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Professional caregivers’ experiences of caring for women with breast cancer on a surgical ward
Umeå University, Faculty of Medicine, Department of Nursing.
2004 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of the thesis was to describe caregivers’ experiences of caring for women with breast cancer on a surgical ward. The study was based on interviews with narrative parts and tape-recorded clinical supervision sessions. The interviews and clinical supervision sessions were transcribed verbatim, and analysed by content analysis.

Nurses (n=10) described life for women with breast cancer as either having freedom or not having freedom, with both physical and existential suffering. Dying occurred either naturally in patients’ own home or unnaturally in hospital. The nurses felt that it is possible to alleviate suffering during dying through providing adequate pain relief but also, through listening, providing information and changing the caring atmosphere (I).

Breast cancer as an illness was described from a dark point of view by caregivers (n=37). The descriptions focused on loss of breasts and control, progression of the illness and annihilation. The illness seemed, in the caregivers’ mind, to often end with a painful death. Caregivers who had the opportunity to follow the total care process described a lighter viewpoint (II).

According to nurses (=31) the most important needs among women, their relatives and nurses themselves were the needs to talk and receive information. There was a discrepancy between what was described as important needs and the descriptions of how these needs were provided for. Nurses, whose own needs for support were sometimes unsatisfactorily met (III), seemed almost to be unaware of the needs among women and their relatives.

In the clinical supervision sessions caregivers reflected on difficult care situations related to women’s, relatives’, and most often caregivers’ feelings (n=38). The care situations were described as evoking feelings of discomfort, powerlessness and reduced self-esteem. These feelings were described by caregivers as arising in connection with caring for especially women with advanced breast cancer in a changing organisation (IV).

Caregivers’ descriptions of caring for women with breast cancer show a lot of negative experiences of powerlessness and frustration. They met women and their relatives who suffered in various ways and had considerable need for support. Caregivers often found themselves unable to meet these needs due to organisational obstacles e.g. lack of time and lack of knowledge about other caregivers’ responsibility in the care.

Place, publisher, year, edition, pages
Umeå: Umeå university , 2004. , 78 p.
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 933
Keyword [en]
breast cancer, caregivers, clinical supervision, content analysis, dying, interviews, needs, suffering, support, surgical care
Research subject
Caring Sciences
Identifiers
URN: urn:nbn:se:umu:diva-371ISBN: 91-7305-773-8 (print)OAI: oai:DiVA.org:umu-371DiVA: diva2:143287
Public defence
2004-12-09, Aulan, Vårdvetarhuset, Umeå, 09:00
Opponent
Available from: 2004-11-18 Created: 2004-11-18 Last updated: 2010-08-31Bibliographically approved
List of papers
1. Life, suffering and dying as narrated by nurses in a surgical ward
Open this publication in new window or tab >>Life, suffering and dying as narrated by nurses in a surgical ward
(English)Article in journal (Refereed) Submitted
Identifiers
urn:nbn:se:umu:diva-4266 (URN)
Available from: 2004-11-18 Created: 2004-11-18 Last updated: 2010-08-31Bibliographically approved
2. Living with breast cancer: care givers’ perceptions in a surgical ward
Open this publication in new window or tab >>Living with breast cancer: care givers’ perceptions in a surgical ward
1998 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 21, no 3, 187-195 p.Article in journal (Refereed) Published
Keyword
Annihilation, Breast cancer, Care giver, Loss, Progression of illness, Surgical ward
National Category
Nursing
Research subject
Caring Sciences
Identifiers
urn:nbn:se:umu:diva-4267 (URN)
Available from: 2004-11-18 Created: 2004-11-18 Last updated: 2017-12-14Bibliographically approved
3. Care of women with breast cancer on a surgical ward: nurses’ opinions of needs for support for women, relatives and themselves
Open this publication in new window or tab >>Care of women with breast cancer on a surgical ward: nurses’ opinions of needs for support for women, relatives and themselves
2002 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 39, no 1, 77-86 p.Article in journal (Refereed) Published
National Category
Nursing
Research subject
Caring Sciences
Identifiers
urn:nbn:se:umu:diva-4268 (URN)10.1046/j.1365-2648.2002.02244.x (DOI)
Available from: 2004-11-18 Created: 2004-11-18 Last updated: 2017-12-14Bibliographically approved
4. Caregivers’ descriptions of patients with advanced breast cancer in connection with supervision sessions in a surgical ward
Open this publication in new window or tab >>Caregivers’ descriptions of patients with advanced breast cancer in connection with supervision sessions in a surgical ward
2001 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 24, no 1, 28-34 p.Article in journal (Refereed) Published
Keyword
Discomfort, Health care professionals, Powerlessness, Reduced self-esteem, Supervision sessions, Surgical ward
National Category
Nursing
Research subject
Caring Sciences
Identifiers
urn:nbn:se:umu:diva-4269 (URN)
Available from: 2004-11-18 Created: 2004-11-18 Last updated: 2017-12-14Bibliographically approved

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CiteExportLink to record
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Citation style
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