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Adolescent mental health: time trends and validity of self-report measures
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Child and Adolescent Psychiatry.ORCID iD: 0000-0003-0487-5552
2021 (English)Doctoral thesis, comprehensive summary (Other academic)Alternative title
Psykisk ohälsa hos ungdomar : tidstrender och validering av självskattningsskalor (Swedish)
Abstract [en]

Background: Studies of time trends of adolescent self-reported mental health suggest an increase of mental health symptoms globally. Unfortunately, several studies within the field have methodological problems, such as short time-period between measurements and different mental health measures over time. When estimating mental health through self-report measures, the measures need to be both valid and reliable. Reports from the Swedish National Board of Health and Welfare have shown that several self-report scales used in Child- and Adolescent Psychiatry lack validation in Swedish, and some are direct translations of adult self-report scales without proper age- adaption.

Aims: This thesis aims to add to previous knowledge regarding time trends of self-reported mental health among Swedish youth and to validate internationally used reliable self-report measures for use in Sweden.

Methods: In Study I, we investigated changes in self-reported mental health symptoms, both internalized and externalized, in two samples: The first sample in 1981 and the second in 2014, both samples including all grade 9 students of Luleå. The same composite self-report measures were used at both time points. In study II we translated and validated the Reynolds Adolescent Depression Scale second edition (RADS-2) with classical test theory. In study III, eight pediatric Patient-Reported Outcomes Measurement Information System (PROMIS®) item banks were translated to Swedish and culturally adapted using the Functional Assessment of Chronic Illness Therapy (FACIT) methodology. Study IV describes the item response theory (IRT) validation of two item banks, the PROMIS Pediatric Bank v2.0 – Anxiety and the PROMIS Pediatric Bank v2.0 - Depressive Symptoms, in a school- and Child- and Adolescent Psychiatry patient sample.

Results: Study I: There has been an increase in internalizing symptoms, especially among girls. Externalizing symptoms have decreased, especially among boys, and in 2014 compared to 1981; there is no significant difference between girls and boys. Study 2: The factor structure of the Swedish version of RADS-2 was confirmed and measurement invariance for sex and age-group. Reliability was acceptable to excellent for all subscales and the RADS-2 total scale. Concurrent, convergent, and discriminant validity was acceptable. Study III: All of the eight pediatric PROMIS item banks had translation issues to resolve. However, the translated and adapted versions were linguistically acceptable. Study IV: After removing a few items, the pediatric PROMIS item banks of anxiety and depressive symptoms showed good IRT fit statistics and no differential item functioning. A computer adaptive test (CAT) simulation supports the idea of the item banks to be appropriate to use with CAT.

Conclusion: This study supports the previous knowledge pointing to a rise in self-reported mental health, especially among girls. Valid and reliable diagnostic measures are needed in Child- and Adolescent Psychiatry. RADS-2 is an internationally established measure, and the Swedish version is now validated in a relatively large school sample. Item response theory has several advantages compared to classical test theory. We have translated eight PROMIS item banks to Swedish, and two of them, anxiety and depressive symptoms, have been validated with IRT in a school- and patient sample.

Place, publisher, year, edition, pages
Umeå: Umeå Universitet , 2021. , p. 72
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 2153
Keywords [en]
Adolescent, classical test theory, computer adaptive testing, cross-sectional, differential item functioning, graded response model, item banks, item response theory, measurement invariance, mental health, Patient-Reported Outcomes Measurement Information System, Reynolds Adolescent Depression Scale second edition, self-report measures, time trends
National Category
Psychiatry
Research subject
Child and Youth Psychiatry
Identifiers
URN: urn:nbn:se:umu:diva-188892ISBN: 978-91-7855-674-8 (print)ISBN: 978-91-7855-675-5 (electronic)OAI: oai:DiVA.org:umu-188892DiVA, id: diva2:1605818
Public defence
2021-12-21, Bergasalen, målpunkt Q0, Norrlands universitetssjukhus, Umeå, 09:00 (English)
Opponent
Supervisors
Note

2021-11-18: Planerad disputation 19 november uppskjuten. Nytt datum ej fastställt. 

2021-11-23: Nytt datum för disputation beslutat.

Available from: 2021-10-29 Created: 2021-10-25 Last updated: 2021-11-30Bibliographically approved
List of papers
1. Increase of internalized mental health symptoms among adolescents during the last three decades
Open this publication in new window or tab >>Increase of internalized mental health symptoms among adolescents during the last three decades
2019 (English)In: European Journal of Public Health, ISSN 1101-1262, E-ISSN 1464-360X, Vol. 29, no 5, p. 925-931Article in journal (Refereed) Published
Abstract [en]

Background: Previous studies suggest an overall increase of adolescent mental health symptoms globally since the 1980s until today, especially an increase of internalizing symptoms in girls. Due to methodological limitations of these studies, further studies are warranted to obtain a more solid knowledgebase.

Methods: This study was cross-sectional and compared two separate but geographically identical groups of adolescents in a middle-sized industrial municipality in Northern Sweden at two time-points [(i) 1981, n = 1083, (505 girls, 577 boys), response rate 99.7%; (ii) 2014, n = 682, (338 girls, 344 boys), response rate 98.3%]. All students in their last year of compulsory school were included. The same self-report questionnaire, consisting of four sub-scales (functional somatic-, anxiety-, depressive symptoms and conduct problems), was used at both occasions. Data were analyzed with descriptive statistics, two-way ANOVA and general linear model.

Results: Symptoms of anxiety and depression and functional somatic symptoms, increased among both boys and girls from 1981 until 2014 (P < 0.001 for all subscales), and the increase of these symptoms was higher in girls. Conduct problems were significantly higher in boys in 1981 and decreased over time so that in 2014 there was no longer a significant difference between boys and girls regarding conduct problems (P = 0.286).

Conclusion: In this population-based study spanning over 30 years, both girls and boys showed increasing internalizing problems, while conduct problems decreased. To halt this trend, we need a deeper understanding of the impact of the major societal changes that have occurred during the last three decades.

Place, publisher, year, edition, pages
Oxford University Press, 2019
Keywords
anxiety, adolescent, conduct disorder, depressive disorders, mental health, time, descriptive statistics, self-report, knowledge bases, medically unexplained symptoms
National Category
Public Health, Global Health and Social Medicine
Identifiers
urn:nbn:se:umu:diva-162726 (URN)10.1093/eurpub/ckz028 (DOI)000491248400023 ()30859217 (PubMedID)2-s2.0-85072713963 (Scopus ID)
Available from: 2019-08-27 Created: 2019-08-27 Last updated: 2025-02-20Bibliographically approved
2. Validation of the Swedish version of the Reynolds Adolescent Depression Scale second edition (RADS-2) in a normative sample
Open this publication in new window or tab >>Validation of the Swedish version of the Reynolds Adolescent Depression Scale second edition (RADS-2) in a normative sample
2021 (English)In: Nordic Journal of Psychiatry, ISSN 0803-9488, E-ISSN 1502-4725, Vol. 75, no 4, p. 292-300Article in journal (Refereed) Published
Abstract [en]

Background: Due to the sharp global increase in prevalence of adolescent major depressive disorder as defined by the Diagnostic and Statistical Manual of Mental Disorders, we need internationally validated tools for multi-dimensional assessment. Reynolds Adolescent Depression Scale second edition (RADS-2) measures dysphoric mood, anhedonia/negative affect, negative self-evaluation and somatic complaints and is widely used internationally, but not yet available in Swedish.

Aim: The aim of this study is to test the psychometric characteristics of the Swedish version of RADS-2 in a normative sample.

Material and method: Data was gathered from junior and high school students in Northern Sweden (N = 637). We performed: 1. Confirmatory factor analysis to examine the 4-factor structure proposed by Reynolds, 2. Measurement invariance analysis for sex (girls, boys) and age group (12-15 years, 16-20 years). 3. Reliability testing and 4. Tests for concurrent, discriminant and convergent validity using Beck's Youth Inventories of Emotional and Social Impairment Depression and Anger subscales, the Patient Reported Outcome Measurements Information System, Anxiety and Friends subscales and the World Health Organization Wellness Index.

Results: The sample consisted of n = 637 students (n = 389 girls and n = 248 boys), mean age 15.73 (SD = 1.76); 12-20 years. The 4-factor structure was confirmed, as well as measurement invariance for sex and age group. Reliability was acceptable to excellent for all subscales and RADS-2 total scale. Concurrent, convergent and discriminant validity was good.

Conclusion: The Swedish version of RADS-2 showed acceptable reliability and validity in a Swedish normative sample.

Place, publisher, year, edition, pages
Taylor & Francis, 2021
Keywords
Adolescents, reliability, validity, confirmatory factor analysis, measurement invariance
National Category
Psychiatry
Identifiers
urn:nbn:se:umu:diva-177730 (URN)10.1080/08039488.2020.1850858 (DOI)000593091800001 ()33251928 (PubMedID)2-s2.0-85096844611 (Scopus ID)
Available from: 2020-12-18 Created: 2020-12-18 Last updated: 2021-10-25Bibliographically approved
3. Swedish translation and cross-cultural adaptation of eight pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®
Open this publication in new window or tab >>Swedish translation and cross-cultural adaptation of eight pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®
Show others...
2021 (English)In: Journal of Patient-Reported Outcomes, E-ISSN 2509-8020, Vol. 5, no 1, article id 80Article in journal (Refereed) Published
Abstract [en]

Background: This study is part of the Swedish initiative for the establishment of standardized, modern patient-reported measures for national use in Swedish healthcare. The goal was to translate and culturally adapt eight pediatric Patient-Reported Outcomes Measurement Information System (PROMIS®) item banks (anger, anxiety, depressive symptoms, family relationships, fatigue, pain interference, peer relationships and physical activity) into Swedish.

Methods: Authorization to translate all currently available pediatric PROMIS item banks (autumn, 2016) into Swedish was obtained from the PROMIS Health Organization. The translation followed the Functional Assessment of Chronic Illness Therapy translation recommendations with one major modification, which was the use of a bilingual multi-professional review workshop. The following steps were applied: translation, reconciliation, a two-day multi professional reviewer workshop, back translation, and cognitive debriefing with eleven children (8–17 years) before final review. The bilingual multi-professional review workshop provided a simultaneous, in-depth assessment from different professionals. The group consisted of questionnaire design experts, researchers experienced in using patient-reported measures in healthcare, linguists, and pediatric healthcare professionals.

Results: All item banks had translation issues that needed to be resolved. Twenty-four items (20.7%) needed resolution at the final review stage after cognitive debriefing. The issues with translations included 1. Lack of matching definitions with items across languages (6 items); 2. Problems related to language, vocabulary, and cultural differences (6 items); and 3. Difficulties in adaptation to age-appropriate language (12 items).

Conclusions: The translated and adapted versions of the eight Swedish pediatric PROMIS item banks are linguistically acceptable. The next stage will be cross-cultural validation studies in Sweden. Despite the fact that there are cultural differences between Sweden and the United States, our translation processes have successfully managed to address all issues. Expert review groups from already-established networks and processes regarding pediatric healthcare throughout the country will facilitate the future implementation of pediatric PROMIS item banks in Sweden.

Place, publisher, year, edition, pages
Springer, 2021
Keywords
Cultural adaptation, Item bank, Linguistic validation, Pediatric PROMIS, Questionnaire, Translation
National Category
Pediatrics
Identifiers
urn:nbn:se:umu:diva-187503 (URN)10.1186/s41687-021-00353-7 (DOI)000694243700003 ()2-s2.0-85114406336 (Scopus ID)
Funder
Visare NorrRegion Västerbotten
Available from: 2021-09-14 Created: 2021-09-14 Last updated: 2024-06-11Bibliographically approved
4. Item response theory validation of the Swedish pediatric PROMIS item banks of anxiety and depressive symptoms in clinical and community samples
Open this publication in new window or tab >>Item response theory validation of the Swedish pediatric PROMIS item banks of anxiety and depressive symptoms in clinical and community samples
(English)Manuscript (preprint) (Other academic)
National Category
Psychiatry
Identifiers
urn:nbn:se:umu:diva-188891 (URN)
Available from: 2021-10-25 Created: 2021-10-25 Last updated: 2021-10-25

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