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Systemic lupus erythematosus and cardiac risk factors: medical record documentation and patient adherence
Department of Rheumatology, Östersund Hospital, Sweden .
Department of Rheumatology, Institute of Clinical Sciences, Lund University Hospital, Sweden .
Division of Rheumatology, Immunology and Allergy, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, USA .
2Department of Rheumatology, Institute of Clinical Sciences, Lund University Hospital, Sweden .
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2011 (English)In: Lupus, ISSN 0961-2033, E-ISSN 1477-0962, Vol. 20, no 10, 1057-1062 p.Article in journal (Refereed) Published
Abstract [en]

This study explores patients' knowledge of cardiac risk factors (CRFs), analyses how information and advice about CRFs are documented in clinical practice, and assesses patient adherence to received instructions to decrease CRFs. Systemic lupus erythematosus (SLE) patients with >= 4 ACR criteria participated through completing a validated cardiovascular health questionnaire (CHQ). Kappa statistics were used to compare medical records with the self-reported CHQ (agreement) and to evaluate adherence. Two hundred and eleven (72%) of the known patients with SLE participated. The mean age of the patients was 55 years. More than 70% of the SLE patients considered hypertension, obesity, smoking and hypercholesterolaemia to be very important CRFs. The agreement between medical record documentation and patients' reports was moderate for hypertension, overweight and hypercholesterolaemia (kappa 0.42-0.60) but substantial for diabetes (kappa 0.66). Patients' self-reported adherence to advice they had received regarding medication was substantial to perfect (kappa 0.65-1.0). For lifestyle changes in patients with hypertension and overweight, adherence was only fair to moderate (kappa 0.13-0.47). Swedish SLE patients' awareness of traditional CRFs was good in this study. However, the agreement between patients' self-reports and medical record documentation of CRF profiles, and patients' adherence to medical advice to CRF profiles, could be improved. Lupus (2011) 20, 1057-1062.

Place, publisher, year, edition, pages
Houndmills, Basingstoke, Hampshire: Stockton , 2011. Vol. 20, no 10, 1057-1062 p.
Keyword [en]
adherence, agreement, cardiovascular risk factor, patient record, systemic lupus erythematosus
National Category
Rheumatology and Autoimmunity
URN: urn:nbn:se:umu:diva-47642DOI: 10.1177/0961203311403639ISI: 000294839100008OAI: diva2:445311
Available from: 2011-10-03 Created: 2011-09-27 Last updated: 2011-10-31Bibliographically approved

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