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eHealth literacy and internet use for health information: a study in Swedish primary healthcare
Umeå University, Faculty of Medicine, Department of Nursing.ORCID iD: 0000-0001-6766-2234
2023 (English)Doctoral thesis, comprehensive summary (Other academic)Alternative title
eHälsolitteracitet och internetanvändning för hälsoinformation : en studie inom svensk primärvård (Swedish)
Abstract [en]

Background: Primary healthcare (PHC) is facing significant challenges in Sweden and around the world. One way to address such challenges is through health-related Internet information (HRII) and other eHealth services, which are resources for high-quality, accessible and cost-effective care. Such re­sources have been found to assist in improving individual health, especially for people with chronic conditions such as type 2 diabetes. More specifically, eHealth services may play an important role in increasing patients’ knowledge, engagement and autonomy in health management, as well as enhancing their self-care practices. However, patients must have adequate capabilities – collectively known as eHealth literacy (eHL) – in order to use eHealth services effectively. 

Aim: The overall aim of this thesis was to explore eHL and HRII use in the context of Swedish PHC. 

Methods: Data collection for paper I was conducted through individual interviews with PHNs, which were then analysed using qualitative content analysis. Paper II involved patients with type 2 diabetes who were interviewed individually or responded to open-ended survey questions; the data were analysed using thematic analysis. In paper III, which was a translation and validation study, the data consisted of cognitive interviews and questionnaires predominantly answered by PHC visitors, and employed psychometric analysis methods. The same data from PHC visitors were used in paper IV, in which descriptive and comparative statistics and logistic regression analyses were employed. 

Results: In paper I, the interviewed PHNs expressed mixed feelings regarding consultations with Internet-informed patients. While they recognised benefits such as increased patient engagement and the support of self-care, their responses focused on the challenges they encountered. These challenges included patient confusion and unwarranted anxiety stemming from HRII, as well as conflicted, time-consuming and unnecessary healthcare consultations. In paper II, patients with type 2 diabetes outlined their challenges associated with online COVID-19 information, which encompassed information overload, conflicting content and notable emotional impact. They described employing diverse coping strategies to address these challenges, including restricting their information consumption, relying on authoritative sources, actively evaluating source credibility, engaging in discussions with others and applying common sense. In paper III, the eHealth Literacy Questionnaire (eHLQ) was translated and culturally adapted to assess eHL in a Swedish context. The Swedish version of the eHLQ was found to demonstrate robust psychometric properties. In paper IV, it was determined that older age groups (>60) were assessed with lower eHL in several eHLQ domains, including those regarding motivation and ability to use HRII and digital technology. In addition, older age groups reported that eHealth services did not suit their individual needs. Variables that were found to be independently associated with lower eHL across several domains were advanced age and the perception that HRII was not useful or important. 

Conclusion: Both the patients and PHNs in this thesis encountered challenges related to patients’ acquisition of HRII and utilisation of eHealth services. A collective and important objective for healthcare professionals and authorities should be to facilitate patients’ HRII and eHealth service usage. Therefore, PHNs and other healthcare professionals should actively encourage open discussions with patients about the latter’s HRII findings, recommend credible websites, explore potential barriers to patients’ eHealth usage, motivate patients to use eHealth services and suggest ways for patients to enhance their eHL. Healthcare authorities and eHealth developers are suggested to increasingly involve end-users in the development of eHealth services and provide opportunities for customisation based on individual needs. 

Place, publisher, year, edition, pages
Umeå: Umeå University, 2023. , p. 99
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 2277
Keywords [en]
eHealth, eHealth literacy, health literacy, nursing, primary healthcare, person-centred card care
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-217574ISBN: 9789180702195 (print)ISBN: 9789180702201 (electronic)OAI: oai:DiVA.org:umu-217574DiVA, id: diva2:1818264
Public defence
2024-01-12, Aula Biologica, Biologihuset, Linnaeus väg 7, Umeå, 09:00 (Swedish)
Opponent
Supervisors
Funder
Forte, Swedish Research Council for Health, Working Life and WelfareDiabetesfondenThe Kempe FoundationsAvailable from: 2023-12-15 Created: 2023-12-09 Last updated: 2023-12-11Bibliographically approved
List of papers
1. Primary Health Care Nurses’ Experiences of Consultations With Internet-Informed Patients: Qualitative Study
Open this publication in new window or tab >>Primary Health Care Nurses’ Experiences of Consultations With Internet-Informed Patients: Qualitative Study
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2019 (English)In: JMIR Nursing, ISSN 2562-7600, Vol. 2, no 1, article id e14194Article in journal (Refereed) Published
Abstract [en]

Background: Most people in modern societies now use the Internet to obtain health-related information. By giving patients knowledge, digital health information is considered to increase patient involvement and patient-centered interactions in health care. However, concerns are raised about the varying quality of health-related websites and low health literacy in the population. There is a gap in the current knowledge of nurses’ experiences with Internet-informed patients.

Objective: The objective of this study was to explore primary health care nurses’ experiences of consultations with patients who present health-related information from the Internet.

Methods: This is a qualitative study based on interviews with 9 primary health care nurses. Data were analyzed using qualitative content analysis. Results are reported according to the consolidated criteria for reporting qualitative research guidelines.

Results: The phenomenon of Internet-informed patients was considered to change the usual rules in health care, affecting attributes and actions of patients, patterns of interactions in consultations, and roles of nurses and patients. Three categories were identified: (1) Facing the downsides of Googling, (2) Patients as main actors, and (3) Nurse role challenged. Although the benefits of health-related Internet information were described, its negative consequences were emphasized overall. The problems were mainly ascribed to inaccurate Internet information and patients’ inability to effectively manage the information.

