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A Human-Driven Supportive Framework For The Personalized Delivery of Direct-to-Consumer Genetic Testing Data
Umeå University, Faculty of Science and Technology, Umeå Institute of Design.
2012 (English)Independent thesis Advanced level (degree of Master (Two Years)), 20 credits / 30 HE creditsStudent thesis
Abstract [en]

We currently live in an era where the cost of sequencing a part of the personal human genome is becoming increasingly accessible to the average person. This project focuses on the near future increased accessibility of the Direct-to-Consumer (DTC) genetic testing services. It is an investigation of how we can challenge the way we currently interact with our personal genetic data and fundamentally what it means to know this type of information.

It explores the personal, familial an societal interactions present and said to emerge through this increased accessibility. Starting from a personal experience with DTC genetic testing this project has widened it’s scope to look at how the average person might want discover themselves from the inside out.

This is an interaction and experience design project that is grounded in research from both the field of genetics and medicine and everyday people. It addresses questions surrounding scientific knowledge, genetic connections, fear of the unfamiliar, the amount and type of information and lack of testing support infrastructure.

Furthermore this project is about developing a framework for the everyday user to explore their personal genome in a more personalized and supportive way, while looking at things through a relatively near future and critical lens. It also hopes to provide a place where familial and close bond connections are cherished.

Place, publisher, year, edition, pages
Keyword [en]
personal human genome, Direct-to-Consumer (DTC) genetic testing services, genetics
National Category
URN: urn:nbn:se:umu:diva-58483OAI: diva2:549881
Subject / course
Degree Project, Interaction Design
Educational program
Master's programme in Interaction Design
Available from: 2012-09-05 Created: 2012-08-30 Last updated: 2012-09-05Bibliographically approved

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