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You Need to Know More to Understand My Scoring on the Survey:: Free-TextComments as Part of a PROM-Surveyof Men with Prostate Cancer
Umeå University, Faculty of Medicine, Department of Nursing.
Umeå University, Faculty of Medicine, Department of Nursing.
Umeå University, Faculty of Medicine, Department of Nursing.
2016 (English)In: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, no 6, 365-375 p.Article in journal (Refereed) Published
Abstract [en]

Prostate cancer and its treatment have long-term implications for men’s lives. We aimed to describethe content, extent, and frequency of written comments to the open-ended question, “Furthercomments?” in the patient-reported outcome measures questionnaire. During the study period,897 men participated; 372 wrote 747 free-text comments in the questionnaire. These commentswere analysed using qualitative content analysis and were grouped into four categories: 1)prostate cancer’s influence on health; 2) clarifications of answers to the survey; 3) descriptions ofwell-being despite the cancer; and 4) experiences of care and the need for contact with health care.The distribution of the comments shifted over time. The open-ended question not only allowed theparticipants to explain their other responses and describe important aspects of their lives duringand after treatment, something not normally covered by a questionnaire, but it also indicatedtheir experiences of health care services along the patients’ PC-trajectory. This further raises theissue of including an open-ended item in a forced-choice survey into the ethical realm to ensurethat proper care is taken of participants’ answers and thoughts.

Place, publisher, year, edition, pages
2016. no 6, 365-375 p.
Keyword [en]
Prostate Cancer, Questionnaire, Open-Ended Question, Information, Feedback, Quality of Life, Nursing
National Category
URN: urn:nbn:se:umu:diva-121988DOI: 10.4236/ojn.2016.65038OAI: diva2:936092
Available from: 2016-06-13 Created: 2016-06-13 Last updated: 2016-06-20

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Hajdarevic, SenadaRasmussen, Birgit HFransson, Per
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