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The Swedish Neonatal Quality Register: contents, completeness and validity
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Paediatrics. Swedish Neonatal Quality Register (SNQ), Västerbotten county council, Umeå, Sweden.
2019 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 108, no 8, p. 1411-1418Article in journal (Refereed) Published
Abstract [en]

Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers.

Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers' agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years.

Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24-34, completeness of SNQ was 98-99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers.

Conclusion: SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019. Vol. 108, no 8, p. 1411-1418
Keywords [en]
Completeness, Newborn infant, Quality of neonatal care, Register, Validation
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:umu:diva-161813DOI: 10.1111/apa.14823ISI: 000474935600009PubMedID: 31006126OAI: oai:DiVA.org:umu-161813DiVA, id: diva2:1342666
Available from: 2019-08-14 Created: 2019-08-14 Last updated: 2019-08-22Bibliographically approved

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Håkansson, Stellan

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CiteExportLink to record
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