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Nilsson, Ingeborg, ProfessorORCID iD iconorcid.org/0000-0002-8265-5769
Publications (10 of 67) Show all publications
Bergström, A., Mondaca, M., Nilsson, I., Guidetti, S. & Rosenberg, L. (2024). Phronesis: Recognising a neglected dimension of knowledge within occupational therapy research. Scandinavian Journal of Occupational Therapy, 31(1), Article ID 2341782.
Open this publication in new window or tab >>Phronesis: Recognising a neglected dimension of knowledge within occupational therapy research
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2024 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 31, no 1, article id 2341782Article in journal (Refereed) Published
Abstract [en]

Background: Phronesis is a way of knowing, implying wisdom, experiences, and reflections that guide our judgements. Phronesis, important for learning, is a neglected form of knowledge when applied to research.

Aim: To examine how phronesis is conceptualised and practiced in three research projects.

Method: Data from eight interviews with researchers involved in three research projects was generated. The interview material was analysed. A theoretical matrix of contemporary understanding of phronesis was applied to the material.

Result: Examples of phronesis from three research projects in occupational therapy are presented according to categories of contemporary phronesis; acknowledging embodiment, embracing humility, using perceptiveness, and practicing reflexivity.

Significance: This unique approach of analysing research projects contributes to the understanding of phronesis and its implications for research, providing valuable insights into the researchers’ praxis in their respective projects

Conclusion: There is a need for a greater recognition of phronesis as a dimension of knowledge within all types of research, and within the discipline. By not recognising phronesis as a legitimate form of knowledge, the discipline perpetuates a superiority of knowledge from episteme that dominates our ways of learning about the world around us and where the type of knowledge gleaned from phronesis is consequently marginalised.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2024
Keywords
Episteme, learning, occupational science, praxis, qualitative, reflexive, techne
National Category
Occupational Therapy
Identifiers
urn:nbn:se:umu:diva-223849 (URN)10.1080/11038128.2024.2341782 (DOI)001205223300001 ()38630858 (PubMedID)2-s2.0-85190681795 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-07089The Kamprad Family Foundation, 20180317
Available from: 2024-04-29 Created: 2024-04-29 Last updated: 2024-04-29Bibliographically approved
Lindelöf, N., Nilsson, I., Littbrand, H., Gustafson, Y., Olofsson, B. & Fjellman-Wiklund, A. (2023). A focus groups study of staff team experiences of providing interdisciplinary rehabilitation for people with dementia and their caregivers: a co-creative journey. BMC Geriatrics, 23(1), Article ID 572.
Open this publication in new window or tab >>A focus groups study of staff team experiences of providing interdisciplinary rehabilitation for people with dementia and their caregivers: a co-creative journey
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2023 (English)In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 23, no 1, article id 572Article in journal (Refereed) Published
Abstract [en]

Background: The World Health Organization claims that rehabilitation is important to meet the needs of persons with dementia. Rehabilitation programmes, however, are not routinely available. Person-centred, multidimensional, and interdisciplinary rehabilitation can increase the opportunities for older adults with dementia and their informal primary caregivers to continue to live an active life and participate in society. To our knowledge, staff team experiences of such rehabilitation programmes, involving older adults with dementia and their informal caregivers has not been previously explored.

Methods: The aim of this qualitative focus group study was to explore the experiences of a comprehensive staff team providing person-centred multidimensional, interdisciplinary rehabilitation to community-dwelling older adults with dementia, including education and support for informal primary caregivers. The 13 staff team members comprised 10 professions who, during a 16-week intervention period, provided individualised interventions while involving the rehabilitation participants. After the rehabilitation period the staff team members were divided in two focus groups who met on three occasions each (in total six focus groups) and discussed their experiences. The Grounded Theory method was used for data collection and analysis.

Results: The analysis resulted in four categories: Achieving involvement in rehabilitation is challenging, Considering various realities by acting as a link, Offering time and continuity create added value, and Creating a holistic view through knowledge exchange, and the core category: Refining a co-creative process towards making a difference. The core category resembles the collaboration that the staff had within their teams, which included participants with dementia and caregivers, and with the goal that the intervention should make a difference for the participants. This was conducted with flexibility in a collaborative and creative process.

Conclusions: The staff team perceived that by working in comprehensive teams they could provide individualised rehabilitation in creative collaboration with the participants through interaction, knowledge exchange, time and continuity, coordination and flexibility, and a holistic view. Challenges to overcome were the involvement of the person with dementia in goal setting and the mediating role of the staff team members. The staff pointed out that by refinement they could achieve well-functioning, competence-enhancing and timesaving teamwork.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2023
Keywords
Dementia, Experiences, Grounded theory, Informal caregiver, Interdisciplinary health team, Person-centered care, Rehabilitation
National Category
Nursing Geriatrics
Identifiers
urn:nbn:se:umu:diva-214772 (URN)10.1186/s12877-023-04269-3 (DOI)37723442 (PubMedID)2-s2.0-85171536442 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2014-0897Promobilia foundationThe Dementia Association - The National Association for the Rights of the DementedThe Janne Elgqvist Family FoundationRegion VästerbottenAlzheimerfondenFoundation for the Memory of Ragnhild and Einar LundströmStiftelsen Gamla Tjänarinnor
Available from: 2023-10-18 Created: 2023-10-18 Last updated: 2023-10-18Bibliographically approved
Nordin, T., Lundgren, A. S. & Nilsson, I. (2023). Constructing loneliness: home care providers' notions of older adults' social needs and the possibilities of the home care profession to support social participation. Journal of Aging Studies, 65, Article ID 101130.
Open this publication in new window or tab >>Constructing loneliness: home care providers' notions of older adults' social needs and the possibilities of the home care profession to support social participation
2023 (English)In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 65, article id 101130Article in journal (Refereed) Published
Abstract [en]

Quality of care is determined not only by political decisions but also by how those policies are understood and managed by professionals when put into action. Home care services, the most common form of elder care in Sweden today, should include social support, which is very important for health and wellbeing. And yet, support for social participation seems to be lacking. Understanding prevalent social constructs and their possible impacts on focus and content of social practice in home care could reveal ways to address social support in home care. Therefore, this article highlights how professionals in home care provision talk about older home care recipients' loneliness and social needs, and how these repertoires are related to professionals' opportunities and obligations to support those social needs. The study included 22 persons from different professions in home care provision, from two municipalities in northern Sweden. Nine individual interviews and four group interviews were conducted, recorded, transcribed, and analyzed using a discourse psychology approach. The results show two interpretative repertoires in which notions of otherness and likeness guided definitions and support regarding loneliness, social needs, and social support. This study reveals assumptions that underpin and structure the practices of home care. As the interpretative repertoires provided differing and partly opposing views on how to provide social support and combat loneliness, it seems important to also address the broader issues of professional identities and how loneliness is defined and approached.

Place, publisher, year, edition, pages
Elsevier, 2023
Keywords
Home care services, Occupational therapy, Discourse analysis, Interpretative repertoire, Older adults, Aging
National Category
Occupational Therapy Ethnology Nursing
Research subject
Occupational therapy; Ethnology
Identifiers
urn:nbn:se:umu:diva-205993 (URN)10.1016/j.jaging.2023.101130 (DOI)000952643200001 ()2-s2.0-85150042171 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-07089
Available from: 2023-03-26 Created: 2023-03-26 Last updated: 2023-09-05Bibliographically approved
Rapo, E., Johansson, E., Jonsson, F., Hörnsten, Å., Lundgren, A. S. & Nilsson, I. (2023). Critical components of social prescribing programmes with a focus on older adults - a systematic review. Scandinavian Journal of Primary Health Care, 41(3), 326-342
Open this publication in new window or tab >>Critical components of social prescribing programmes with a focus on older adults - a systematic review
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2023 (English)In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 41, no 3, p. 326-342Article, review/survey (Refereed) Published
Abstract [en]

Aims: The aim of this study was to identify and evaluate critical components within social prescribing programmes that can impact loneliness, health, or well-being among older adults.

