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Client perceptions of the individual Packer managing fatigue program: a mixed-method evaluation
Dalhousie University, NS, Halifax, Canada.
Umeå University. Dalhousie University, NS, Halifax, Canada.ORCID iD: 0000-0003-4831-7691
Dalhousie University, NS, Halifax, Canada.
Radboud University, Nijmegen, Netherlands.
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2024 (English)In: OTJR (Thorofare, N.J.), ISSN 1539-4492, E-ISSN 1938-2383, Vol. 44, no 4, p. 632-641Article in journal (Refereed) Published
Abstract [en]

Fatigue is common, but under-recognized in Parkinson’s disease (PD), with limited treatment options. The aim of this study is to explore the experience of people with PD (PwPD) regarding content and delivery of the individual Packer Managing Fatigue program. This mixed-method study (n = 12) was conducted concurrently with a pilot randomized controlled trial. Data were collected using questionnaires, interviews, and focus groups. Five themes emerged: the program is helpful; the program has strengths; areas for improvement; individual online delivery is feasible; and more support from occupational therapist would be helpful. Quantitative findings confirmed feasibility with high ratings on questionnaires and confidence to use learned strategies. The findings inform future implementation of the Packer Managing Fatigue program and contribute to understanding the needs of PwPD. Future studies might explore program’s effectiveness as stand-alone treatment or in combination with other approaches. Tailoring fatigue programs to PwPD’s unique needs and characteristics of PD fatigue is suggested.

Place, publisher, year, edition, pages
Sage Publications, 2024. Vol. 44, no 4, p. 632-641
Keywords [en]
intervention, mixed methods, occupational performance, occupational therapy, Parkinson’s disease
National Category
Occupational Therapy Nursing
Identifiers
URN: urn:nbn:se:umu:diva-228437DOI: 10.1177/15394492241262740ISI: 001281793800001PubMedID: 39086144Scopus ID: 2-s2.0-85200250250OAI: oai:DiVA.org:umu-228437DiVA, id: diva2:1888894
Available from: 2024-08-14 Created: 2024-08-14 Last updated: 2024-10-24Bibliographically approved

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Packer, Tanya L.

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CiteExportLink to record
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