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Pain prevalence and pain relief in end-of-life care: a national registry study
Department of Molecular Medicine and Surgery, Karolinska Institutet, Karolinska University Hospital, Solna, Stockholm, Sweden; R & D Department, Stockholms Sjukhem Foundation, Stockholm, Sweden; Department of Clinical Sciences Lund, Lund University, Lund, Sweden.
R & D Department, Stockholms Sjukhem Foundation, Stockholm, Sweden; Department of Neurobiology, Care Sciences and Society (NVS), Division of Clinical Geriatrics, Karolinska Institutet, Huddinge, Sweden.
R & D Department, Stockholms Sjukhem Foundation, Stockholm, Sweden; Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden.
Department of Clinical Sciences Lund, Lund University, Lund, Sweden.
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2024 (English)In: BMC Palliative Care, E-ISSN 1472-684X, Vol. 23, no 1, article id 171Article in journal (Refereed) Published
Abstract [en]

Background: Despite pain control being a top priority in end-of-life care, pain continues to be a troublesome symptom and comprehensive data on pain prevalence and pain relief in patients with different diagnoses are scarce.

Methods: The Swedish Register of Palliative Care (SRPC) was used to retrieve data from 2011 to 2022 about pain during the last week of life. Data were collected regarding occurrence of pain, whether pain was relieved and occurrence of severe pain, to examine if pain differed between patients with cancer, heart failure, chronic obstructive pulmonary disease (COPD) and dementia. Binary logistic regression models adjusted for sex and age were used.

Results: A total of 315 000 patients were included in the study. Pain during the last week of life was more commonly seen in cancer (81%) than in dementia (69%), heart failure (68%) or COPD (57%), also when controlled for age and sex, p < 0.001. Severe forms of pain were registered in 35% in patients with cancer, and in 17–21% in non-cancer patients. Complete pain relief (regardless of pain intensity) was achieved in 73–87% of those who experienced pain, depending on diagnosis. The proportion of patients with complete or partial pain relief was 99.8% for the whole group.

Conclusions: The occurrence of pain, including severe pain, was less common in patients with heart failure, COPD or dementia, compared to patients with cancer. Compared with cancer, pain was more often fully relieved for patients with dementia, but less often in heart failure and COPD. As severe pain was seen in about a third of the cancer patients, the study still underlines the need for better pain management in the imminently dying.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2024. Vol. 23, no 1, article id 171
Keywords [en]
Cancer, COPD, Dementia, End-of-life care, Hearth failure, Pain, Palliative care, Symptom management
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-227990DOI: 10.1186/s12904-024-01497-1ISI: 001272274500001PubMedID: 39004730Scopus ID: 2-s2.0-85198508396OAI: oai:DiVA.org:umu-227990DiVA, id: diva2:1885385
Available from: 2024-07-23 Created: 2024-07-23 Last updated: 2025-04-24Bibliographically approved

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