umu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Parental uncertainty about transferring their adolescent with congenital heart disease to adult care
Show others and affiliations
2019 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 75, no 2, p. 380-387Article in journal (Refereed) Published
Abstract [en]

Aims: To study parent's levels of uncertainty related to the transfer from pediatric to adult care in adolescents with congenital heart disease (CHD) and to identify potentially correlating factors. Background: Parents acknowledge that during transition they struggle with finding ways of feeling secure in handing over the responsibility and letting go of control. Well-prepared and informed parents who feel secure are most likely better skilled to support their adolescent and to hand over the responsibility. Design: A cross-sectional study. Methods: Overall, 351 parents were included (35% response rate). Parental uncertainty was assessed using a Linear Analogue Scale (0-100). Data were collected between January - August 2016. Potential correlates were assessed using the readiness for transition questionnaire and sociodemographic data. Results: The mean parental uncertainty score was 42.5. Twenty-four percent of the parents had a very low level of uncertainty (score 0-10) and 7% had a very high level (score 91-100). Overall, 26% of the mothers and 36% of the fathers indicated that they had not started thinking of the transfer yet. The level of uncertainty was negatively associated with the level of perceived overall readiness. Adolescents' age, sex, CHD complexity, and parental age were not related to uncertainty. Conclusion: A wide range in the levels of uncertainty was found. Parents who were less involved in the care, or perceived their adolescent as readier for the transition, felt less uncertain. Still, thirty percent of the parents had not started to think about the transfer to adult care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019. Vol. 75, no 2, p. 380-387
Keywords [en]
adolescents, congenital heart disease, nursing, parental uncertainty, readiness for transition, transfer, ansition
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-157601DOI: 10.1111/jan.13852ISI: 000459622300013PubMedID: 30209810OAI: oai:DiVA.org:umu-157601DiVA, id: diva2:1299715
Available from: 2019-03-28 Created: 2019-03-28 Last updated: 2019-03-28Bibliographically approved

Open Access in DiVA

fulltext(296 kB)47 downloads
File information
File name FULLTEXT01.pdfFile size 296 kBChecksum SHA-512
f16063de56fcc06adce7f23c1b368b8fadefce8671a1a57a7fbc52e65721254a06e7ce8cbb4028804618c2c5edc1c8b2c51a4d230884752d6fe5ed0067c350bf
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Authority records BETA

Rydberg, Annika

Search in DiVA

By author/editor
Burström, ÅsaRydberg, Annika
By organisation
Paediatrics
In the same journal
Journal of Advanced Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 47 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 118 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf