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Designing patient education tools: co-creation of infographics to support the hospitalisation process for individuals with severe chronic respiratory conditions
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation.ORCID iD: 0000-0002-0693-570x
Umeå University, Faculty of Science and Technology, Umeå Institute of Design.ORCID iD: 0000-0002-3542-5717
Institute for Informatics, Washington University School of Medicine in St Louis, St Louis, MO, USA; Goldfarb School of Nursing, Barnes-Jewish College, BJC HealthCare, St Louis, MO, USA.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine.
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2025 (English)In: CoDesign - International Journal of CoCreation in Design and the Arts, ISSN 1571-0882, E-ISSN 1745-3755Article in journal (Refereed) Epub ahead of print
Abstract [en]

This article reflects on how patient education tool design can benefit from a co-creation process with patients and key stakeholders involved, using a case study in chronic obstructive pulmonary disease (COPD) care. Unfavourable hospitalisation experiences for COPD patients are often linked to organisational issues and health literacy challenges. This study presents insights from a year-long co-creation practice involving COPD patients, a family member, healthcare practitioners, and hospital managers, aimed at developing patient education tools to enhance health literacy concerning the hospitalisation process. The primary outcome is a set of patient education infographics that can be integrated into digital platforms or printed formats. For such co-creation practice, we found that setting clear creativity expectations and using methods such as user journey maps empower participants. Balancing the power dynamics between patients and healthcare practitioners enables culturally relevant and patient-centred tools. In addition, family members play a crucial role in both co-creation process and care journey, while hospital managers ensure tools align with clinical practices. We also advocate for an ecological perspective towards intervention development, acknowledging diverse needs emerged from the co-creation process. Future research should implement strategies in further individualising infographics to improve their effectiveness.

Place, publisher, year, edition, pages
Taylor & Francis, 2025.
Keywords [en]
Patient education, infographics, co-creation, healthcare, hospitalisation
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:umu:diva-239084DOI: 10.1080/15710882.2025.2508730ISI: 001491585500001Scopus ID: 2-s2.0-105005793885OAI: oai:DiVA.org:umu-239084DiVA, id: diva2:1960512
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Region Västerbotten, RV981572Available from: 2025-05-22 Created: 2025-05-22 Last updated: 2025-06-09

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An, QingfanKuenen, ChristoffelHelleday, RagnberthSandlund, MarleneWadell, Karin

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An, QingfanKuenen, ChristoffelHelleday, RagnberthSandlund, MarleneWadell, Karin
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Department of Community Medicine and RehabilitationUmeå Institute of DesignDepartment of Public Health and Clinical Medicine
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CoDesign - International Journal of CoCreation in Design and the Arts
NursingHealth Care Service and Management, Health Policy and Services and Health Economy

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