A phenomenological study of fibromyalgia: Patient perspectives
1999 (English)In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 17, no 1, 11-16 p.Article in journal (Refereed) Published
OBJECTIVE: To describe the way in which the fibromyalgia patients understand the meaning of their illness. DESIGN: Qualitative, empirical phenomenological psychological method. SETTING: A collaborative transdisciplinary interview study of patients' described experiences of living with fibromyalgia. No therapeutic relationships existed between patients and researchers. SUBJECTS: Eighteen patients with fibromyalgia were interviewed. Ten of the 18 taped interviews were transcribed and analysed. MAIN OUTCOME MEASURES: Patients' narratives, described experiences of living with fibromyalgia. RESULTS: The patients were intensively involved in efforts to get their self-images as ill persons confirmed. Their experience was that the disease started dramatically, with a variety of capriciously appearing symptoms of unknown cause that gave rise to the suffering. The fibromyalgia patients seemed to develop strategies to cope with a precarious self-image and find ways to manage the thought of what the future would bring. CONCLUSION: The meaning structures revealed in the patients' ways of describing their experiences of living with fibromyalgia seemed to be partially constituted by their efforts to stand forth as afflicted with a disease, which could be a way to help them to manage the demands that they placed upon themselves.
Place, publisher, year, edition, pages
Taylor & Francis, 1999. Vol. 17, no 1, 11-16 p.
Fibromyalgia -- Psychosocial Factors, Patients -- Psychosocial Factors, Qualitative Studies, Phenomenological Research, Empirical Research, Interviews, Audiorecording, Thematic Analysis, Fibromyalgia -- Symptoms, Attitude of Health Personnel, Female, Male, Adult, Middle Age, Funding Source, Human
Public Health, Global Health, Social Medicine and Epidemiology
IdentifiersURN: urn:nbn:se:umu:diva-98523PubMedID: 10229986OAI: oai:DiVA.org:umu-98523DiVA: diva2:783039
PMID: 102299862015-01-232015-01-232015-01-23Bibliographically approved