umu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
One size fits none: a qualitative study investigating nine national quality registries' conditions for use in quality improvement, research and interaction with patients
Show others and affiliations
2018 (English)In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 18, article id 802Article in journal (Refereed) Published
Abstract [en]

Background: Swedish National Quality Registries (NQRs) are observational clinical registries that have long been seen as an underused resource for research and quality improvement (QI) in health care. In recent years, NQRs have also been recognised as an area where patients can be involved, contributing with self-reported experiences and estimations of health effects. This study aimed to investigate what the registry management perceived as barriers and facilitators for the use of NQRs in QI, research, and interaction with patients, and main activities undertaken to enhance their use for these purposes. The aim was further to identify potential differences between various types of NQRs for their use in these areas.

Methods: In this multiple case study, nine NQRs were purposively selected. Interviews (n = 18) were conducted and analysed iteratively using conventional and directed content analysis.

Results: A recent national investment initiative enabled more intensive work with development areas previously identified by the NQR management teams. The recent focus on value-based health care and other contemporary national healthcare investments aiming at QI and public benchmarking were perceived as facilitating factors. Having to perform double registrations due to shortcomings in digital systems was perceived as a barrier, as was the lack of authority on behalf of the registry management to request participation in NQRs and QI activities based on registry outcomes. The registry management teams used three strategies to enhance the use of NQRs: ensuring registering of correct and complete data, ensuring updated and understandable information available for patients, clinicians, researchers and others stakeholders, and intensifying cooperation with them. Varied characteristics of the NQRs influenced their use, and the possibility to reach various end-users was connected to the focus area and context of the NQRs.

Conclusions: The recent national investment initiative contributed to already ongoing work to strengthen the use of NQRs. To further increase the use, the demands of stakeholders and end-users must be in focus, but also an understanding of the NQRs' various characteristics and challenges. The end-users may have in common a need for training in the methodology of registry based research and benchmarking, and how to be more patient-centred.

Place, publisher, year, edition, pages
BioMed Central, 2018. Vol. 18, article id 802
Keywords [en]
National quality registry, Clinical registry, Clinical database, Quality improvement, Registry-based research, Patient-centred care
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:umu:diva-154077DOI: 10.1186/s12913-018-3621-9ISI: 000450986500006PubMedID: 30342511OAI: oai:DiVA.org:umu-154077DiVA, id: diva2:1270238
Funder
Vårdal Foundation, 2014-112Available from: 2018-12-12 Created: 2018-12-12 Last updated: 2018-12-12Bibliographically approved

Open Access in DiVA

fulltext(680 kB)29 downloads
File information
File name FULLTEXT01.pdfFile size 680 kBChecksum SHA-512
952edf880b4d8c00f423566c014501ae978585f8b73a5d44ab2898431ad7cea756c8d0693049cbb8f102084fb43be2554d028a1f2b86b1cdcce9f9f902af5624
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Authority records BETA

Nyström, Monica E

Search in DiVA

By author/editor
Nyström, Monica E
By organisation
Epidemiology and Global Health
In the same journal
BMC Health Services Research
Health Care Service and Management, Health Policy and Services and Health Economy

Search outside of DiVA

GoogleGoogle Scholar
Total: 29 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 119 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf