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  • 1.
    Ineland, Jens
    et al.
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Sauer, Lennart
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Theatre with people with intellectual disabilities as art or therapy?2004In: Journal of Intellectual Disability Research, ISSN 0964-2633, E-ISSN 1365-2788, Vol. 48, no 4-5, p. 398-Article in journal (Refereed)
    Abstract [en]

    Aim: To discuss theatre as an activity for forming identity for persons with ID in the postmodern society. The paper is based on two empirical research projects carried out in Sweden.

    Method: A range of qualitative methods, i.e. interviews, participant observations and research circles.

    Results: The result is somewhat ambiguous. It shows that cultural activities are a platform for redefining the social meaning of ID. But it also indicates a potential dilemma between the artistic aims and the organizational and political objectives with disability services.

    Conclusions: Results highlight the delicate balance to be achieved in developing new practices (e.g. theatre) within normative environments, without making people with ID into pawns in an ideologically originated and politically decided game.

  • 2.
    Ineland, Jens
    et al.
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Starke, Mikaela
    Institutionen för socialt arbete, Göteborgs universitet.
    Work satisfaction among human service professionals2019In: Journal of Intellectual Disability Research, ISSN 0964-2633, E-ISSN 1365-2788, Vol. 63, no 7, p. 889-889Article in journal (Other academic)
    Abstract [en]

    Introduction: Work satisfaction among professionals in human service organisations is often viewed as an important aspect of quality – for professionals but also for those who are receiving the support. Professionals who report high levels of job satisfaction also provide services of higher quality compared to those who are dissatisfied. For the service users this is considered as central especially for those with long‐lasting support such as persons with intellectual disabilities. The presentation demonstrate work satisfaction among professionals in social service, school and health care working with people with intellectual disability.

    Methods: Data was collected using a digital questionnaire and the presentation is based on written excerpts (n = 925) on an open‐ended question from a total of 333 respondents.

    Results: Results showed that positive work experiences were associated with autonomy, competence, nature of the work, collaboration, response and feedback, work environment, support and the target group. In the presentation we provide empirical evidence for these different aspects of work satisfaction.

    Implications: To conclude the study contributes with knowledge concerning important factors and circumstances that provides professionals within the field of intellectual disability with work satisfaction. More research is needed to understand job satisfaction among human service professionals in the field of intellectual disabilities.

  • 3.
    Kottorp, Anders
    et al.
    Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Occupational Therapy.
    Bernspång, Birgitta
    Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Occupational Therapy.
    Fisher, Anne G.
    Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation. Department of Occupational Therapy, Colorado State University. Fort Collins, Colorado.
    Validity of a performance assessment of activities of daily living for people with developmental disabilities2003In: Journal of Intellectual Disability Research, ISSN 0964-2633, E-ISSN 1365-2788, Vol. 47, no 8, p. 597-605Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Since clients with different types of developmental disabilities often experience difficulties in activities of daily living (ADL), it is critical that assessments of ADL are evaluated in order to ensure that one can make valid judgements based on the results of the appraisal. The purpose of the present study was to evaluate the validity of a specific performance assessment instrument, the Assessment of Motor and Process Skills (AMPS), when used by occupational therapists with clients with developmental disabilities. Unlike global ADL assessments, the AMPS is used not only to evaluate the level of ADL dependence, but also to estimate the quality of each specific action performed when a person is performing ADL tasks.

    METHODS: Data were gathered from 1724 participants with different developmental disabilities, including intellectual disability (ID), cerebral palsy and spina bifida. Many-Facet Rasch (MFR) analysis was used to examine person-response validity, and task and item scale validity.

    RESULTS: Goodness-of-fit statistics showed that the tasks and items had acceptable scale validity. The participants had acceptable person-response validity on the ADL motor scale, but had slightly lower than expected levels of person-response validity on the ADL process scale. The results indicate that clients with more severe forms of ID may have a higher proportion of different performance profiles in ADL than is expected by the MFR model of the AMPS. Since the proportion of participants who did not meet the criteria was only 3% lower than expected and in accordance with other studies, the difference may not be clinically meaningful. Otherwise, the results indicated that the AMPS is a valid tool when used with clients with developmental disabilities.

    CONCLUSIONS: Further research is needed to evaluate the use of the AMPS in clinical assessment and intervention planning for this group of clients.

  • 4.
    Ng, Nawi
    et al.
    Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Epidemiology and Global Health. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Sandberg, M
    Ahlström, G
    Prevalence of older people with intellectual disability in Sweden: a spatial epidemiological analysis.2015In: Journal of Intellectual Disability Research, ISSN 0964-2633, E-ISSN 1365-2788, Vol. 59, no 12, p. 1155-1167Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: The expected increase in longevity of individuals with intellectual disabilities (ID) in many countries of the world is a direct result of medical and social advances, which have also extended the longevity of the general population. It is important to assess the need for social services for people with ID across different administrative levels to ensure sufficient resources are allocated to where they are most needed. This study estimates the annual prevalence of older people with ID from 2004 to 2012 and in different counties and municipalities in Sweden, by sex and age group; identifies proxy indicators related to the care of older people with ID in different counties in 2012 in Sweden and analyses the spatial distribution and clustering of municipalities with a high prevalence of older people with ID.

    METHODS: Individuals with ID were identified through the national register based on the Swedish Act concerning Support and Service for Persons with Certain Functional Impairments (the LSS act) and the national death register. This study focuses on older individuals aged 55+ during the period of 2004-2012. The estimated prevalence was calculated at the county and municipality level and plotted on a municipality-level map. Moran's I statistics was used to identify any spatial clustering of municipalities with a large number of individuals with ID.

    RESULTS: The prevalence of ID among older individuals aged 55+ in Sweden increased from 2004 to 2012. The prevalence was consistently higher among men, and the gender gap increased slightly in recent years. Age-specific prevalence estimates showed ID to be higher in younger age groups, and the gender gap decreased in older age groups. The prevalence was higher in northern counties in Sweden (over 500 individuals per 100 000 population aged 55+). Higher prevalence areas were clustered in northern municipalities, whereas municipalities with high prevalence of older individuals with ID in the middle and southern regions of Sweden demonstrated a more widespread distribution.

    CONCLUSIONS: The existence of clusters of counties with a high prevalence of older individuals with ID necessitates further assessment of how resources have been allocated to different counties and municipalities in Sweden. Investigations of the quality of social services provided to individuals with ID across different counties in Sweden are warranted. It is important to ensure that high quality supports are being provided to older individuals with ID in order to grant them the same right to healthy ageing as their counterparts living without ID throughout their life course.

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