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Service users' experiences of participation in decision making in mental health services
Department of Research, Region of Halland.
Dalarna University.
Umeå University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-0790-9386
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Psychiatry.
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2015 (English)In: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 22, no 9, 688-697 p.Article in journal (Refereed) Published
Abstract [en]

Service user participation in decision making is considered an essential component of recovery-oriented mental health services. Despite the potential of shared decision making to impact service users knowledge and positively influence their experience of decisional conflict, there is a lack of qualitative research on how participation in decision making is promoted from the perspective of psychiatric service users. In order to develop concrete methods that facilitate shared decision making, there is a need for increased knowledge regarding the users' own perspective. The aim of this study was to explore users' experiences of participation in decisions in mental health services in Sweden, and the kinds of support that may promote participation. Constructivist Grounded Theory (CGT) was utilized to analyse group and individual interviews with 20 users with experience of serious mental illness. The core category that emerged in the analysis described a 'struggle to be perceived as a competent and equal person' while three related categories including being the underdog, being controlled and being omitted described the difficulties of participating in decisions. The data analysis resulted in a model that describes internal and external conditions that influence the promotion of participation in decision making. The findings offer new insights from a user perspective and these can be utilized to develop and investigate concrete methods in order to promote user's participation in decisions.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2015. Vol. 22, no 9, 688-697 p.
Keyword [en]
grounded theory, participation, recovery, severe mental illness, shared decision making
National Category
Social Work Nursing
URN: urn:nbn:se:umu:diva-103054DOI: 10.1111/jpm.12246ISI: 000362914900005PubMedID: 26148016OAI: diva2:812283
Available from: 2015-05-18 Created: 2015-05-18 Last updated: 2015-11-12Bibliographically approved

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Rosenberg, David
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