Methods: A systematic review with a narrative synthesis was conducted by systematically searching five databases. A total of 1193 hits were identified, screened, and assessed. Twelve studies were included, with data being extracted and deductively analysed in an iterative manner and then tabulated together with outcomes in order to find common narratives.

Results: Three critical components were identified: Assessment before prescription, matching participants with relevant activities, and individualised support from link worker. These critical components seemed important for the success of social prescribing programmes since they had an impact on loneliness, health, and well-being. All together, these results highlight the importance of person-centeredness in the prescribing process.

Conclusions: The three critical components identified may prove useful in further research, evaluation, or implementation of social prescribing programmes. Important aspects for further evaluation are discussed.

Place, publisher, year, edition, pages
Taylor & Francis, 2023
Keywords
loneliness, older adults, person-centred care, primary healthcare, Social prescribing
National Category
Public Health, Global Health, Social Medicine and Epidemiology Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:umu:diva-212498 (URN)10.1080/02813432.2023.2237078 (DOI)001032194000001 ()37485982 (PubMedID)2-s2.0-85165571862 (Scopus ID)
Available from: 2023-08-01 Created: 2023-08-01 Last updated: 2023-09-29Bibliographically approved
Blusi, M., Lindgren, H. & Nilsson, I. (2023). Factors to consider when introducing digital social activities to older persons with home care. In: Maria Hägglund; Madeleine Blusi; Stefano Bonacina; Lina Nilsson; Inge Cort Madsen; Sylvia Pelayo; Anne Moen; Arriel Benis; Lars Lindsköld; Parisis Gallos (Ed.), Caring is sharing: exploiting the value in data for health and innovation. Paper presented at MIE2023, 33rd Medical Informatics Europe Conference, Gothenburg, Sweden, May 22-25, 2023 (pp. 453-457). IOS Press, 302
Open this publication in new window or tab >>Factors to consider when introducing digital social activities to older persons with home care
2023 (English)In: Caring is sharing: exploiting the value in data for health and innovation / [ed] Maria Hägglund; Madeleine Blusi; Stefano Bonacina; Lina Nilsson; Inge Cort Madsen; Sylvia Pelayo; Anne Moen; Arriel Benis; Lars Lindsköld; Parisis Gallos, IOS Press, 2023, Vol. 302, p. 453-457Conference paper, Published paper (Refereed)
Abstract [en]

Social isolation and loneliness have become everyday concerns forpopulations all over the world as these factors are affecting both physical and mentalhealth in a negative way. Feelings of isolation and loneliness are increasinglyacknowledged as a health risk among older persons. ICTs have been recognized aseffective tools to combat social isolation among older people. The aim of this studywas to explore factors of significance when introducing a tablet-based systemproviding digital social activities for older persons with home care. Participants were17 persons, age 70 and older, who lived alone and had assistance from home care.This exploratory study used cross-sectional qualitative data analyzed throughthematic analysis. Three themes were generated: 1) lacking vocabulary related tothe context, 2) intuitive user interface may replace extensive instructions and 3)unwillingness to commit to a pre-defined measure of performance.

