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Living with hypertrophic cardiomyopathy and an implantable defibrillator
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine.
2017 (English)In: BMC Cardiovascular Disorders, ISSN 1471-2261, E-ISSN 1471-2261, Vol. 17, 121Article in journal (Refereed) Published
Abstract [en]

Background: ICDs efficiently terminate life-threatening arrhythmias, but complications occur during long-term follow-up. Patients' own perspective is largely unknown. The aim of the study was to describe experiences of hypertrophic cardiomyopathy (HCM) patients with implantable defibrillators (ICDs).

Methods: We analyzed 26 Swedish patient interviews using hermeneutics and latent content analysis.

Results: Patients (aged 27-76 years) were limited by HCM especially if it deteriorates into heart failure. The ICD implies safety, gratitude, and is accepted as a part of the body even when inappropriate ICD shocks are encountered. Nobody regretted the implant. Both the disease and the ICD affected professional life and leisure time activities, especially at younger ages. Family support was usually strong, but sometimes resulted in overprotection, whereas health care focused on medical issues. Despite limitations, patients adapted, accepted, and managed challenges.

Conclusion: HCM patients with ICDs reported good spirit and hope even though they had to adapt and accept limitations over time.

Place, publisher, year, edition, pages
BIOMED CENTRAL LTD , 2017. Vol. 17, 121
Keyword [en]
Content analysis, Hermeneutics, Hypertrophic Cardiomyopathy, Implantable cardioverter defibrillator, Interview, Qualitative
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:umu:diva-135530DOI: 10.1186/s12872-017-0553-yISI: 000401027600004PubMedID: 28490380OAI: oai:DiVA.org:umu-135530DiVA: diva2:1112672
Available from: 2017-06-20 Created: 2017-06-20 Last updated: 2017-06-20Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf