Food that makes you different: the stigma experienced by adolescents with celiac disease
2009 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 19, no 7, 976-984 p.Article in journal (Refereed) Published
For adolescents with celiac disease (CD), a gluten-free diet(GFD) is crucial for health, but compliance is problematic andnoncompliance is common even among those aware of the risks.To better understand their lives with the disease, Swedish CDadolescents were invited to take part in focus group discussions.Data were analyzed for recurrent stigma-related themes acrossthe groups. Adolescents described an awareness of being differentfrom others that was produced by meal appearance and the pooravailability of gluten-free food. The GFD often required discussionsand special requests, so eating in public had the effect ofmaking an invisible condition visible, and thereby creatinga context for felt or enacted stigma. Maintaining invisibilityavoided negative consequences of stigma, and other strategieswere used to reduce the costs of visibility. The results ofthe study show that the GFD can produce stigma experiences inadolescence, and that dietary compliance (or lack thereof) canbe understood in terms of dealing with GFD concealment and disclosure.
Place, publisher, year, edition, pages
Sage Publications , 2009. Vol. 19, no 7, 976-984 p.
adolescents, chronic illness, dietetics, focus groups, lived experience, social constructionism, stigma
Research subject Food and Nutrition
IdentifiersURN: urn:nbn:se:umu:diva-26934DOI: 10.1177/1049732309338722OAI: oai:DiVA.org:umu-26934DiVA: diva2:275138