Change search
ReferencesLink to record
Permanent link

Direct link
On being dependent on home mechanical ventilation: depictions of patients' experiences over time.
Umeå University, Faculty of Medicine, Nursing.
Umeå University, Faculty of Medicine, Nursing.
Umeå University, Faculty of Medicine, Nursing.
2006 (English)In: Qualitative Health Research, ISSN 1049-7323, Vol. 16, no 7, 881-901 p.Article in journal (Refereed) Published
Abstract [en]

In this study, the authors describe the meanings of experiences of being dependent on a ventilator (HMV) and living at home as narrated by 13 people who had been using a ventilator via a mask or tracheostomy for half a year. The analyses revealed various movements across time toward the goal of using the ventilator successfully, and some narratives depicted suffering caused by care. The analyses also yielded different representations of embodiment. These findings were abstracted into two contrasting meanings of the experience of using HMV over time: a closing in or an opening up of the lived body, oneself, to other people and to the world. The authors illustrate this interpretation with two images. Ignorance and negative attitudes on the part of professionals working and/or managing care in the patients' homes are interpreted as causing suffering and intensifying a closed-in mode of being.

Place, publisher, year, edition, pages
2006. Vol. 16, no 7, 881-901 p.
Keyword [en]
Aged, Aged; 80 and over, Female, Home Care Services, Humans, Interviews as Topic, Male, Middle Aged, Patient Satisfaction, Respiration; Artificial, Sweden
URN: urn:nbn:se:umu:diva-6747DOI: 10.1177/1049732306288578PubMedID: 16894222OAI: diva2:146417
Available from: 2007-12-17 Created: 2007-12-17 Last updated: 2009-11-19Bibliographically approved
In thesis
1. Möten mellan människor och teknologi: berättelser från intensivvårdssjuksköterskor och personer som ventilatorbehandlas i hemmet
Open this publication in new window or tab >>Möten mellan människor och teknologi: berättelser från intensivvårdssjuksköterskor och personer som ventilatorbehandlas i hemmet
2005 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[en]
The meeting between people and technology : interpretation of the narratives of ICU nurses and ´people using ventilators in their own homes
Abstract [en]

The overall aim of this thesis is to illuminate meanings of the relation between human beings, technology and care, as narrated by critical care nurses and people in need of home mechanical ventilation (HMV). The data are based on narrative research interviews with six intensive care nurses (I), 13 people who were about to start HMV (II), these 13 people were interviewed for a second time six to eight months after HMV had started (III), and nine persons with more than two years HMV experience (IV). The text was analysed using a phenomenological-hermeneutic research method as described by Lindseth and Norberg. The method is developed from the writings of the French philosopher Paul Ricoeur.

The findings illuminate meanings of nursing care in an intensive care unit (I) as undertaking the role of advocacy as a caring response to another human being. The basic condition for this caring response depends on the nurses' openness and sensitivity to the needs of patients or patients' next of kin. The nurses were aware of the influence of technology and tried to modify its negative effects. Meanings of becoming dependent on HMV (II) are interpreted and metaphorically expressed as "to get one's breath" and "to hold one's breath" respectively. On the one hand, breathing ensures the cellular oxidation process within the body, but on the other hand there can be "shortness of breath" in "spiritual breathing", and starting HMV will influence patients' whole life situation, body and spirit. After using a ventilator six to eight months, meanings of a life dependent on a ventilator was interpretd as either a closure or an opening of the lived body to oneself, other people and the world. This interpretation is illustrated by two images. A life on a ventilator at home is not to be seen as static being. On the contrary, it is a being which moves and changes over time. Being dependent on a ventilator and living at home, as narrated by adults with more than two years of HMV experience (IV), was interpreted as being able to rise above yourself and your personal boundaries in order to live a good life. These meanings are bound up with experiencing a vital force and interdependency, and despite fragility being able to reach others and the outside world. Design and function of technology had an impact on the lived body.

The comprehensive understanding of the four articles (I-IV) unfolded meanings of the relation between human beings, technology and care, as an interchange and a creation of physical and spiritual energy among humans and between human and technology. It could be an experience of the lived body being filled with as well as emptied of energy. This interpretation points at a call for the caring personnel to be attentive and to listen to the voices of the lived body in health and illness, and to bear witness to those who suffer. Technology acts between the person and the world and in order to be embodied, technology must be "transparent", i.e. beautiful and fit to its use.

Place, publisher, year, edition, pages
Umeå: Omvårdnad, 2005. 81 p.
Umeå University medical dissertations, ISSN 0346-6612 ; 950
Nursing, critical care nursing, home mechanical ventilation, ventilator, home-nursing-professional, home health care, spiritual care, advocacy, testimony, qualitative-studies, phenomenological hermeneutics, Omvårdnad
National Category
Research subject
Caring Sciences
urn:nbn:se:umu:diva-495 (URN)91-7305-842-4 (ISBN)
Public defence
2005-04-29, 13:00 (English)
Available from: 2005-04-08 Created: 2005-04-08 Last updated: 2009-11-19Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Sandman, Per-Olof
By organisation
In the same journal
Qualitative Health Research

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 53 hits
ReferencesLink to record
Permanent link

Direct link