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Validity of ankylosing spondylitis and spondyloarthritis diagnoses in the Swedish National Patient Register
Department of Rheumatology and Inflammation Research, Institute of Medicine, Sahlgrenska Academy, Gothenburg.
Section of Rheumatology, Department of Clinical Sciences, Lund University, Lund.
Department of Rheumatology, Falun Hospital, Falun.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Reumatology.
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2014 (English)In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 73, 625-626 p.Article in journal, Meeting abstract (Other academic) Published
Abstract [en]

Background: Epidemiological studies of spondyloarthritis (SpA) are scarce. Using ICD-codes from the Swedish National Patient Register (NPR) offers unique possibilities for such studies. For this purpose, the validity of these ICD-codes needs to be determined.Objectives: To validate the ICD-codes for ankylosing spondylitis (AS) and SpA in the NPR against established classification criteria (modified New York (mNY), ASAS, Amor and ESSG criteria).Methods: All patients with an ICD-code of AS or SpA in the NPR 1966-2009 at a visit to a specialist in rheumatology or internal medicine, or corresponding hospitalization, were identified (n=20074). Following a structured procedure to achieve geographical representativeness, 500 random patients with a registered diagnosis of AS or SpA in 2007-2009 were selected. A structured review of clinical records, with extraction of necessary information for the established classification criteria was performed and positive predictive values (PPV) were calculated.Results: In this cohort 11472 (34% women) patients had received an AS diagnosis and 11004 (56% women) a SpA diagnosis. The overlap group having received both types of diagnoses had similar frequencies for fulfillment of mNY criteria, symptoms and signs of back disease as the group having been coded as AS only.Of those being coded as AS only, the PPV for fulfilling the mNY, any criteria set and any of the included criteria elements were 70%, 89% and 96% respectively.Of those with SpA (without AS ever) the corresponding PPV values were 20%, 79% and 99% respectively.Conclusions: A diagnosis of AS or SpA (without AS) had a high validity, suggesting that case identification based on ICD-codes in the Swedish NPR can be used for epidemiological studies of these diseases.

Place, publisher, year, edition, pages
BMJ Publishing Group , 2014. Vol. 73, 625-626 p.
National Category
Rheumatology and Autoimmunity
URN: urn:nbn:se:umu:diva-92068DOI: 10.1136/annrheumdis-2014-eular.2817ISI: 000346919803295OAI: diva2:739476
15th Annual European Congress of Rheumatology (EULAR), JUN 11-14, 2014, Paris, FRANCE

Supplement: 2, Meeting Abstract: SAT0098

Available from: 2014-08-21 Created: 2014-08-21 Last updated: 2015-07-14Bibliographically approved

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