Place, publisher, year, edition, pages
IOS Press, 2023
Series
Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365 ; 302
Keywords
Social isolation, social activity, older persons, home care, tablet, digital healthcare
National Category
Nursing
Research subject
caring sciences in social sciences; Occupational therapy; computer and systems sciences
Identifiers
urn:nbn:se:umu:diva-208335 (URN)10.3233/SHTI230171 (DOI)37203715 (PubMedID)2-s2.0-85159759121 (Scopus ID)978-1-64368-388-1 (ISBN)978-1-64368-389-8 (ISBN)
Conference
MIE2023, 33rd Medical Informatics Europe Conference, Gothenburg, Sweden, May 22-25, 2023
Available from: 2023-05-19 Created: 2023-05-19 Last updated: 2023-06-21Bibliographically approved
Nilsson, I. (2023). Strategier för att motverka ofrivillig ensamhet (1ed.). In: Petter Ahlström; Börje Bjelke; Jan Paulsson; Sören Runsteen; Petra Sandberg (Ed.), Bra bostäder för seniorer: en antologi (pp. 61-66). Stockholm: Svensk Byggtjänst
Open this publication in new window or tab >>Strategier för att motverka ofrivillig ensamhet
2023 (Swedish)In: Bra bostäder för seniorer: en antologi / [ed] Petter Ahlström; Börje Bjelke; Jan Paulsson; Sören Runsteen; Petra Sandberg, Stockholm: Svensk Byggtjänst , 2023, 1, p. 61-66Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Svensk Byggtjänst, 2023 Edition: 1
National Category
Other Health Sciences Public Health, Global Health, Social Medicine and Epidemiology
Research subject
Occupational therapy
Identifiers
urn:nbn:se:umu:diva-205227 (URN)978-91-7917-153-7 (ISBN)
Available from: 2023-02-27 Created: 2023-02-27 Last updated: 2023-02-28Bibliographically approved
Nyqvist, F., Nilsson, I., Näsman, M. & Olofsson, B. (2023). The association between leisure engagement and loneliness before and during the COVID-19 pandemic: a Nordic population-based study. Scandinavian Journal of Public Health, 51(5), 744-753
Open this publication in new window or tab >>The association between leisure engagement and loneliness before and during the COVID-19 pandemic: a Nordic population-based study
2023 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 51, no 5, p. 744-753Article in journal (Refereed) Published
Abstract [en]

Aim: The main aim of this study was to examine leisure engagement and loneliness among older adults before and during the COVID-19 pandemic by analysing population-based data from western Finland and northern Sweden.

Methods: The data originated from the Gerontological Regional Database (GERDA) postal questionnaire study conducted in 2016 (n=7996) and 2021 (n=8148) among older adults aged 65, 70, 75, 80 and 85 years. Associations between loneliness and leisure engagement were analysed using logistic regression.

Results: In total, 10% and 9% of the older adults reported loneliness in 2016 and 2021, respectively. The results showed that a lack of engagement in socialising and pleasure was independently associated with loneliness in both study years, while a lack of engagement in cultural activities was associated with loneliness in 2016 only. In 2021, the likelihood of experiencing loneliness was higher in the Finnish region than in the Swedish region. In addition, those reporting a decrease in hobby and socialising leisure activities due to the COVID-19 pandemic were more likely to report loneliness.

Conclusions: Most leisure activities decreased during the pandemic, suggesting an increase in social isolation. However, this did not reflect an increase in loneliness in the studied regions. The evidence suggests that leisure engagement, especially socialising activities, continued to be important for well-being among older adults during the pandemic. Further, loneliness was affected by contextual factors as well as individual-level characteristics. Thus, according to the measures reported here, the pandemic seemed to have a slightly weakened well-being impact in Finland.

