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Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 generic core scales
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Child and Adolescent Psychiatry.ORCID iD: 0000-0001-6720-2430
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Child and Adolescent Psychiatry.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Epidemiology and Global Health.
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Paediatrics.
2009 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 98, no 9, 1504-1512 p.Article in journal (Refereed) Published
Abstract [en]

Aim:  To study the psychometric performance of the Swedish version of the Pediatric Quality of Life Inventory (PedsQL) 4.0 generic core scales in a general child population in Sweden.

Methods:  PedsQL forms were distributed to 2403 schoolchildren and 888 parents in two different school settings. Reliability and validity was studied for self-reports and proxy reports, full forms and short forms. Confirmatory factor analysis tested the factor structure and multigroup confirmatory factor analysis tested measurement invariance between boys and girls.

Results:  Test-retest reliability was demonstrated for all scales and internal consistency reliability was shown with α value exceeding 0.70 for all scales but one (self-report short form: social functioning). Child-parent agreement was low to moderate. The four-factor structure of the PedsQL and factorial invariance across sex subgroups were confirmed for the self-report forms and for the proxy short form, while model fit indices suggested improvement of several proxy full-form scales.

Conclusion:  The Swedish PedsQL 4.0 generic core scales are a reliable and valid tool for health-related quality of life (HRQoL) assessment in Swedish child populations. The proxy full form, however, should be used with caution. The study also support continued use of the PedsQL as a four-factor model, capable of revealing meaningful HRQoL differences between boys and girls.

Place, publisher, year, edition, pages
2009. Vol. 98, no 9, 1504-1512 p.
Keyword [en]
Child;PedsQL;Quality of life;Sweden;Validation studies
Research subject
Pediatrics
Identifiers
URN: urn:nbn:se:umu:diva-3049DOI: 10.1111/j.1651-2227.2009.01360.xPubMedID: 19570060OAI: oai:DiVA.org:umu-3049DiVA: diva2:141486
Note
Titel i avhandlingens delarbete 3: Psychometric properties of the pediatric quality of life inventory 4.0 generic core scaleAvailable from: 2008-03-20 Created: 2008-03-20 Last updated: 2017-12-14Bibliographically approved
In thesis
1. Recurrent pain and health related quality of life in young schoolchildren
Open this publication in new window or tab >>Recurrent pain and health related quality of life in young schoolchildren
2008 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The objectives of this thesis were 1) to describe the occurrence and co-occurrence of recurrent pain (headache, stomach-ache, and backache) in young school children; 2) to describe Health Related Quality of Life (HRQoL) in these children, from the perspective of the child, 3) to examine the psychometric properties of the PedsQL, a pediatric HRQoL instrument.

Three data collections were performed, two in Umeå, Sweden, and one in a nearby smaller municipality, Lycksele. In Umeå, the first survey included schoolchildren from grades 0-6 and three years later all schoolchildren attending grade three and six were approached. In Lycksele all school children attending grades three through six and grade nine were invited to participate. Pain and quality of life were measured by questionnaires.

The main findings of the thesis were that 2/3 of the children experienced pain from the head, stomach or back recurrently (at least monthly) and 1/3 experienced weekly pain. Weekly headache was reported by 23% of the children, 19 % reported weekly stomach-ache and 7% weekly backache. Half of the children with recurrent pain conditions reported pain from several body sites, and, in children with weekly pain, 2/3 reported multi-site pain. HRQoL in children with recurrent pain problems was markedly impaired, especially in children with multi-site pain and in children with weekly pain. Finally, The Swedish PedsQL self-report forms showed acceptable psychometric properties.

In conclusion, in young schoolchildren, headache, stomach-ache and backache are common conditions associated with a clearly reduced HRQoL. The results show an urgent need for early preventive and curative programs targeting HRQoL domains such as physical, emotional, social and school areas. The results also indicate that recurrent pain should be regarded a potential general pain disorder rather than merely a local disorder. The PedsQL was found to be a reliable and valid measure of HRQoL in young Swedish school-aged children.

Place, publisher, year, edition, pages
Umeå: Pediatrik, 2008. 101 p.
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 1168
Keyword
Pediatrics, Abdominal pain, Back pain, Child, Headache, Pain, Psychometrics, Quality of Life, Schools, validation studies, Pediatrik
Research subject
Pediatrics
Identifiers
urn:nbn:se:umu:diva-1592 (URN)978-91-7264-537-0 (ISBN)
Public defence
2008-04-11, sal B, 9tr, Tandläkarhögskolan, Umeå Universitet, Umeå, 09:00 (English)
Opponent
Supervisors
Available from: 2008-03-20 Created: 2008-03-20 Last updated: 2015-04-29Bibliographically approved

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