Change search
ReferencesLink to record
Permanent link

Direct link
Perceptions of living with a device-based treatment: an account of patients treated with deep brain stimulation for Parkinson’s disease
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Occupational Therapy. Umeå University, Faculty of Medicine, Department of Pharmacology and Clinical Neuroscience, Clinical Neuroscience.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Family Medicine.
2014 (English)In: Neuromodulation (Malden, Mass.), ISSN 1094-7159, E-ISSN 1525-1403, Vol. 17, no 3, 272-278 p.Article in journal (Refereed) Published
Abstract [en]

Objectives Deep brain stimulation (DBS) is an established treatment for Parkinson's disease. Little is known about patients' own perceptions of living with the implanted hardware. We aimed to explore patients' own perceptions of living with an implanted device. Materials and Methods Semistructured interviews with open-ended questions were conducted with 42 patients (11 women) who had been on DBS for a mean of three years. The questions focused on patients' experiences of living with and managing the DBS device. The interviews were transcribed verbatim and analyzed according to the difference and similarity technique in grounded theory. Results From the patients' narratives concerning living with and managing the DBS device, the following four categories emerged: 1) The device—not a big issue: although the hardware was felt inside the body and also visible from outside, the device as such was not a big issue. 2) Necessary carefulness: Patients expressed the need to be careful when performing certain daily activities in order not to dislocate or harm the device. 3) Continuous need for professional support: Most patients relied solely on professionals for fine-tuning the stimulation rather than using their handheld controller, even if this entailed numerous visits to a remote hospital. 4) Balancing symptom relief and side-effects: Patients expressed difficulties in finding the optimal match between decrease of symptoms and stimulation-induced side-effects. Conclusions The in-depth interviews of patients on chronic DBS about their perceptions of living with an implanted device provided useful insights that would be difficult to capture by quantitative evaluations.

Place, publisher, year, edition, pages
2014. Vol. 17, no 3, 272-278 p.
Keyword [en]
deep brain stimulation, grounded theory, Parkinson’s disease, patient perspective, qualitative method
National Category
Neurology Occupational Therapy
Research subject
Occupational therapy; Family Medicine; Neurosurgery; Neurology
URN: urn:nbn:se:umu:diva-80537DOI: 10.1111/ner.12073ISI: 000335154500011OAI: diva2:650238
Swedish Research Council
Available from: 2013-09-20 Created: 2013-09-20 Last updated: 2016-06-15Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full text

Search in DiVA

By author/editor
Hariz, Gun-MarieHamberg, Katarina
By organisation
Occupational TherapyClinical NeuroscienceFamily Medicine
In the same journal
Neuromodulation (Malden, Mass.)
NeurologyOccupational Therapy

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 54 hits
ReferencesLink to record
Permanent link

Direct link