You Need to Know More to Understand My Scoring on the Survey:: Free-TextComments as Part of a PROM-Surveyof Men with Prostate Cancer
2016 (English)In: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, no 6, 365-375 p.Article in journal (Refereed) Published
Prostate cancer and its treatment have long-term implications for men’s lives. We aimed to describethe content, extent, and frequency of written comments to the open-ended question, “Furthercomments?” in the patient-reported outcome measures questionnaire. During the study period,897 men participated; 372 wrote 747 free-text comments in the questionnaire. These commentswere analysed using qualitative content analysis and were grouped into four categories: 1)prostate cancer’s influence on health; 2) clarifications of answers to the survey; 3) descriptions ofwell-being despite the cancer; and 4) experiences of care and the need for contact with health care.The distribution of the comments shifted over time. The open-ended question not only allowed theparticipants to explain their other responses and describe important aspects of their lives duringand after treatment, something not normally covered by a questionnaire, but it also indicatedtheir experiences of health care services along the patients’ PC-trajectory. This further raises theissue of including an open-ended item in a forced-choice survey into the ethical realm to ensurethat proper care is taken of participants’ answers and thoughts.
Place, publisher, year, edition, pages
2016. no 6, 365-375 p.
Prostate Cancer, Questionnaire, Open-Ended Question, Information, Feedback, Quality of Life, Nursing
IdentifiersURN: urn:nbn:se:umu:diva-121988DOI: 10.4236/ojn.2016.65038OAI: oai:DiVA.org:umu-121988DiVA: diva2:936092