Comforting the comforters: descriptions of comfort in the social networks surrrounding a seriously ill and ultimately dying child
(English)Manuscript (preprint) (Other academic)
The death of a child is considered to be one of the greatest losses a parent can sustain and an extremely stressful experience for nurses. Those who provide comfort, i.e. the comforters, may also need comfort in this difficult situation yet little is known about who and what comforts comforters. The aim of this study was to describe who and what comforted the comforters of a seriously ill and ultimately dying child, as narrated by the child’s mother and nurse. The interviews with mother and nurse were analysed using content analysis. Persons and activities who comforted were outlined in a sociogram (Figure 1). The findings showed that the mother received comfort from her child and family, the nurse, the extended family and others close to the family. She found comfort in being involved in the care and sharing worries with the nurse and other hospital staff and in self-comfort. Siblings found comfort in each other, in living everyday life and in music and making drawings. The nurse gained comfort from sharing hardships with colleagues and a relative and from making a difference to the child. The findings provide a picture of interacting comforting networks that can surround a seriously ill child.
child, comfort, drawing, family, palliative care, social network, sociogram
Research subject Caring Sciences
IdentifiersURN: urn:nbn:se:umu:diva-37731OAI: oai:DiVA.org:umu-37731DiVA: diva2:369749