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Constantly changing lives: experiences of people with multiple sclerosis
Department of Health Sciences, Lund University, Lund, Sweden.
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Occupational Therapy.
Department of Health Sciences, Lund University, Lund, Sweden.
2009 (English)In: American Journal of Occupational Therapy, Vol. 63, no 6, 772-781 p.Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory. The findings encompassed the cothe category “essentials of a constantly changing life,” showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden   their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity.

Place, publisher, year, edition, pages
2009. Vol. 63, no 6, 772-781 p.
Keyword [en]
human activities, identification (psychology), life change events, multiple sclerosis, social environment
URN: urn:nbn:se:umu:diva-37348OAI: diva2:359488
Available from: 2010-10-28 Created: 2010-10-28 Last updated: 2016-03-11Bibliographically approved

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