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Narrating narcolepsy: centering a side effect
Umeå University, Faculty of Arts, Department of culture and media studies. (Epidemics,Vaccination and the Power of Narratives)
2015 (English)In: Medical Anthropology, ISSN 0145-9740, E-ISSN 1545-5882, Vol. 34, no 2, 150-165 p.Article in journal (Refereed) Published
Abstract [en]

The mass-vaccination with Pandemrix was the most important preventive measure in Sweden during the A(H1N1) influenza pandemic of 2009–2010, and covered 60% of the population. From 2010, an increased incidence of the neurological disease narcolepsy was reported, and an association with Pandemrix was affirmed for more than 200 children and young adults. The parental experience of this side effect provided a starting point for a collectively shaped critical narrative to be acted out in public, but also personalized narratives of continual learning about the disease and its consequences. This didactic functionality resulted in active meaning-making practices about how to handle the aftermath—using dark humor, cognitive tricks, and making themselves and their children’s bodies both objects and subjects of knowledge. Using material from interviews with parents, this mixing of knowledge work and political work, and the potential for reflective consciousness, is discussed.

Place, publisher, year, edition, pages
Taylor and Francis Online , 2015. Vol. 34, no 2, 150-165 p.
Keyword [en]
A(H1N1), mass-vaccination, narcolepsy, parents´ narratives, side effects
National Category
Other Humanities
Research subject
URN: urn:nbn:se:umu:diva-97016DOI: 10.1080/01459740.2014.962694ISI: 000351434100005ScopusID: 2-s2.0-84915822489OAI: diva2:769743
Epidemics, Vaccination and the Power of Narratives
Marcus and Amalia Wallenberg Foundation
Available from: 2014-12-09 Created: 2014-12-09 Last updated: 2016-06-02Bibliographically approved

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Lundgren, Britta
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