A person-centred intervention for information to parents of children with cancer: experiences and effects
(English)Manuscript (preprint) (Other academic)
Objective. The aim of this paper was to describe the experiences and effects of participating in a person-centred information intervention aimed at parents of children with cancer.
Methods. Eight parents participated in the intervention, which started two months after the child’s diagnosis and was based upon the representational approach for patient education. A mixed method approach was employed. The experiences were captured via qualitative interviews and the effects were evaluated using a single-case design with web-based questionnaires.
Results. Parents expressed a high satisfaction with the intervention, as reported in the follow-up interviews and/or in the scale measuring satisfaction. However, no changes were seen in the measures for psychosocial distress.
Conclusion. The intervention was feasible and appreciated by parents but further research is needed considering the effect on parental perceived stress.
information, interventions, mixed methods, paediatric oncology, parents, patient-centred information, single-case design
Research subject omvårdnadsforskning med samhällsvetenskaplig inriktning
IdentifiersURN: urn:nbn:se:umu:diva-68728OAI: oai:DiVA.org:umu-68728DiVA: diva2:618972