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Hope and despair: patients' experiences of being ineligible for transcatheter aortic valve implantation
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine.ORCID iD: 0000-0003-1877-4381
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine.
Umeå University, Faculty of Medicine, Department of Nursing.ORCID iD: 0000-0003-1543-6512
2019 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 18, no 7, p. 593-600Article in journal (Refereed) Published
Abstract [en]

Background: Transcatheter aortic valve implantation may be indicated for patients with aortic stenosis and high risk of postoperative mortality. The assessment of suitability for transcatheter aortic valve implantation requires consensus agreement of a team of cardiologists and cardiac surgeons. The burden of comorbidities, frailty and cognitive impairment are factors included when risks for transcatheter aortic valve implantation are balanced against the expected benefits. Although transcatheter aortic valve implantation is a possibility for many, there are still ineligible patients. Knowledge of their experiences of being deemed ineligible are lacking. Aim: The aim of this study was to explore patients' experiences of being considered for transcatheter aortic valve implantation but judged ineligible. Methods: Individual in-depth interviews were performed with eight persons, and qualitative content analysis was used for the analysis. Results: Being ineligible for transcatheter aortic valve implantation may induce both hope and despair. Hope was linked to experiences of acceptance, relief of symptoms, support and control; despair was associated with feelings of being missed and abandoned, and of grief and insecurity. Some expressed great anxiety, since their incurable heart disease meant an imminent death. Others were more concerned over practical problems that affected everyday life. Conclusion: Being ineligible for transcatheter aortic valve implantation does not necessarily lead to despair. Hope is built through relationships, continuity and support. A combination of person-centred care and palliative care during the end-of-life phase should be offered to patients in order to help clients re-conceptualise hope during this stage of their illness. Cardiovascular nurses in the transcatheter aortic valve implantation team are suitable to facilitate continued care based on the patient's needs, desires and local conditions.

Place, publisher, year, edition, pages
Sage Publications, 2019. Vol. 18, no 7, p. 593-600
Keywords [en]
Aortic stenosis, transcatheter aortic valve implantation, incurable, hope, person-centred care
National Category
Cardiac and Cardiovascular Systems Nursing
Identifiers
URN: urn:nbn:se:umu:diva-164036DOI: 10.1177/1474515119852209ISI: 000487801400010PubMedID: 31113221OAI: oai:DiVA.org:umu-164036DiVA, id: diva2:1361577
Available from: 2019-10-16 Created: 2019-10-16 Last updated: 2019-10-16Bibliographically approved

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Olsson, KarinNäslund, UlfNilsson, JohanHörnsten, Åsa

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Olsson, KarinNäslund, UlfNilsson, JohanHörnsten, Åsa
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European Journal of Cardiovascular Nursing
Cardiac and Cardiovascular SystemsNursing

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