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Breakpoint communication about transition to end-of-life care: context, content and consequences
Umeå University, Faculty of Medicine, Department of Radiation Sciences, Oncology.
2013 (English)Licentiate thesis, comprehensive summary (Other academic)
Place, publisher, year, edition, pages
Umeå: Umeå Universitet , 2013. , 68 p.
Keyword [en]
communication, end-of-life care, cancer, transition, medical record study, register study
National Category
Cancer and Oncology
Research subject
Oncology
Identifiers
URN: urn:nbn:se:umu:diva-79471ISBN: 978-91-7459-620-5 (print)OAI: oai:DiVA.org:umu-79471DiVA: diva2:641905
Presentation
2013-05-24, Skiffersalen, Norrlands Universitetssjukhus, Umeå, 07:29 (Swedish)
Opponent
Supervisors
Available from: 2013-08-26 Created: 2013-08-20 Last updated: 2013-08-26Bibliographically approved
List of papers
1. Information of imminent death or not: does it make a difference?
Open this publication in new window or tab >>Information of imminent death or not: does it make a difference?
2011 (English)In: Journal of Clinical Oncology, ISSN 0732-183X, E-ISSN 1527-7755, Vol. 29, no 29, 3927-3931 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: This study examines whether end-of-life care for patients with cancer who were informed about imminent death differs from care for those patients with cancer who were not informed.

Patients and Methods: This study included all cancer deaths between 2006 and 2008 for which the patient did not lose his or her decision-making capacities until hours or days before death (N=13,818). These patients were taken from a national quality register for end-of-life care. The majority of the patients—91% (n=12,609) —had been given information about imminent death; 9% (n=1,209) had not been informed. Because of the difference in sample size, a matching procedure was performed to minimize bias. This resulted in a comparison of 1,191 informed and 1,191 uniformed patients. Nonparametric methods were used for statistical analyses.

Results: Informed patients significantly more often had parenteral drugs prescribed as needed (ie, PRN), had his or her family informed, died in his or her preferred place, and had family who were offered bereavement support. There was no difference in symptom control (ie, pain, anxiety, confusion, nausea, and respiratory tract secretions) between the groups.

Conclusion: Providing information of imminent death to a patient with cancer at the end of life does not seem to increase pain or anxiety, but it does seem to be associated with improved care and to increase the likelihood of fulfilling the principles of a good death.

Place, publisher, year, edition, pages
Orlando, FL: Grune & Stratton, 2011
National Category
Cancer and Oncology
Identifiers
urn:nbn:se:umu:diva-48715 (URN)10.1200/JCO.2011.34.6247 (DOI)21911715 (PubMedID)
Available from: 2011-10-27 Created: 2011-10-27 Last updated: 2017-12-08Bibliographically approved
2. Transition to End-of-Life Care in End-Stage Cancer: Triggers, Timing, Context, and Consequences of Breakpoint Communications
Open this publication in new window or tab >>Transition to End-of-Life Care in End-Stage Cancer: Triggers, Timing, Context, and Consequences of Breakpoint Communications
(English)Manuscript (preprint) (Other academic)
Keyword
communication, end-of-life care, cancer
National Category
Cancer and Oncology
Research subject
Oncology
Identifiers
urn:nbn:se:umu:diva-79455 (URN)
Available from: 2013-08-19 Created: 2013-08-19 Last updated: 2013-08-26

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Lundquist, Gunilla

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Citation style
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More languages
Output format
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