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Exploring Person-centered Service Provisions: High-Functioning Adults with Autism in contemporary Public and Corporate Social Work
Umeå University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-8670-2796
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Changes in the management of human service organizations impact national service provisions for people with disabilities in western societies, where service provisions are given in a scattered field of social work arenas. High-functioning adults with autism (HIA) represent a disability group that is actualized for different forms of work life preparative services. This ethnographic study was conducted in two different service provisional contexts in Sweden, a folk high school program (FHS) and a vocational rehabilitation program (VRP). The main focus in this paper is an exploration of how these diagnosis-specific provisional contexts and professional approaches adhere to key components in social work, such as person-centered services and notions of equity and empowerment, and how these approaches are experienced by program participants. Content analysis on field notes, interview narratives, and a complementary Institutional Logics perspective result in the conclusion of an adverse consumer perspective in the VRP and highly present person-centeredness in the FHS, both of which are reflected in the experiences of the participants.

National Category
Social Sciences
Identifiers
URN: urn:nbn:se:umu:diva-183169OAI: oai:DiVA.org:umu-183169DiVA, id: diva2:1555279
Available from: 2021-05-18 Created: 2021-05-18 Last updated: 2021-05-18
In thesis
1. Ett meningsfullt liv med arbete?: Högfungerande individer med autism mellan funktionshinder- och arbetsmarknadspolitik
Open this publication in new window or tab >>Ett meningsfullt liv med arbete?: Högfungerande individer med autism mellan funktionshinder- och arbetsmarknadspolitik
2021 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this thesis is to study notions of employment among high-functioning individuals with autism (HiA) and their experiences of vocational rehabilitation or work-preparatory programs and to analyze how these experiences reflect upon the labor market policy’s and disability policy’s common shared goal of supporting individuals towards a socially included life with meaningful work. This study was conducted through ethnographic fieldwork in a private company (VRP) that operated as a service provider for the Employment Service Agency, and a Swedish residential folk high school (FHS). Both of the organizations provided work-preparative programs specifically for HiA. Three of the four sub-studies are based on qualitative data consisting of individual interviews, focus group interviews, and field notes from participant observations. The fourth sub-study represents an analysis of legal documents targeting employment and health in disability policy.

The results in sub-study 1 illustrate that the narratives provided by HiA strongly address the subject position of the citizen-worker. Their suggested ideal jobs were deprioritized in favor of more available jobs on the market. The central incentives to pursue either the ideal or second-option jobs can be identified as the personal perception of attaining a sense of meaningfulness through work, which was depicted as central to the sense of self-fulfillment, identity, and wellbeing. As the second sub-study shows, the fulfillment of personal ambitions and ideas of meaningful work was not met in the case of the VRP participants. Social inclusion was not experienced as a result of the received service provisions. The results rather indicate a manifestation of the normalization principle’s basic attributes with regard to spatial integration in work-like activities (disability-worker contexts) rather than social inclusion on an equal basis with others (citizen-worker contexts). The third sub-study then showcases how social work practices were produced at the intersection of clients’ needs and personas and the organizations’ conditional premises in FHS and VRP. The analysis resulted in the conclusion that a person-centered approach was lacking in the VRP whereas highly present in the FHS. The fourth and last sub-study focuses on how Swedish disability policy is constructed to meet the objectives of the CRPD regarding active citizenship that is associated with health (engagements in private life, work-life, community life, social/family life, etc.) and thereby full participation on an equal basis with others. The results suggest that the policy area of employment, implicitly and explicitly, overshadows the policy area of health and intimately associated life-areas that are important to wellbeing.

The conclusions are that FHS and ARP both reflect a strong dedication to provide services that aim towards preparing individuals for work. However, a more holistic approach in professional practices must be practiced in VRPs if a socially included life with a sustainable work situation for HiA is strived for. With regard to a socially included life with meaningful work, the above must be accounted for in addition to individuals’ personal perceptions and notions of meaningfulness.

Place, publisher, year, edition, pages
Umeå: Umeå universitet, 2021. p. 131
Series
Studier i socialt arbete vid Umeå universitet : avhandlings- och skriftserie, ISSN 0283-300X ; 98
Keywords
Disability policy, ethnographic fieldwork, high-functioning individuals with autism, labour market policy, meaningful work, social inclusion, welfare services.
National Category
Social Sciences
Identifiers
urn:nbn:se:umu:diva-183208 (URN)978-91-7855-517-8 (ISBN)978-91-7855-518-5 (ISBN)
Public defence
2021-06-11, Triple Helix, Universitetsledningshuset, Umeå, 10:00 (Swedish)
Opponent
Supervisors
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2012-1111
Note

Serienummer saknas i publikationen. 

Available from: 2021-05-21 Created: 2021-05-18 Last updated: 2021-05-21Bibliographically approved

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