A matter of life and death: practical and ethical constraints in the development of a mobile verbal autopsy tool
2013 (English)In: CHI '13 Proceedings of the SIGCHI Conference on Human Factors in Computing SystemsPages 1489-1498, 2013, 1489-1498 p.Conference paper (Refereed)
Verbal autopsy (VA) involves interviewing relatives of the deceased to identify the probable cause of death and is typically used in settings where there is no official system for recording deaths or their causes. Following the interview, physician assessment to determine probable cause can take several years to complete. The World Health Organization (WHO) recognizes that there is a pressing need for a mobile device that combines direct data capture and analysis if this technique is to become part of routine health surveillance. We conducted a field test in rural South Africa to evaluate a mobile system that we designed to meet WHO requirements (namely, simplicity, feasibility, adaptability to local contexts, cost-effectiveness and program relevance). If desired, this system can provide immediate feedback to respondents about the probable cause of death at the end of a VA interview. We assessed the ethical implications of this technological development by interviewing all the stakeholders in the VA process (respondents, fieldworkers, physicians, population scientists, data managers and community engagement managers) and highlight the issues that this community needs to debate and resolve.
Place, publisher, year, edition, pages
2013. 1489-1498 p.
, Conference on Human Factors in Computing Systems - Proceedings
Ethics, HCI4D, Mobile devices, Verbal autopsy
Public Health, Global Health, Social Medicine and Epidemiology
IdentifiersURN: urn:nbn:se:umu:diva-83229DOI: 10.1145/2470654.2466198ISBN: 978-1-4503-1899-0OAI: oai:DiVA.org:umu-83229DiVA: diva2:666259
31st Annual CHI Conference on Human Factors in Computing Systems: Changing Perspectives, CHI 2013, 27 April 2013 through 2 May 2013, Paris