDEX) was a cluster-randomized controlled intervention trial including 186 people (mean age; 85, 75% female) with dementia in nursing homes. Participants were randomized to participate in the High-Intensity Functional Exercise (HIFE) Program (n = 93) or a seated social group activity (n = 93). The activities were conducted in groups of 3–8 participants for 45 minutes, five times per two-week period, for 4 months (40 sessions in total). Participants’ motivation to go to and during activity sessions were assessed by the activity leaders and nursing homes staff using a five-point Likert scale. Data were analyzed using cumulative link mixed models.

Results: Motivation was high or very high during 61.0% of attended sessions in the exercise group and 62.6% in the social activity group. No overall significant difference between groups was observed, but motivation increased over time in the exercise group and decreased in the social activity group (p < 0.05). Motivation during the sessions was significantly higher than motivation to go to the sessions, especially in the exercise group [OR 2.39 (95% CI 2.38–2.40) and 1.50 (95% CI 1.32–1.70), respectively].

Conclusions: Among older people with dementia in nursing homes, motivation to participate in a high-intensity functional exercise program seems to be high, comparable to motivation to participate in a social activity, and increase over time. Since motivation during activity sessions was higher than motivation to go to sessions the promotion of strategies to encourage people with dementia to join exercise groups is of great importance.

National Category
Geriatrics
Identifiers
urn:nbn:se:umu:diva-153346 (URN)10.1371/journal.pone.0206899 (DOI)000450138500071 ()30427894 (PubMedID)2-s2.0-85056542914 (Scopus ID)
Funder
Swedish Research Council, K2009-69P-21298-01-4Swedish Research Council, K2009-69X-21299-01-1Swedish Research Council, K2009-69P-21298-04-4Swedish Research Council, K2014-99X-22610-01-6Forte, Swedish Research Council for Health, Working Life and WelfareVårdal FoundationThe Dementia Association - The National Association for the Rights of the DementedVästerbotten County Council
Available from: 2018-11-16 Created: 2018-11-16 Last updated: 2024-07-02Bibliographically approved
Englund, U., Littbrand, H., Sondell, A., Bucht, G. & Pettersson, U. (2009). The beneficial effects of exercise on BMC are lost after cessation: a 5-year follow-up in older post-menopausal women. Scandinavian Journal of Medicine and Science in Sports, 19(3), 381-388
Open this publication in new window or tab >>The beneficial effects of exercise on BMC are lost after cessation: a 5-year follow-up in older post-menopausal women
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2009 (English)In: Scandinavian Journal of Medicine and Science in Sports, ISSN 0905-7188, E-ISSN 1600-0838, Vol. 19, no 3, p. 381-388Article in journal (Refereed) Published
Abstract [en]

This study investigates whether the positive effects on bone mineral density (BMD, g/cm2) and neuromuscular function following a combined weight-bearing program are sustained in older women, a longer period after cessation of training. Thirty-four women (18 exercisers and 16 controls) aged 73–88 years, who completed a 12-month randomized-controlled trial, were invited to a 5-year follow-up assessment of BMD and neuromuscular function. Both groups sustained significant losses in BMD of the femoral neck, trochanter, and Ward's triangle during the follow-up period. Significant losses were also seen in all neuromuscular function tests. The inter-group change was, however, significant only for maximal walking speed where the exercise group had a significantly greater loss. In conclusion, this study suggests that gains in bone density and neuromuscular functions achieved by training are lost after cessation of training. Continuous high-intensity weight-loading physical activity is probably necessary to preserve bone density and neuromuscular function in older women.

Place, publisher, year, edition, pages
Copenhagen: Munksgaard, 2009
Keywords
bone density, muscle strength, detraining, post-menopausal, women
National Category
Geriatrics
Identifiers
urn:nbn:se:umu:diva-29822 (URN)10.1111/j.1600-0838.2008.00802.x (DOI)2-s2.0-66249126503 (Scopus ID)
Available from: 2009-11-24 Created: 2009-11-24 Last updated: 2023-03-24Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-0654-4661

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