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A moment just for me: Parents’ experiences of an intervention for person-centred information in paediatric oncology
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University Hospital, Clinical Department of Paediatrics, Umeå, Sweden.ORCID iD: 0000-0001-8801-5423
Karlstads universitet.
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University Hospital, Clinical Department of Paediatrics, Umeå, Sweden.ORCID iD: 0000-0001-7064-124X
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University Hospital, Clinical Department of Paediatrics, Umeå, Sweden.ORCID iD: 0000-0002-4316-0245
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2021 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 51, article id 101923Article in journal (Refereed) Published
Abstract [en]

Purpose: Information can help parents of children with cancer by reducing uncertainty and giving them a sense of control in a chaotic situation. Although providing information to parents is a core activity of paediatric oncology nursing, few studies focus on interventions for informing parents. Thus, the aim of this study is to evaluate parents’ experiences after participating in a person-centred information intervention for parents of children with cancer.

Method: This study is part of a process evaluation of a person-centred informational intervention in paediatric oncology for patients’ parents. Qualitative semi-structured interviews with 13 parents who had taken part in the intervention were analysed using qualitative content analysis.

Results: An opening for healing emerged as the overarching theme, consisting of three categories. Gaining a deeper understanding of the entire situation describes how parents benefitted from processing current topics and moving forward by learning. Caring reflections in a safe space describes how parents appreciated having a moment just for themselves and feeling better by venting their feelings. Meeting a competent and compassionate nurse describes how parents experienced trust and being listened to.

Conclusion: Having individual information meetings integrated as a primary nursing responsibility, mediated by competent and compassionate nurses also responsible for the care of the child, could enhance person-centred care and individualise parental education.

Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 51, article id 101923
Keywords [en]
Intervention, Nursing, Paediatric oncology, Parental experience, Person-centred information, Qualitative content analysis, Semi-structured interview
National Category
Nursing
Research subject
caring sciences in social sciences
Identifiers
URN: urn:nbn:se:umu:diva-180615DOI: 10.1016/j.ejon.2021.101923ISI: 000634179100001Scopus ID: 2-s2.0-85101074419OAI: oai:DiVA.org:umu-180615DiVA, id: diva2:1529933
Funder
Swedish Childhood Cancer FoundationAvailable from: 2021-02-19 Created: 2021-02-19 Last updated: 2023-09-05Bibliographically approved

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Ringnér, AndersEriksson, EmmaFrom, Ida

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