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Identifying unmet rehabilitation needs in patients after stroke with a graphic rehab-compassTM
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation. Umeå University, Faculty of Medicine, Department of Pharmacology and Clinical Neuroscience, Clinical Neuroscience.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Section of Medicine. Clinical Sciences, Danderyd Hospital, Karolinska Institutet, Stockholm, Sweden.
Umeå University, Faculty of Medicine, Department of Pharmacology and Clinical Neuroscience.
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2018 (English)In: Journal of Stroke & Cerebrovascular Diseases, ISSN 1052-3057, E-ISSN 1532-8511, Vol. 27, no 11, p. 3224-3235Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Unmet rehabilitation needs are common among stroke survivors. We aimed to evaluate whether a comprehensive graphic "Rehab-Compass," a novel combination of structured patient-reported outcome measures, was feasible and useful in facilitating a capture of patients' rehabilitation needs in clinical practice.

METHODS: A new graphic overview of broad unmet rehabilitation needs covers deficits in functioning, daily activity, participation, and quality of life. It was constructed by using 5 patient-oriented, well-validated, and reliable existing instruments with converted data into a 0 (worst outcome) to 100 (best outcome) scale but unchanged in terms of variable properties. Satisfaction of the Rehab-CompassTM was studied by a qualitative interview of 9 patients with stroke and 3 clinicians. Practical feasibility and capacity of the instrument were evaluated in a cross-sectionalstudy with 48 patients at 5-month follow-ups after subarachnoid hemorrhage.

RESULTS: The Rehab-CompassTM identified and graphically visualized a panoramic view of the multidimensional needs over time which was completed before clinical consultation. The Rehab-CompassTM appeared to be feasible and time-efficientin clinical use. The interviews of both patients and clinicians showed high satisfaction when using the Rehab-CompassTM graph. In the studied stroke patients, the Rehab-CompassTM identified memory and processing information, fatigue, mood, and pain after subarachnoid hemorrhage as the most common problems.

CONCLUSIONS: The graphic Rehab-CompassTM seems to be a feasible, useful, and time-saving tool for identification of unmet rehabilitation needs among stroke survivors in clinical practice. Further research is needed to make the Rehab-CompassTM more concise and evaluate the instrument among different stroke subgroups.

Place, publisher, year, edition, pages
Elsevier, 2018. Vol. 27, no 11, p. 3224-3235
Keywords [en]
stroke, needs assessment, outcome and process assessment, quality improvement, referral and consultation, rehabilitation
National Category
Neurology
Identifiers
URN: urn:nbn:se:umu:diva-153269DOI: 10.1016/j.jstrokecerebrovasdis.2018.07.013ISI: 000450569700044PubMedID: 30097401OAI: oai:DiVA.org:umu-153269DiVA, id: diva2:1262968
Funder
Västerbotten County CouncilSwedish Heart Lung FoundationAvailable from: 2018-11-13 Created: 2018-11-13 Last updated: 2019-05-24Bibliographically approved

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Magaard, GustafWester, PerLindvall, PeterNyman, KristinHu, Xiao-Lei

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Magaard, GustafWester, PerLindvall, PeterNyman, KristinHu, Xiao-Lei
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Department of Community Medicine and RehabilitationClinical NeuroscienceSection of MedicineDepartment of Pharmacology and Clinical Neuroscience
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Journal of Stroke & Cerebrovascular Diseases
Neurology

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