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Patient-reported perceptions of care after the introduction of a new advanced cancer nursing role in Sweden
Umeå University, Faculty of Medicine, Department of Nursing. Regional Cancer Centre, Stockholm, Sweden; Karolinska University Hospital, Theme Cancer, Patient Area Airway, Lung and Skin Cancer, Stockholm, Sweden.
2019 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 41, p. 41-48Article in journal (Refereed) Published
Abstract [en]

Purpose: Extensive research results show quality improvements associated with advanced cancer nursing roles. Despite this, these roles are not implemented in many countries. The aim of this cross-sectional, population-based study was to compare patients' perception of care, before and after the introduction of a new advanced nursing role, the coordination contact nurse (CCN), in a region in Sweden.

Method: All patients (with gynaecological, haematological, Head & Neck, upper gastrointestinal cancers) diagnosed in the region the year prior and one-year post introducing the new CCN role were identified from the Swedish Cancer Register. Data were collected using the European Organization of Research and Treatment of Cancer (EORTQ Quality of Life Questionnaire (QLQ-C30 and QLQ-INFO25) and a study specific questionnaire.

Result: The results, based on baseline (n = 869) and follow-up data (n = 1003), show statistically significant patient-reported improvements after the introduction of the CCN role, regarding health-related patient information (EORTC QLQ- INFO25 global mean score increased from 41.23 to 44.16, p = 0.0006). We found statistically significant improvements related to availability of supportive care resources, e.g. increased reported access to contact nurse (from 53% to 66%, p <= 0.0001) and individual written care plans (from 40% to 54%, p < 0.0001). We also found some improvements related to patient involvement and care coordination, but also room for further developments.

Conclusion: The implementation of the new advanced cancer nursing role may have contributed to important improvements, but it has also identified areas in need of development. Further research with long-term evaluations of CCN roles in other contexts, are both needed and on-going.

Place, publisher, year, edition, pages
Elsevier, 2019. Vol. 41, p. 41-48
Keywords [en]
Cancer, Advanced nursing roles, Nursing, Nurse navigators, Supportive care, Patient-reported data, Care coordination
National Category
Nursing Cancer and Oncology
Identifiers
URN: urn:nbn:se:umu:diva-163698DOI: 10.1016/j.ejon.2019.05.009ISI: 000482249100006PubMedID: 31358256OAI: oai:DiVA.org:umu-163698DiVA, id: diva2:1361679
Available from: 2019-10-16 Created: 2019-10-16 Last updated: 2019-10-16Bibliographically approved

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Ullgren, Helena

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