Place, publisher, year, edition, pages
Sage Publications, 2023
Keywords
COVID-19 pandemic, Finland, Leisure engagement, loneliness, Sweden
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:umu:diva-209130 (URN)10.1177/14034948231171964 (DOI)000985951400001 ()37165572 (PubMedID)2-s2.0-85159072878 (Scopus ID)
Funder
Swedish Research Council, K2014-99X-22610-01-6Region Västerbotten
Available from: 2023-06-07 Created: 2023-06-07 Last updated: 2023-12-06Bibliographically approved
Viklund, E. W. .., Nilsson, I., Hägglund, S., Nyholm, L. & Forsman, A. K. (2023). The perks and struggles of participatory approaches: exploring older persons’ experiences of participating in designing and developing an application. Gerontechnology, 22(1), 1-12
Open this publication in new window or tab >>The perks and struggles of participatory approaches: exploring older persons’ experiences of participating in designing and developing an application
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2023 (English)In: Gerontechnology, ISSN 1569-1101, E-ISSN 1569-111X, Vol. 22, no 1, p. 1-12Article in journal (Refereed) Published
Abstract [en]

Background: Innovative multidisciplinary and person-centred initiatives are needed to promote well-being among older persons. In order to approach these goals, both health promotion and the field of innovation studies recognise the importance of the meaningful engagement of older persons in development processes. Participatory approaches are applied within technology development, but previous studies highlight a lack of knowledge about how they matter—especially for the persons who are participating in the co-creation process. 

Objective: The study explores older persons’ experiences of participating in an innovation project. Method: The study is part of the @geing Online project. Semi-structured interviews were conducted at several intervals during and after the project in two regions in Finland and were analysed using thematic analysis. In total, 38 older individuals participated.

Results: The older persons perceived that participating in an innovation project can be an uplifting experience that increases their interest and confidence in digital technology use by combating stereotypes. Additionally, being able to make one’s own and other older persons’ voices heard regarding services targeting older persons in collaboration with local universities was also perceived as valuable. However, the participation did not fully live up to all the older participants’ expectations. Feelings of disappointment emerged in relation to their own performance with the prototypes being developed, as well as the fear of failing the project team. Additional sources of disappointment were related to the fact that the participants did not increase their knowledge of new and familiar digital technology to the extent that they had hoped. 

Conclusion: The findings of this study highlight experiences of taking part in an innovation project focusing on technology design with a participatory approach, depicting the benefits, motivators, and challenges. This kind of knowledge is important in order to improve future participatory practice in gerontechnology endeavours.

Place, publisher, year, edition, pages
International Society for Gerontechnology (ISG), 2023
Keywords
older persons, technology, participatory approaches, user-centered design
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:umu:diva-223227 (URN)10.4017/gt.2023.22.1.816.03 (DOI)
Available from: 2024-04-12 Created: 2024-04-12 Last updated: 2024-04-12Bibliographically approved
Gustafsson, P. E., Fonseca Rodriguez, O., Nilsson, I. & San Sebastian, M. (2022). Intersectional inequalities in loneliness among older adults before and during the early phase of the COVID-19 pandemic: A total population survey in the Swedish eldercare setting. Social Science and Medicine, Article ID 115447.
Open this publication in new window or tab >>Intersectional inequalities in loneliness among older adults before and during the early phase of the COVID-19 pandemic: A total population survey in the Swedish eldercare setting
2022 (English)In: Social Science and Medicine, ISSN 0277-9536, E-ISSN 1873-5347, article id 115447Article in journal (Refereed) Published
Abstract [en]

Loneliness among older adults is a public health problem that has received particular attention since the emergence of the COVID-19 pandemic. Studies to date have however found a rather modest psychosocial impact of the pandemic on older adults, and scarce research has analyzed this impact using a comprehensive equity lens. The present study used an intersectional approach to examine social inequalities in loneliness before and during the early phase of the pandemic among older adults receiving eldercare in Sweden. The study population (analytical N = 205,529) came from two waves (2019 and 2020) of a total population survey to all older adult (>65 years of age) home care recipients and nursing home residents in Sweden. Loneliness was self-reported by a single-item measure, and survey data were linked to population register data on age, gender, residential setting, income, and country of birth. Additive binomial regression models were used to estimate prevalence differences and discriminatory accuracy according to an analysis of individual heterogeneity and discriminatory accuracy (AIHDA) approach. Results showed inequalities in loneliness arising particularly in the intersection of country of birth, income, and residential setting. The inequalities widened slightly but ubiquitously following the emergence of the pandemic in 2020, with particularly nursing home residents emerging as a risk group. The discriminatory accuracy of inequalities was consistently low to moderate throughout the analyses but increased marginally during the pandemic in 2020. The study illustrates how social inequalities engenders heterogeneity in the psychosocial risk of older adults before and during the pandemic. These findings should stimulate more nuanced and equity-oriented depictions, research and policies about loneliness among older adults in the peri-pandemic era.

Place, publisher, year, edition, pages
Elsevier, 2022
Keywords
Loneliness, Intersectionality, Older adults, Sweden, Covid-19, Health inequalities, Discriminatory accuracy
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Research subject
Social Medicine; Social Medicine
Identifiers
urn:nbn:se:umu:diva-200261 (URN)10.1016/j.socscimed.2022.115447 (DOI)000878285400018 ()36288648 (PubMedID)2-s2.0-85140321995 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020–01565Umeå University, FS2.1.6-339-20
Available from: 2022-10-14 Created: 2022-10-14 Last updated: 2022-12-29Bibliographically approved
Lampinen, J., Conradsson, M., Nyqvist, F., Olofsson, B., Gustafson, Y., Nilsson, I. & Littbrand, H. (2022). Loneliness among very old people with and without dementia: prevalence and associated factors in a representative sample. European Journal of Ageing, 19, 1441-1453
Open this publication in new window or tab >>Loneliness among very old people with and without dementia: prevalence and associated factors in a representative sample
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2022 (English)In: European Journal of Ageing, ISSN 1613-9372, E-ISSN 1613-9380, Vol. 19, p. 1441-1453Article in journal (Refereed) Published
Abstract [en]

Loneliness and dementia are common among very old (aged ≥ 80 years) people, but whether the prevalence of loneliness differs between very old people with and without dementia is unknown and few studies have investigated associated factors. The aims of the present study were to compare the prevalence of loneliness between people with and without dementia in a representative sample of very old people, and to investigate factors associated with loneliness in the two groups separately. This population-based study was conducted with data on 1176 people aged 85, 90, and ≥ 95 years (mean age 89.0 ± 4.47 years) from the Umeå 85 + /Gerontological Regional Database study conducted in northern Sweden, during year 2000–2017. Structured interviews and assessments were conducted during home visits. Loneliness was assessed using the question “Do you ever feel lonely?.” Multivariable logistic regression analysis was conducted to identify factors associated with loneliness in participants with and without dementia. The prevalence of loneliness did not differ between people with and without dementia (50.9% and 46.0%, respectively; p = 0.13). Seven and 24 of 35 variables were univariately associated with the experience of loneliness in participants with and without dementia, respectively. In the final models, living alone and having depressive symptoms were associated with the experience of loneliness in both study groups. In participants without dementia, living in a nursing home was associated with the experience of less loneliness. These findings contribute with important knowledge when developing strategies to reduce loneliness in this growing age group.

Place, publisher, year, edition, pages
Springer, 2022
Keywords
Aged 80 and over, Cross-sectional study, Dementia, Social participation
National Category
Nursing Gerontology, specialising in Medical and Health Sciences Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:umu:diva-199917 (URN)10.1007/s10433-022-00729-8 (DOI)000854398500001 ()36157280 (PubMedID)2-s2.0-85138167224 (Scopus ID)
Funder
Swedish Research Council, K2014-99X-22610-01- 6Vårdal FoundationKonung Gustaf V:s och Drottning Victorias FrimurarestiftelseThe Kempe FoundationsRegion VästerbottenThe Dementia Association - The National Association for the Rights of the DementedEuropean CommissionInterreg
Available from: 2022-10-05 Created: 2022-10-05 Last updated: 2022-12-30Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-8265-5769

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