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Patient empowerment and its correlates in young persons with congenital heart disease
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2019 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 18, no 5, p. 389-398, article id 1474515119835434Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE:: The objective of this study was to measure the level of empowerment and identify its correlates in young persons with congenital heart disease.

STUDY DESIGN:: Patients aged 14-18 years with congenital heart disease, and under active follow-up in one of four paediatric cardiology centres in Sweden were invited to participate in a cross-sectional study. A total of 202 young persons returned the questionnaires. Patient empowerment was measured with the Gothenburg Young Persons Empowerment Scale that allows the calculation of total and subscale scores. Univariate and multivariate linear regression analyses were undertaken to analyse possible correlates, including: sex, age, health behaviours, knowledge of congenital heart disease, quality of life, patient-reported health, congenital heart disease complexity, transition readiness and illness perception.

RESULTS:: The mean empowerment score was 54.6±10.6 (scale of 15-75). Univariate analyses showed that empowerment was associated with age, quality of life, transition readiness, illness perception, health behaviours and patient-reported health (perceived physical appearance, treatment anxiety, cognitive problems and communication issues). However, multivariable linear regression analyses identified that only transition readiness (β=0.28, P<0.001) and communication (β=0.36, P<0.001) had a positive association with patient empowerment. These variables were also significantly associated with the subscale scores of the empowerment scale of knowledge and understanding ( P<0.001), shared decision-making ( P<0.001) and enabling others ( P<0.01). The overall models' explained variance ranged from 8% to 37%.

CONCLUSION:: Patient empowerment was associated with transition readiness and fewer problems communicating. While it is not possible to establish the directionality of the associations, interventions looking to increase empowerment could benefit from using these variables (or measurements) for evaluation purposes.

Place, publisher, year, edition, pages
Sage Publications, 2019. Vol. 18, no 5, p. 389-398, article id 1474515119835434
Keywords [en]
Adolescents, congenital, correlates, heart defects, patient empowerment, young persons
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:umu:diva-159330DOI: 10.1177/1474515119835434PubMedID: 30834772OAI: oai:DiVA.org:umu-159330DiVA, id: diva2:1317988
Funder
Swedish Heart Lung Foundation, 20150535Forte, Swedish Research Council for Health, Working Life and Welfare, STYA-2015/0003Swedish Research Council, 2015-02503Available from: 2019-05-24 Created: 2019-05-24 Last updated: 2019-06-24Bibliographically approved

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Rydberg, Annika

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