Conclusions: Our study suggests ambivalent attitudes among nurses toward health-related Internet information. In order to promote equitable care in the digital era, increased awareness in health care about useful strategies for overcoming the difficulties and embracing the benefits of conferring with Internet-informed patients seems to be a legitimate goal.

Place, publisher, year, edition, pages
JMIR Publications, 2019
Keywords
eHealth, Internet, consumer health information, health literacy, patient-centered care, qualitative research, primary health care
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-162733 (URN)10.2196/14194 (DOI)
Available from: 2019-08-27 Created: 2019-08-27 Last updated: 2024-07-02Bibliographically approved
2. Experiences of Online COVID-19 Information Acquisition among Persons with Type 2 Diabetes and Varying eHealth Literacy
Open this publication in new window or tab >>Experiences of Online COVID-19 Information Acquisition among Persons with Type 2 Diabetes and Varying eHealth Literacy
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2021 (English)In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 24, article id 13240Article in journal (Refereed) Published
Abstract [en]

During the COVID-19 pandemic, the Internet has been a major source of information for people to keep updated with news and guidelines. However, concerns have been raised about the ‘infodemic’, which includes the overabundance of online information and the spread of misleading information. Adequate eHealth literacy skills among world citizens have therefore been emphasized as vital during the pandemic. Persons with type 2 diabetes have been at increased risk of severe outcomes of COVID-19 disease. 

This study aimed to explore online COVID-19 information acquisition experiences among persons with type 2 diabetes and varying eHealth literacy. Fifty-eight participants filled out the eHealth Literacy Scale (eHEALS), along with a qualitative questionnaire with free-text questions. Additionally, 10 participants were interviewed. Thematic analysis was applied to identify patterns in participants’ experiences. Two domains were identified: perceived challenges with online information about COVID-19, and coping strategies to manage challenges. The perceived challenges were: being exposed to information overload, dealing with conflicting information, and being strongly emotionally affected. The related coping strategies were: protecting oneself, trusting authorities, taking command, and using common sense. 

These strategies often involved triangulation of the information obtained, including participants consulting their common sense, various sources, or family and friends. This paper highlights the crucial role of authorities in delivering online information, that according to health literacy principles, is easy to access, understand, and use. Furthermore, our results reinforce the importance of diabetes nurses, as well as healthcare professionals in general, in encouraging patients to share their Internet findings, promote information from reliable sources, and deliver tailored information that suits individual needs. Because our results underline the importance of social support in eHealth literacy and the assessment of online health information, the inclusion of family and friends needs to be increasingly considered in diabetes care. Due to the small homogenous sample, the results of this study cannot be generalized. However, the reader can assess the transferability to other situations and settings based on our contextual descriptions.

Place, publisher, year, edition, pages
MDPI, 2021
Keywords
COVID-19, eHealth literacy, type 2 diabetes, online health information, health literacy, distributed health literacy, nursing
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-190739 (URN)10.3390/ijerph182413240 (DOI)000737910700001 ()2-s2.0-85121114972 (Scopus ID)
Funder
Swedish Diabetes Association
Available from: 2021-12-23 Created: 2021-12-23 Last updated: 2023-12-09Bibliographically approved
3. The Swedish version of the eHealth literacy questionnaire: Translation, cultural adaptation, and validation study
Open this publication in new window or tab >>The Swedish version of the eHealth literacy questionnaire: Translation, cultural adaptation, and validation study
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2023 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 25, article id e43267Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: With the increasing digitalization in health care, an effective instrument is necessary to assess health care consumers' digital competencies-their "eHealth literacy." The 7-scale eHealth Literacy Questionnaire (eHLQ), based on the theoretically robust eHealth Literacy Framework, has shown strong psychometric properties in Denmark and Australia.

OBJECTIVE: The aim of this study was to translate, culturally adapt, and evaluate the psychometric properties of the Swedish version of the eHLQ.

METHODS: We followed the Translation Integrity Procedure guidelines to translate and culturally adapt the questionnaire to Swedish using forward and backward translations, review by an expert panel, and cognitive interviewing. The psychometric properties of the Swedish eHLQ were investigated by evaluating its internal consistency (Cronbach α) and a priori-defined factor structure (confirmatory factor analysis).

RESULTS: A total of 236 primary health care patients and parents of hospitalized children were included in the validation analysis. The mean age was 48.5 years, and 129 (55%) were women. All 7 eHLQ scales showed good internal consistency, with the Cronbach α ranging from .82 to .92. Single-factor and 7-factor confirmatory factor analysis showed satisfactory model-fit values. With one exception, all items demonstrated satisfactory loadings on their respective factors.

CONCLUSIONS: The Swedish eHLQ demonstrated strong psychometric properties. It has the potential as a useful tool for a variety of purposes, including population surveys, intervention evaluations, and eHealth service implementations.

Place, publisher, year, edition, pages
JMIR publications, 2023
Keywords
cultural adaptation, digital health, eHLQ, eHealth, eHealth literacy, health literacy, validation
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-206994 (URN)10.2196/43267 (DOI)37043268 (PubMedID)2-s2.0-85152474327 (Scopus ID)
Funder
Swedish Diabetes AssociationForte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2023-04-24 Created: 2023-04-24 Last updated: 2024-01-17Bibliographically approved
4. eHealth literacy and health-related internet use among Swedish primary healthcare visitors
Open this publication in new window or tab >>eHealth literacy and health-related internet use among Swedish primary healthcare visitors
(English)Manuscript (preprint) (Other academic)
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Nursing
Identifiers
urn:nbn:se:umu:diva-217656 (URN)
Available from: 2023-12-11 Created: 2023-12-11 Last updated: 2023-12-11

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