umu.sePublikasjoner
Endre søk
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Struggling to find meaning in life among spouses of people with ALS
Sahlgrenska University Hospital, Gothenburg, Sweden .
Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad.
Sahlgrenska University Hospital, Gothenburg, Sweden .
2015 (engelsk)Inngår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 13, nr 4, s. 909-916Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Objective: The aim of this study was to illuminate experiences of finding meaning in life among spouses of people with amyotrophic lateral sclerosis. Method: Thirteen interviews were analyzed with qualitative content analysis. Results: The spouses were struggling for meaning at the end of a dark tunnel. They felt limited and isolated in their proximity to death. They lived imprisoned lives, felt lonely, considered life to be unfair and incomplete, and mourned the loss of their future. However, they found meaning despite the proximity of death through cherishing their own lives, fellowship, accepting the present, and believing in meaning after the partner's death. Significance of results: Meaning in life strengthened spouses' well-being and ability to find pleasure in a difficult situation. It also strengthened their will to live after the partner's death. Limitations and isolations were strong predictors of what could impair their well-being and the possibility of finding meaning after the partner's death. Spouses need individual support throughout the disease process and after the partner's death, to give them the strength to find meaning in life and prioritize what is important for them. Paying attention to what might prevent them from finding meaning could make it easier to help them in their situation. Providing joint support to the patient and spouse might also help them to see each other's situation, come together, and help each other.

sted, utgiver, år, opplag, sider
Cambridge University Press, 2015. Vol. 13, nr 4, s. 909-916
Emneord [en]
Amyotrophic lateral sclerosis, Meaning, Qualitative content analysis, Sense of coherence, Spouse
HSV kategori
Identifikatorer
URN: urn:nbn:se:umu:diva-109387DOI: 10.1017/S1478951514000625ISI: 000360629100009PubMedID: 24991842OAI: oai:DiVA.org:umu-109387DiVA, id: diva2:857411
Tilgjengelig fra: 2015-09-29 Laget: 2015-09-25 Sist oppdatert: 2018-06-07bibliografisk kontrollert

Open Access i DiVA

Fulltekst mangler i DiVA

Andre lenker

Forlagets fulltekstPubMed

Personposter BETA

Graneheim, Ulla Hällgren

Søk i DiVA

Av forfatter/redaktør
Graneheim, Ulla Hällgren
Av organisasjonen
I samme tidsskrift
Palliative & Supportive Care

Søk utenfor DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric

doi
pubmed
urn-nbn
Totalt: 138 treff
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf