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Patients' experiences of living with superior canal dehiscence syndrome
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Otorhinolaryngology.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Family Medicine.ORCID iD: 0000-0002-8446-2346
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Otorhinolaryngology.
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Otorhinolaryngology.ORCID iD: 0000-0002-8692-9384
2018 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 57, no 11, p. 825-830Article in journal (Refereed) Published
Abstract [en]

Objective: The study investigated how the symptoms of superior canal dehiscence syndrome (SCDS) affected patients in their daily life, and how patients coped with the disease.

Design: This was a qualitative study; semi-structured interviews were performed and analysed according to the systematic text condensation method.

Study sample: Twelve of 13 identified patients with SCDS in the county of Norrbotten, Sweden, were included in the study.

Results: Five main categories were created based on the patients' experiences of living with SCDS: (1) Experiencing strange symptoms: One "new" symptom was identified - mental fatigue. (2) A restricted life socially, physically and at work: All patients experienced some extent of limitation in their daily life. (3) To accept and to protect oneself: All patients had developed strategies to protect their ears from noise. (4) Misunderstood in health care: The diagnosis was sometimes delayed several years due to lack of knowledge among healthcare workers. (5) Carefully considering treatment (surgery): Symptoms were weighed against the risk of side effects.

Conclusions: SCDS was rendered an invisible disability. In the present study, we identified mental fatigue as a symptom not previously considered in the literature.

Place, publisher, year, edition, pages
Taylor & Francis, 2018. Vol. 57, no 11, p. 825-830
Keywords [en]
Symptoms of SCDS, superior canal dehiescence syndrome, qualitative study, human, fatigue
National Category
Otorhinolaryngology
Identifiers
URN: urn:nbn:se:umu:diva-154962DOI: 10.1080/14992027.2018.1487086ISI: 000449715000004PubMedID: 30178689Scopus ID: 2-s2.0-85053242012OAI: oai:DiVA.org:umu-154962DiVA, id: diva2:1275856
Available from: 2019-01-07 Created: 2019-01-07 Last updated: 2019-01-07Bibliographically approved

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Forssén, AnnikaTano, Krister

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