umu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Communication and eating proficiency in 125 females with Rett syndrome: The Swedish Rett Center Survey
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Speech and Language Therapy.
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Speech and Language Therapy.
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Speech and Language Therapy.
Show others and affiliations
2006 (Swedish)In: Disability and Rehabilitation, Vol. 28, no 20, 1267-1279 p.Article in journal (Refereed) Published
Abstract [sv]

Purpose. To describe communication and eating proficiency and related factors in Swedish females with Rett syndrome, from a parental/caregiver view.

Method. Data from a questionnaire were used and approach descriptively, qualitatively and comparatively. Parents/caregivers of 125 females with Rett syndrome completed the survey. The mean age of the females was 19.6 years.

Results. Communication: expressive language was limited and the most common way of expressing will was by producing motor acts, 50% of which were higher level of language (eye- and finger-pointing and gestures). Results also showed communicative behaviour was demonstrated during social activity. Eating proficiency: For eight specific types of eating difficulties, the majority of the females suffered from none, one or two of them. There were significant associations of some specific eating difficulties with breathing dysfunctions and food consistency, but not with dental or oral problems.

Conclusions. Results from this study have confirmed that verbal communication in Rett syndrome is limited. Despite a lack of verbal communication the females in this study were reported to need and enjoy special social interplay. Outcomes concerning eating were generally good. For optimal intervention, it is recommended that family and professionals work together to evaluate eating situations and communication ability for females with Rett syndrome.

Place, publisher, year, edition, pages
2006. Vol. 28, no 20, 1267-1279 p.
Keyword [en]
Rett syndrome, communication, eating proficency
Identifiers
URN: urn:nbn:se:umu:diva-6439OAI: oai:DiVA.org:umu-6439DiVA: diva2:146108
Available from: 2007-12-12 Created: 2007-12-12 Last updated: 2011-08-29Bibliographically approved

Open Access in DiVA

No full text

By organisation
Speech and Language Therapy

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 52 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf