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Nationwide data on home care and care home residence: presentation of the Swedish Social Service Register, its content and coverage
Unit of Epidemiology, Institute of Environmental Medicine, Karolinska Institutet, Sweden.ORCID iD: 0000-0003-2749-7179
Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Stockholm University Demography Unit (SUDA), Stockholm University, Sweden.ORCID iD: 0000-0001-7559-2571
Unit of Epidemiology, Institute of Environmental Medicine, Karolinska Institutet, Sweden.
2022 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 50, no 7, p. 946-958Article in journal (Refereed) Published
Abstract [en]

Aims: All Swedish municipalities are legally obliged to provide publicly funded eldercare to individuals in need. The Swedish Social Service Register collects data on such care. It is the only nationwide source of information on care home residency and use of home care but has rarely been used for research. This study aims to present the content and coverage of the Social Service Register and to provide guidance for researchers planning to use these data.

Methods: For each month between 2013and 2020, we examined which of Sweden’s 290 municipalities reported data to the Social Service Register. We calculated proportions of the population (restricted to ages 80–89 years to enable comparison) that were reported to the Social ServiceRegister in each municipality and presented the types and amount of care recorded in the register.

Results: The proportion of municipalities reporting to the Social Service Register increased from 82% to 98% during the study period but several municipalities reported fragmentarily and inconsistently, particularly during earlier years. Among municipalities reporting to the Social Service Register, 9% of the population aged 80–89 years resided in care homes and 19% received home care, but the registered amount and types of care varied substantially between municipalities and over time.

Conclusions: The Swedish Social Service Register provides valuable data for research on aging and eldercare utilization, but data should be selected and vetted carefully, especially for earlier years. The amount and types of care may not always be comparable between geographical regions and different time periods. In recent years, however, the coverage of the Social Service Register is good.

Place, publisher, year, edition, pages
Sage Publications, 2022. Vol. 50, no 7, p. 946-958
Keywords [en]
Health registers, register data, coverage, population, ageing, home care, elder care, Sweden, administrative registers
National Category
Social Work Public Health, Global Health, Social Medicine and Epidemiology Geriatrics
Research subject
Population studies; Epidemiology; Geriatrics
Identifiers
URN: urn:nbn:se:umu:diva-190986DOI: 10.1177/14034948211061016ISI: 000738766900001PubMedID: 34965796Scopus ID: 2-s2.0-85122127722OAI: oai:DiVA.org:umu-190986DiVA, id: diva2:1624467
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-07115Available from: 2022-01-04 Created: 2022-01-04 Last updated: 2022-11-30Bibliographically approved

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Sandström, Glenn

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CiteExportLink to record
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