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Areas for quality improvements in heart failure care: quality of care from the family members' perspective
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University, Arctic Research Centre at Umeå University.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Medicine.
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University, Arctic Research Centre at Umeå University. Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
2018 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 32, no 1, p. 346-353Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The complex needs of people with chronic heart failure (HF) place great demands on their family members, and it is important to ask family members about their perspectives on the quality of HF care.

OBJECTIVE: To describe family members' perceptions of quality of HF care in an outpatient setting.

METHODS: A cross-sectional study using a short form of the Quality from Patients' Perspective (QPP) questionnaire for data collection. The items in the questionnaire measure four dimensions of quality, and each item consists of both the perceived reality of the care and its subjective importance. The study included 57 family members of patients with severe HF in NYHA class III-IV.

RESULTS: Family members reported areas for quality improvements in three out of four dimensions and in dimensionless items. The lowest level of perceived reality was reported for treatment for confusion and loss of appetite. Treatment for shortness of breath, access to the apparatus and access to equipment necessary for medical care were the items with the highest subjective importance for the family members.

CONCLUSION: Family members identified important areas for quality improvement in the care for patients with HF in an outpatient setting. In particular, symptom alleviation, information to patients, patient participation and access to care were identified as areas for improvements. Thus, measuring quality from the family members' perspective with the QPP might be a useful additional perspective when it comes to the planning and implementation of changes in the organisation of HF care.

Place, publisher, year, edition, pages
Hoboken: John Wiley & Sons, 2018. Vol. 32, no 1, p. 346-353
Keywords [en]
heart failure, Quality from patients' Perspective questionnaire, family members' perspective, quality of care
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-139041DOI: 10.1111/scs.12468ISI: 000426524200035PubMedID: 28543624OAI: oai:DiVA.org:umu-139041DiVA, id: diva2:1138473
Available from: 2017-09-05 Created: 2017-09-05 Last updated: 2018-06-09Bibliographically approved

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Hellström Ängerud, KarinBoman, KurtBrännström, Margareta

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