Umeå universitets logga

umu.sePublikationer
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Coverage, reporting degree and design of the Swedish quality registry for patients born with cleft lip and/or palate
Visa övriga samt affilieringar
2020 (Engelska)Ingår i: BMC Health Services Research, E-ISSN 1472-6963, Vol. 20, nr 1, artikel-id 528Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: The objective of the Swedish cleft lip and palate (CLP) registry is to promote quality control, research and improvement of treatment, by comparison of the long-term results of surgery, orthodontics and speech from all six Swedish CLP centres. The purpose of the study was to investigate the coverage and reporting degree of the Swedish CLP registry, and to describe the design of the registry and discuss questions of reliability and validity of the data included.

Methods: All six Swedish CLP centres participate in the registry. All children in Sweden with cleft lip and/or cleft palate, born from 2009 onwards, are included in the registry. Baseline data such as cleft type (ICD-10 diagnosis), heredity, birth weight and additional deformities and/or syndromes, as well as pre-surgical treatment, are recorded at first visit. Data on surgical treatment are recorded continuously. Treatment outcome regarding dentofacial development and speech are recorded at follow-ups at 5, 10, 16 and 19 years of age. Data on dentofacial development are also recorded 1 year after orthognathic surgery. In addition, data on babbling and speech are recorded at 18 months of age. Coverage degree and reporting degree of surgery was assessed by comparison with registrations in the Swedish Central patient registry. Reporting degree of orthodontic and speech registrations at 5 years of age was assessed by comparison with registrations at baseline.

Results: The average coverage degree for children born 2009 to 2018 was 95.1%. For cleft-related surgeries, the average reporting degree was 92.4%. Average reporting degree of orthodontic registrations and speech registrations at age 5 years was 92 and 97.5% respectively.

Conclusion: In order to achieve valid and reliable data in a healthcare quality registry, the degree of coverage and reporting needs to be high, the variables included should be limited and checked for reliability, and the professionals must calibrate themselves regularly. The Swedish CLP registry fulfils these requirements.

Ort, förlag, år, upplaga, sidor
BMJ Publishing Group Ltd, 2020. Vol. 20, nr 1, artikel-id 528
Nyckelord [en]
Cleft lip, Cleft palate, Registry, Surgery, Orthodontics, Speech
Nationell ämneskategori
Odontologi
Identifikatorer
URN: urn:nbn:se:umu:diva-173501DOI: 10.1186/s12913-020-05389-xISI: 000543100100001PubMedID: 32522189Scopus ID: 2-s2.0-85086356006OAI: oai:DiVA.org:umu-173501DiVA, id: diva2:1455552
Tillgänglig från: 2020-07-27 Skapad: 2020-07-27 Senast uppdaterad: 2023-03-23Bibliografiskt granskad

Open Access i DiVA

fulltext(1245 kB)195 nedladdningar
Filinformation
Filnamn FULLTEXT01.pdfFilstorlek 1245 kBChecksumma SHA-512
b11da3fe0c4f46c213eb35bf5c59b8e4446fac4f33ba8df9a1edeb7334e9c297d57b67dae77df9c8f2d81e9cd120e275d904b67615e16636bd8157b04bda4165
Typ fulltextMimetyp application/pdf

Övriga länkar

Förlagets fulltextPubMedScopus

Person

Cajander, JennyBrunnegård, Karin

Sök vidare i DiVA

Av författaren/redaktören
Klinto, KristinaCajander, JennyBrunnegård, Karin
Av organisationen
Handkirurgi
I samma tidskrift
BMC Health Services Research
Odontologi

Sök vidare utanför DiVA

GoogleGoogle Scholar
Totalt: 195 nedladdningar
Antalet nedladdningar är summan av nedladdningar för alla fulltexter. Det kan inkludera t.ex tidigare versioner som nu inte längre är tillgängliga.

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 235 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf