The everyday life of adolescent coeliacs: issues of importance for compliance with the gluten-free diet.
2008 (English)In: Journal of human nutrition and dietetics (Print), ISSN 0952-3871, E-ISSN 1365-277X, Vol. 21, no 4, 359-67 p.Article in journal (Refereed) Published
Background: Noncompliance with the gluten-free diet is often reported among adolescents with coeliac disease. However, knowledge is limited regarding their own perspectives and experiences of managing the disease and the prescription of a gluten-free diet. The aim of this study was to explore how adolescents with coeliac disease perceive and manage their everyday lives in relation to a gluten-free diet.METHODS: In total, 47 adolescents with coeliac disease, divided into 10 focus groups, were interviewed. In the qualitative analysis, themes emerged to illustrate and explain the adolescents' own perspectives on life with a gluten-free diet.RESULTS: The probability of compliance with the gluten-free diet was comprised by insufficient knowledge of significant others, problems with the availability and sensory acceptance of gluten-free food, insufficient social support and their perceived dietary deviance. Three different approaches to the gluten-free diet emerged: compliers, occasional noncompliers, and noncompliers. Each approach, as a coping strategy, was rational in the sense that it represented the adolescents' differing views of everyday life with coeliac disease and a prescription of a gluten-free diet.CONCLUSIONS: dolescents with coeliac disease experience various dilemmas related to the gluten-free diet. The study demonstrated unmet needs and implies empowerment strategies for optimum clinical outcomes.
Place, publisher, year, edition, pages
Wiley Blackwell , 2008. Vol. 21, no 4, 359-67 p.
adolescent, celiac disease, focus groups, gluten-free diet, patient compliance
Social Sciences Interdisciplinary Nutrition and Dietetics Public Health, Global Health, Social Medicine and Epidemiology
Research subject Food and Nutrition
IdentifiersURN: urn:nbn:se:umu:diva-19998DOI: 10.1111/j.1365-277X.2008.00867.xPubMedID: 18754144OAI: oai:DiVA.org:umu-19998DiVA: diva2:207890