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Caring for Intimate Data in Fertility Technologies
Newcastle University, UK.
Umeå University, Faculty of Social Sciences, Department of Informatics.ORCID iD: 0000-0001-7393-3379
2021 (English)In: Proceedings of the 2021 ACM Conference on Human Factors in Computing Systems - CHI'21, 2021, article id 409Conference paper, Published paper (Refereed)
Abstract [en]

Fertility tracking applications are technologies that collect sensitive information about their users i.e. reproductive potential. For many, these apps are an affordable solution when trying to conceive or managing their pregnancy. However, intimate data are not only collected but also shared beyond users knowledge or consent. In this paper, we explore the privacy risks that can originate from the mismanagement, misuse, and misappropriation of intimate data, which are entwined in individual life events and in public health issues such as abortion and (in)fertility. We look at differential vulnerabilities to enquire data’s vulnerability and that of ‘data subjects’. We introduce the General Data Protection Regulation (GDPR) and how it addresses fertility data. We evaluate the privacy of 30 top ‘fertility apps’ through their privacy notices and tracking practices. Lastly, we discuss the regulations and fertility data as critical to the future design of tracking technologies and privacy rights. 

Place, publisher, year, edition, pages
2021. article id 409
National Category
Engineering and Technology Social Sciences
Identifiers
URN: urn:nbn:se:umu:diva-182899DOI: 10.1145/3411764.3445132ISI: 000758168001032Scopus ID: 2-s2.0-85106732804OAI: oai:DiVA.org:umu-182899DiVA, id: diva2:1553354
Conference
2021 ACM Conference on Human Factors in Computing Systems - CHI'21, Online, May 8-13, 2021
Available from: 2021-05-08 Created: 2021-05-08 Last updated: 2023-09-05Bibliographically approved

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Almeida, Teresa

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf