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Wisselgren, M. J. & Vikström, L. (2023). Behind the numbers: authorities’ approach to measuring disability in Swedish populations from 1860 to 1930. Historical Methods, 56(2), 63-76
Open this publication in new window or tab >>Behind the numbers: authorities’ approach to measuring disability in Swedish populations from 1860 to 1930
2023 (English)In: Historical Methods, ISSN 0161-5440, E-ISSN 1940-1906, Vol. 56, no 2, p. 63-76Article in journal (Refereed) Published
Abstract [en]

This study investigates the main features of collected disability statistics for the censuses in Sweden, 1860–1930, when the disability prevalence rose from four to 21 individuals per thousand of the population. We use qualitative methods to analyze the means of collecting, categorizing, and defining disability, while quantitative methods help us calculate the prevalence by disability type and gender in urban and rural areas. Our long-term findings reveal that this increase reflects new approaches whereby authorities applied alternative methods to collect disability data, using additional sources, wider definitions, and introducing new disability categories. The temporal variations in disability prevalence were influenced by the social and political context and normative views on who was considered disabled or not.

Place, publisher, year, edition, pages
Routledge, 2023
Keywords
disability definition, disability prevalence, historical censuses, population statistics, Swedish history
National Category
History
Research subject
History; Historical Demography
Identifiers
urn:nbn:se:umu:diva-206749 (URN)10.1080/01615440.2023.2186998 (DOI)000961498700001 ()2-s2.0-85151957726 (Scopus ID)
Funder
EU, Horizon 2020, 647125
Available from: 2023-04-27 Created: 2023-04-27 Last updated: 2023-05-19Bibliographically approved
Namatovu, F., Häggström Gunfridsson, E. & Vikström, L. (2023). Is teenage parenthood associated with early use of disability pension? Evidence from a longitudinal study. PLOS ONE, 18(6), Article ID e0287265.
Open this publication in new window or tab >>Is teenage parenthood associated with early use of disability pension? Evidence from a longitudinal study
2023 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 18, no 6, article id e0287265Article in journal (Refereed) Published
Abstract [en]

Background: Over the past decades the number of young people using disability pensions (DP) has gradually increased in Europe but the reasons for this change are poorly understood. We hypothesize that teenage parenthood could be associated with an increased risk of receiving early DP. The aim of this study was to examine the association between having a first child at age 13-19 and receiving DP at age 20-42 (here called early DP).

Methods: A longitudinal cohort study was undertaken based on national register data obtained from 410,172 individuals born in Sweden in 1968, 1969, and 1970. Teenage mothers and fathers were followed until age 42 and compared to non-teenage parent counterparts to examine their early receipt of DP. Descriptive analysis, Kaplan-Meier curves, and Cox regression analyses were performed.

Results: The proportion of teenage parents was more than twice higher in the group that received early DP (16%) compared to the group that did not receive early DP (6%) during the study duration. A higher proportion of teenage mothers and fathers started to receive DP at 20-42 years old compared to non-teenage parents, and the difference between the two groups increased during the observation period. A strong association was observed between being a teenage parent and receiving early DP, significant both independently and after adjusting for the year of birth and the father's level of education. From the age of 30 to 42 years, teenage mothers used early DP more often than teenage fathers or non-teenage parents, and this difference also increased during the follow-up period.

Conclusion: A strong association was found between teenage parenthood and the use of DP between 20 and 42 years of age. Teenage mothers used DP more than teenage fathers and non-teenage parents.

Place, publisher, year, edition, pages
Public Library of Science (PLoS), 2023
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:umu:diva-211148 (URN)10.1371/journal.pone.0287265 (DOI)37315051 (PubMedID)2-s2.0-85162014297 (Scopus ID)
Funder
Marcus and Amalia Wallenberg Foundation, 2019.0003
Available from: 2023-07-05 Created: 2023-07-05 Last updated: 2024-01-10Bibliographically approved
Namatovu, F. & Vikström, L. (2023). Våld i nära relationer bland vuxna med funktionsnedsättning. Västra Götalandsregionen
Open this publication in new window or tab >>Våld i nära relationer bland vuxna med funktionsnedsättning
2023 (Swedish)Report (Other academic)
Abstract [sv]

Denna Genväg till forskning syftar till att ge en översikt av det aktuella kunskapsläget om våld i nära relationer bland vuxna med funktionsnedsättning. Det utgör ett problemområde som har undersökts jämförelse lite hittills. Översikten utgår från Världshälsoorganisationens (WHO) övergripande definition av funktionsnedsättning som avser långvarigt nedsatt förmåga hos individer att fungera fysiskt eller psykiskt i relation till sin omgivning och förhindrar dem från att fullt delta i samhället. Översikten ger en bild av den senaste forskningen beträffande: förekomst och följder av våld i nära relationer bland vuxna män och kvinnor med funktionsnedsättning; riskfaktorer för denna typ av våld; vad som kännetecknar det; samt tillgång till stöd och serviceinsatser. Även om båda könen berörs ligger fokus på hur övergrepp från närstående drabbar kvinnor med funktionsnedsättning generellt sett, där jämförelser mellan olika funktionsnedsättningar ibland förekommer. Vår översikt av forskningsläget blottlägger två kunskapsluckor, varav den första gäller okunskap om de erfarenheter av våld i nära relationer som personer med funktionsnedsättning har. För det andra är forskning om tillgång till stödinsatser bristfällig, inte minst vilka former av stödinsatser som bidrar till skydd och stöd. För att kunna förebygga våld som personer med funktionsnedsättning utsätts för och för att förbättra samhällets stödsystem behöver framtida forskning närmare undersöka dels hur de upplever våld från närstående, dels hur tillgången till stöd fungerar i praktiken. I slutet av rapporten presenteras några resultat från våra projekt som belyser just dessa aspekter avseende kvinnor som utsatts för dessa övergrepp i Sverige. Resultaten bidrar till att täppa till de två forskningsluckor som översikten påvisar.

Place, publisher, year, edition, pages
Västra Götalandsregionen, 2023. p. 19
Series
Genväg till forskning ; 18
National Category
Social Work Other Medical Sciences
Research subject
Public health
Identifiers
urn:nbn:se:umu:diva-214220 (URN)
Projects
Socialt stöd och vård för människor med funktionsnedsättning som utsatts för våld inom nära relationer (DIS-IPV)Att åldras med funktionsnedsättningar: Föreställningar och följder förr, nu och i framtiden (DISTIME)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, STYB-2019/05Wallenberg Foundations, 2019.0003
Available from: 2023-11-06 Created: 2023-11-06 Last updated: 2023-11-06Bibliographically approved
Nordlund, M., Wickman, K., Karp, S. & Vikström, L. (2022). Equal abilities – the Swedish parasport federation and the inclusion process. Idrottsforum.org/Nordic sport science forum, 13, 111-129
Open this publication in new window or tab >>Equal abilities – the Swedish parasport federation and the inclusion process
2022 (English)In: Idrottsforum.org/Nordic sport science forum, ISSN 1652-7224, Vol. 13, p. 111-129Article in journal (Refereed) Published
Abstract [en]

A major organizational change is currently taking place in Swedish sports, with people labelled with disabilities leaving the Swedish Para-sport Federation (SPF) to participate in mainstream sports under the Swedish Sports Confederation. The aim of this study was to map the expectations of this ongoing process of the stakeholders of the SPF.  Based on a questionnaire with 130 respondents connected to the SPF we found that, overall, the respondents were optimistic about mixed training groups, something that could point towards the possibility of equality between PLwD (people labelled with disabilities) and mainstream athletes. However, a rather large number of respondents feared negative consequences in terms of the physical environment for PLwD. This means that inclusion may create a dilemma regarding the relationship between the individual and the environment. We conclude that inclusion works at different levels of organized sport and there is insufficient knowledge about the impact of inclusion.

Place, publisher, year, edition, pages
Malmö: Malmö University, 2022
Keywords
activity, parasport, athletes, sports organization
National Category
Pedagogy
Identifiers
urn:nbn:se:umu:diva-200583 (URN)
Projects
Likvärdiga villkor i Sveriges största folkrörelse (Forte)
Funder
EU, Horizon 2020, 647125
Available from: 2022-10-25 Created: 2022-10-25 Last updated: 2022-12-21Bibliographically approved
Liselotte, E., Junkka, J., Sandström, G. & Vikström, L. (2022). Supply or demand? Institutionalization of the mentally ill in the emerging Swedish welfare state, 1900–59. History of Psychiatry, 33(2), 180-199
Open this publication in new window or tab >>Supply or demand? Institutionalization of the mentally ill in the emerging Swedish welfare state, 1900–59
2022 (English)In: History of Psychiatry, ISSN 0957-154X, E-ISSN 1740-2360, Vol. 33, no 2, p. 180-199Article in journal (Refereed) Published
Abstract [en]

Historical studies on the institutionalization of the mentally ill have primarily relied on data for institutionalized patients rather than the population at risk. Consequently, the underlying factors of institutionalization are unclear. Using Swedish longitudinal microdata from 1900–59 reporting mental disorders, we examine whether supply factors, such as distance to institutions and number of asylum beds, influenced the risk of institutionalization, in addition to demand factors such as access to family. Institutionalization risks were associated with the supply of beds and proximity to an asylum, but also dependent on families’ unmet demand for care of relatives. As the supply of mental care met this family-driven demand in the 1930s, the relative risk of institutionalization increased among those lacking family networks.

Place, publisher, year, edition, pages
Sage Publications, 2022
Keywords
Asylum, confinement, institutionalization, mental illness, Sweden, 20th century
National Category
Other Social Sciences
Research subject
Historical Demography; History
Identifiers
urn:nbn:se:umu:diva-195005 (URN)10.1177/0957154x221084976 (DOI)000798273900004 ()2-s2.0-85130323789 (Scopus ID)
Projects
MAW 2019.0003 / Risks and Loads from Disabilities and Later Life Outcomes
Available from: 2022-05-19 Created: 2022-05-19 Last updated: 2023-09-05Bibliographically approved
Vikström, L., Junkka, J. & Karhina, K. (2022). Two centuries of disability disadvantages in Swedish partnerships. Disability & Society
Open this publication in new window or tab >>Two centuries of disability disadvantages in Swedish partnerships
2022 (English)In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508Article in journal (Refereed) Epub ahead of print
Abstract [en]

Partnership signifies a key transition for social recognition in society. This study identifies long-term trends of disability and partnership in Sweden evidenced by the chances to marry or cohabit during two centuries (1800s–2010s). We compare results from studies within one comprehensive disability project, making use of quantitative life-course analysis and population records. Our findings uncover a remarkably persistent trend from the 1800s until the 2010s. Disability impeded both men and women’s partnership chances significantly (by about 60%), with some variations across disability types, genders, and periods. That disabled people did not enjoy greater access to a partner relative to others while Sweden moved from a poor country to a wealthy welfare state, suggests that disability persistently affords fewer possibilities to participate in social life and society. Our study is exceptional by combining disability with partnership and comparing recent results with the past.

Place, publisher, year, edition, pages
Routledge, 2022
Keywords
Disability, inequality, life course, marriage, partnership, Sweden
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:umu:diva-204477 (URN)10.1080/09687599.2022.2160924 (DOI)000916093000001 ()2-s2.0-85147004235 (Scopus ID)
Funder
EU, Horizon 2020, 647125
Available from: 2023-02-17 Created: 2023-02-17 Last updated: 2023-09-05
Vikström, L., Karhina, K. & Junkka, J. (2022). Two centuries of inequalities: disability and partnership in Sweden. In: Magda Nico; Gary Pollock (Ed.), The Routledge handbook of contemporary inequalities and the life course: (pp. 136-151). London: Routledge
Open this publication in new window or tab >>Two centuries of inequalities: disability and partnership in Sweden
2022 (English)In: The Routledge handbook of contemporary inequalities and the life course / [ed] Magda Nico; Gary Pollock, London: Routledge, 2022, p. 136-151Chapter in book (Refereed)
Abstract [en]

This study brings together a unique selection of results that reveal how disabilities shaped the marriage/cohabitation chances in Swedish populations from the 1800s until recent decades. Using longitudinal population registers and a life course approach, multivariate statistical analysis helps to estimate the impact of disability on partnership relative to other individual-level attributes in different temporal contexts of Swedish society. While there were some differences by type of disability and gender, the overall finding is that disabilities kept weakening people’s partnership chances to a similarly high extent (with about 60% or even more), as Sweden moved from being a poor country in the 1800s to a modern welfare state. We discuss the findings from social inequalities perspectives arguing that disabled people’s partnership chances not only represent how potential partners perceive disability; these chances also reflect general attitudes in society towards disability that work to compromise disabled people’s participation in social life and society. Our long-term results uncover a remarkable persistence in the relationship between disability and partnership in turn suggesting that social inequalities persist being associated with disability in spite of profound structural changes and extensive welfare measures in Sweden to create a more equal society for all.

Place, publisher, year, edition, pages
London: Routledge, 2022
National Category
History
Research subject
Historical Demography
Identifiers
urn:nbn:se:umu:diva-192532 (URN)10.4324/9780429470059-14 (DOI)978-1-138-60150-5 (ISBN)978-1-032-16351-2 (ISBN)978-0-429-47005-9 (ISBN)
Funder
EU, Horizon 2020, 647125
Available from: 2022-02-16 Created: 2022-02-16 Last updated: 2022-02-16Bibliographically approved
Vikström, L., Junkka, J., Namatovu, F., Häggström Lundevaller, E. & Karhina, K. (2021). A longitudinal study of how disability affects mortality in Swedish Populations from the 1800s, 1900s and 2000s. Umeå: Umeå University
Open this publication in new window or tab >>A longitudinal study of how disability affects mortality in Swedish Populations from the 1800s, 1900s and 2000s
Show others...
2021 (English)Report (Other academic)
Abstract [en]

BACKGROUND: Studies from across the world show that disability limits people’s health and social wellbeing in present-day populations. This disadvantage can lead to premature death, but there is dearth knowledge about the relationship between disability and mortality and changes over time.   

OBJECTIVES: Unique access to longitudinal micro data on comprehensive Swedish populations enabled us to examine how disability affects premature death in men and women from the 1800s until 2010. 

METHODS: Cox proportional regressions were used to estimate mortality hazards by disability status, gender and socio-economic indicators in three study populations from the 1800s, 1900s and 2000s. We followed all adults having disability from age 25 to compare their premature death risks (< age 43) relative to non-disabled groups.

RESULTS: Irrespective of gender and century studied, the adjusted hazard ratios show that adults with disabilities had a significantly higher premature death risk relative to adults without disabilities, and it increased over time. In the 1800s, disability about doubled this risk (HR: 2.31, CI: 1.65–3.22) and it tripled from 1900–1959 (HR 3.01, CI 2.60– 3.48). At the turn of the 21th century, the mortality risk was almost ten-folded (HR 9.90, CI 8.03–10.5). 

CONCLUSIONS: This study provides the first comprehensive estimates on how disability increased mortality in Swedish populations from the 1800s until the 2000s. Across three centuries, disability was associated with a profoundly higher relative death risk in adults aged 25–42. This risk grew when the general survival in Sweden improved and it was the highest in the 1990–2010 period. Fundamental societal changes and extensive welfare provisions promoting equality in gender, health and social wellbeing of all citizens have not come to include younger generations with disabilities. 

Place, publisher, year, edition, pages
Umeå: Umeå University, 2021. p. 34
Series
CEDAR Working Papers ; 18
Keywords
Death, Disability, Health, Life course, Mortality, Sweden
National Category
History Public Health, Global Health, Social Medicine and Epidemiology
Research subject
Historical Demography; Public health
Identifiers
urn:nbn:se:umu:diva-186866 (URN)
Funder
EU, Horizon 2020, 647125
Available from: 2021-08-24 Created: 2021-08-24 Last updated: 2021-08-27Bibliographically approved
Wisselgren, M. J. & Vikström, L. (2021). Behind the Numbers: Authorities’ Approach to Measuring Disability in Swedish Populations from 1860 to 1930. Umeå
Open this publication in new window or tab >>Behind the Numbers: Authorities’ Approach to Measuring Disability in Swedish Populations from 1860 to 1930
2021 (English)Report (Other academic)
Abstract [en]

This study investigates the main features of collected disability statistics for the nationwide censuses in Sweden from 1860 to 1930. During this period, the disability prevalence rose from four to 21 individuals per thousand of the population. To understand this significant rise, there is a need to peer behind the census numbers to trace Swedish authorities’ approach to measuring disabilities in the population. We use qualitative methods to analyze the authorities’ means of collecting, categorizing and defining disability, while quantitative methods help us estimate the prevalence by disability type and gender across the study period in urban and rural areas. Our long-term findings reveal that the increase of disability prevalence in Swedish populations, and especially the peak in 1930, reflect a new approach to measuring disability. Authorities applied other methods to collect disability data by using additional sources, wider disability definitions, as well as introducing new categories. The temporal variations in disability prevalence were largely influenced by the censuses becoming more scientific in their reporting of disabilities, as well as by societal concerns and by what was viewed as disabling conditions when the censuses were taken.

Place, publisher, year, edition, pages
Umeå: , 2021. p. 24
Series
CEDAR Working Papers ; 2021:8
Keywords
Swedish history, Population Statistics, Disability Prevalence, Historical Censuses, Disability Definition
National Category
Humanities and the Arts
Research subject
History
Identifiers
urn:nbn:se:umu:diva-186373 (URN)
Funder
EU, Horizon 2020, 647125
Available from: 2021-07-25 Created: 2021-07-25 Last updated: 2023-04-27Bibliographically approved
Vikström, L., Edvinsson, S. & Häggström Lundevaller, E. (2021). Disability, mortality and causes of death in a 19th-century Swedish population. Historical Life Course Studies, 10(S3), 151-155
Open this publication in new window or tab >>Disability, mortality and causes of death in a 19th-century Swedish population
2021 (English)In: Historical Life Course Studies, E-ISSN 2352-6343, Vol. 10, no S3, p. 151-155Article in journal (Refereed) Published
Abstract [en]

Our study aims to find how disability affected human health in historical time through an examination of individuals' mortality risks and death causes. Swedish parish registers digitized by the Demographic Data Base (DDB) enable us to account for a relatively high number of persons reported to have disabilities, and to compare them with a group of non-disabled cases. The findings concern a 19th-century population of 35,610 individuals in the Sundsvall region, Sweden, and show that disability increased the premature mortality risk substantially. Disability seems to have jeopardized men’s survival in particular, and perhaps due to gendered expectations concerning the type of work men and women became less able to perform when disabled. Our study of death causes indicates that their deaths were less characterized by infectious diseases than among the non-disabled group, as a possible consequence of lower exposure to infections due to the way in which disability could impede opportunities for interaction with peers in the community. In all, our mortality findings suggest that disability was associated with poor living conditions and limited possibilities to participate in work and social life, which further tend to have accumulated across life and resulted in ill health indicated by premature death.

Place, publisher, year, edition, pages
Amsterdam: International Institute of Social History, 2021
Keywords
Disability, Gender, Death causes, Mortality, Sweden
National Category
History
Research subject
History
Identifiers
urn:nbn:se:umu:diva-183872 (URN)10.51964/hlcs9585 (DOI)2-s2.0-85170371631 (Scopus ID)
Funder
EU, Horizon 2020, 647125
Available from: 2021-06-02 Created: 2021-06-02 Last updated: 2023-09-20Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-9042-9166

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