Medication self-management toolkits for adults with multiple sclerosis: A scoping reviewLeslie Dan Faculty of Pharmacy, University of Toronto, ON, Toronto, Canada.
Division of Physical Medicine & Rehabilitation, Department of Medicine, University of Alberta, AB, Edmonton, Canada.
Rehabilitation Sciences Institute, Temerty Faculty of Medicine, University of Toronto, ON, Toronto, Canada; St. John's Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, ON, Toronto, Canada; Department of Occupational Science and Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, ON, Toronto, Canada.
Leslie Dan Faculty of Pharmacy, University of Toronto, ON, Toronto, Canada; Institute for Better Health, Trillium Health Partners, ON, Mississauga, Canada; School of Pharmacy, University of Waterloo, ON, Kitchener, Canada; Department of Family and Community Medicine, University of Toronto, ON, Toronto, Canada; Women's College Research Institute, ON, Toronto, Canada.
School of Pharmacy, University of Waterloo, ON, Kitchener, Canada; Schlegel-University of Waterloo Research Institute of Aging, ON, Waterloo, Canada.
Leslie Dan Faculty of Pharmacy, University of Toronto, ON, Toronto, Canada; OpenLab, University Health Network, ON, Toronto, Canada.
Department of Family and Community Medicine, University of Toronto, ON, Toronto, Canada; Women's College Research Institute, ON, Toronto, Canada.
Umeå University, Faculty of Medicine, Department of Nursing. Schools of Occupational Therapy and Health Administration, Dalhousie University, NS, Halifax, Canada.
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2023 (English)In: Exploratory Research in Clinical and Social Pharmacy, E-ISSN 2667-2766, Vol. 10, article id 100282Article, review/survey (Refereed) Published
Abstract [en]
Background: Multiple sclerosis (MS) is an autoimmune disease that is often treated with multiple medications. Managing multiple medications, also known as polypharmacy, can be challenging for persons with MS. Toolkits are instructional resources designed to promote behaviour change. Toolkits may support medication self-management for adults with MS, as they have been useful in other populations with chronic conditions.
Objective: The main purpose of this review was to identify and summarize medication self-management toolkits for MS, as related to the design, delivery, components, and measures used to evaluate implementation and/or outcomes.
Methods: A scoping review was conducted following guidelines by JBI. Articles were included if they focused on adults (18 years or older) with MS.
Results: Six articles reporting on four unique toolkits were included. Most toolkits were technology-based, including mobile or online applications, with only one toolkit being paper-based. The toolkits varied in type, frequency, and duration of medication management support. Varying outcomes were also identified, but there were improvements reported in symptom management, medication adherence, decision-making, and quality of life. The six studies were quantitative in design, with no studies exploring the user experience from a qualitative or mixed-methods design.
Conclusions: There is limited research on medication self-management toolkits among adults with MS. Future development, implementation, and evaluation mixed-methods research are needed to explore user experiences and overall design of toolkits.
Place, publisher, year, edition, pages
Elsevier, 2023. Vol. 10, article id 100282
Keywords [en]
Medication management, Medication self-management, Multiple sclerosis, Scoping review, Self-management, Toolkit
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-210235DOI: 10.1016/j.rcsop.2023.100282ISI: 001135892800001Scopus ID: 2-s2.0-85161606641OAI: oai:DiVA.org:umu-210235DiVA, id: diva2:1772127
2023-06-212023-06-212025-04-24Bibliographically approved