umu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Person-centred information to parents in paediatric oncology (the PIFBO study): a study protocol of an ongoing RCT
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University, Faculty of Medicine, Department of Clinical Sciences, Paediatrics.ORCID iD: 0000-0001-8801-5423
Jönköping University, Jönköping, Sweden; University of Skövde, Skövde, Sweden.
Karlstad University, Karlstad, Sweden.
Umeå University, Faculty of Medicine, Department of Nursing. Department of Health Sciences, University West, Trollhättan, Sweden.
2015 (English)In: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 14, 69Article in journal (Refereed) Published
Abstract [en]

Background

Parents of children with cancer experience a demanding situation and often suffer from psychological problems such as stress. Trying to coping with the complex body of information about their child’s disease is one factor that contributes to this stress. The aim of this study is to evaluate an intervention for person-centred information to parents of children with cancer that consists of four sessions with children’s nurses trained in the intervention method.

Methods/Design

This is a multi-centre RCT with two parallel arms and a 1:1 allocation ratio. The primary outcome is illness-related parental stress. Secondary outcomes are post-traumatic stress symptoms, anxiety, depression, satisfaction with information, expected and received knowledge, and experiences with health care providers. A process evaluation is performed to describe experiences and contextual factors. Data are collected using web questionnaires or paper forms according to the parents’ preference, audio recording of the intervention sessions, and qualitative interviews with parents and the intervention nurses.

Discussion

Few studies have evaluated information interventions for parents of children with cancer using large multi-centre RCTs. This intervention is designed to be performed by regular staff children’s nurses, which will facilitate implementation if the intervention proves to be effective.

Place, publisher, year, edition, pages
BioMed Central, 2015. Vol. 14, 69
Keyword [en]
Childhood cancer, Multi-centre study, Parents, Person-centred information, Process evaluation, Protocol, Randomized controlled trial
National Category
Nursing
Research subject
omvårdnadsforskning med samhällsvetenskaplig inriktning
Identifiers
URN: urn:nbn:se:umu:diva-114146DOI: 10.1186/s12912-015-0120-8OAI: oai:DiVA.org:umu-114146DiVA: diva2:894266
Funder
Swedish Childhood Cancer Foundation, PR-2013-0086
Available from: 2016-01-14 Created: 2016-01-14 Last updated: 2017-11-30Bibliographically approved

Open Access in DiVA

fulltext(483 kB)66 downloads
File information
File name FULLTEXT01.pdfFile size 483 kBChecksum SHA-512
ffab68bca5e089f9a8a3ac4a01885e4f411e4530eba7ffb79dbe0bdb69b3ffa38359557e67c2bfe91d68f64277a6e2c4af5756a5fa5b3bd1943c7e793d40e522
Type fulltextMimetype application/pdf

Other links

Publisher's full text

Authority records BETA

Ringnér, AndersHällgren Graneheim, Ulla

Search in DiVA

By author/editor
Ringnér, AndersHällgren Graneheim, Ulla
By organisation
Department of NursingPaediatrics
In the same journal
BMC Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 66 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
urn-nbn

Altmetric score

doi
urn-nbn
Total: 131 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf