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Preserving children's fertility: two tales about children's right to an open future and the margins of parental obligations
Umeå universitet, Humanistiska fakulteten, Institutionen för idé- och samhällsstudier. Department of Philosophy, Linguistics and Theory of Science, University of Gothenburg, Gothenburg, Sweden.
Department of Health, Ethics and Society, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.
2015 (engelsk)Inngår i: Medicine, Health care and Philosophy, ISSN 1386-7423, E-ISSN 1572-8633, Vol. 18, nr 2, s. 253-260Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The sources, extent and margins of parental obligations in taking decisions regarding their children’s medical care are subjects of ongoing debates. Balancing children’s immediate welfare with keeping their future open is a delicate task. In this paper, we briefly present two examples of situations in which parents may be confronted with the choice of whether to authorise or demand non-therapeutic interventions on their children for the purpose of fertility preservation. The first example is that of children facing cancer treatment, and the second of children with Klinefelter syndrome. We argue that, whereas decisions of whether to preserve fertility may be prima facie within the limits of parental discretion, the right to an open future does not straightforwardly put parents under an obligation to take actions that would detect or relieve future infertility in their children—and indeed in some cases taking such actions is problematic.

sted, utgiver, år, opplag, sider
2015. Vol. 18, nr 2, s. 253-260
Emneord [en]
fertility, Klinefelter syndrome, cancer, right to an open future, right to genetic privacy, screening, fertility preservation
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Forskningsprogram
etik
Identifikatorer
URN: urn:nbn:se:umu:diva-93296DOI: 10.1007/s11019-014-9596-3ISI: 000352221800011PubMedID: 25189425OAI: oai:DiVA.org:umu-93296DiVA, id: diva2:747170
Forskningsfinansiär
Swedish Research CouncilTilgjengelig fra: 2014-09-16 Laget: 2014-09-16 Sist oppdatert: 2018-06-07bibliografisk kontrollert

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